• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

No Celiac
0

Rate this topic

12 posts in this topic

Recommended Posts

Ads by Google:
Ads by Google:


Ya know...I may get in trouble here for this but that is one of the rudest comments that I have ever read on here. Glad that you don't have celiac but the rest of us here do. I am currently glutened and feeling like crap so nice way to rub it in.....good going!!

Share this post


Link to post
Share on other sites

You know, Mo....I sort of thought that at first, too.

But then I thought....We always want to know what the results are with the people we help on here....maybe he/she just thought we would like to know that. And, who among us wouldn't like to not have Celiac?

Of course, Celiac is a definitive answer for why someone feels ill. Now this poor person has no idea why he is having the issues he has. Maybe he is NCGI? Maybe he has a parasitic infection? Maybe cancer? Maybe Chrohn's? Worse things than Celiac.

So to Razzle51 - I'm sorry that the doctors have not found out what is causing your medical issues. I hope they continue to search for the problem and find a good solution for you and you return to good health soon.

  • Upvote 2

Share this post


Link to post
Share on other sites

Congratulations! :) I hope you figure out soon, and consider non-celiac gluten sensitivity if you continue to have problems.

Share this post


Link to post
Share on other sites

I'm not sure what to say exactly. There is nothing quite like being deathly ill and having all the tests say you are in perfect health. What tests did they do precisely?

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:


True..true...So sorry, I hope that you feel better soon and get to the root of your health issues.

Share this post


Link to post
Share on other sites

I am delighted for you. Be sure to hang around and ask questions if you think gluten-free might help. I have a diagnosis of NCGI and feel way better on a gluten-free diet. I hope you get to the bottom of things.

Good luck

Share this post


Link to post
Share on other sites


Ads by Google:


Yeah, I was actually happy to be diagnosed with Celiac because I at least knew what the problem was FINALLY after 10+ years of suffering and could get on the track of feeling better. Sorry you don't have the answer yet.

  • Upvote 2

Share this post


Link to post
Share on other sites

well, I was going to say pretty much what Karen said, so I'll just say

"what karen said"

and since I went most of my life not knowing why I felt so bad, had horrible symptoms progress in the last 10 years and pretty much was ready to die, I am one of the few people who said :

"I have Celiac! Hot damn! whoohoo!"

because I knew I had an answer and I could get well.

And, I have to add this cautionary note: sometimes, despite the negative testing results, if it walks like a duck and acts like a duck.....

(my celiac blood panel was negative and that set me up for 2 more years of living hell)

It may not be celiac, but the gluten intolerance spectrum is pretty wide.

  • Upvote 1

Share this post


Link to post
Share on other sites

well, I was going to say pretty much what Karen said, so I'll just say

"what karen said"

and since I went most of my life not knowing why I felt so bad, had horrible symptoms progress in the last 10 years and pretty much was ready to die, I am one of the few people who said :

"I have Celiac! Hot damn! whoohoo!"

because I knew I had an answer and I could get well.

And, I have to add this cautionary note: sometimes, despite the negative testing results, if it walks like a duck and acts like a duck.....

(my celiac blood panel was negative and that set me up for 2 more years of living hell)

It may not be celiac, but the gluten intolerance spectrum is pretty wide.

That is sort of why I asked what tests were done. Sometimes a duck is a duck is a duck. I don't care if the tests tell you a duck isn't a duck, if a duck is staring you in the eyes, it doesn't matter what a piece of paper says. You would be a moron to say, hey, that ain't no duck!

ETA: Also, once I got my head out of my ever too ample backside, I was thrilled to have an answer. I was thrilled to not have to be on a half dozen drugs with 4 dozen side effects worse than how sick I already was. All I had to do was stop eating gluten. Simple. (Bwahahaha!)

Edited by Adalaide

Share this post


Link to post
Share on other sites


Ads by Google:


I was relieved to find I had celiac. I liked having an explanation for 30 years of fatigue and a way out. Yeah, I would have been glad if I didn't have to follow the diet, but I would be back to square one of what to do next. I just hope that you Razzle51 will find the keys to your health struggle and be able to do something about it.

Diana

  • Upvote 1

Share this post


Link to post
Share on other sites

I think I was more scared of getting a negative/borderline diagnosis because theres nothing worse than not knowing for sure, especially with all these false negatives people get which I keep reading about. At least with a dx of celiac or if you've worked out you're a NCGI then you've got something you can deal with.

I'm still new to all this but hope you find out whats causing your symptoms Razzle...may even be worth going gluten free for a while to see if things improve or try an elimination diet (I'm sure you"ll find loads of info on here on how to go about it).

  • Upvote 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,101
    • Total Posts
      939,651
  • Member Statistics

    • Total Members
      66,078
    • Most Online
      3,093

    Newest Member
    bookmuse
    Joined
  • Popular Now

  • Topics

  • Posts

    • I agree with cyclinglady.   My daughter has had elevated ttg number for 3+ years now.   We are also a gluten free family.   My household went gluten free as soon as she was diagnosed.  My daughter's ttg has came down dramatically over the years, but we never quite hit the below range (We came SUPER close with one of our tests).   Our doctor is not concerned.   She even thinks that her ttg is perhaps falsely elevated.   My daughter is doing well, she is growing.   Taller than me now.  So, I give up worrying about that ttg number a while back.   (I was rather obsessed about it for a while myself.   We worked so hard on this diet, and deserve an excellent grade for it!!)
    • Myalgia is not  a diagnosis.  It is just a fancy word for sore muscles..
    • Hi to whomever reads this. I have had coeliac disease since 2003. Lately I have been very sore and have trouble breathing. My dr has just diagnosed me with a type of myalgia. Has anyone who has coeliacs been diagnosed with myalgia.  It is extremely sore around my shoulders down my arms. He has put me on prednisone for 2 weeks to see how that goes. Would be interested in anyone else’s comments. Many thanks.
    • My 14 year-old daughter was diagnosed with type 1 diabetes at the age of 10.   3 months later she was also diagnosed with celiac.   Her ttg was sky high (it seems your son's ttg is also sky high).   Our endo offered to formally diagnosed my daughter with celiac without an endoscopy, because she has never seen anyone with that high of a ttg number to not be celiac.   But we did not want to believe that my daughter was celiac too, and we scheduled an endoscopy.  She was formally diagnosed with celiac 2 weeks after the endoscopy. Type 1 and celiac are both auto-immune disease.   I was told that about 10% of type 1s have celiac, and that is why they have this standard procedure to screen for celiac in type 1s.   I think you should schedule an endoscopy as soon as possible before going to a gluten free diet.   I think it is better to be certain, rather than always be second guessing about this in the years to come.
    • .  Ingredients & information  from 10 years ago may have changed.  IN the US and Canada, modified food starch is almost never  made from wheat.  the laws of both countries require that, if it is made from wheat, that it be specified.  I have seen it , maybe two or three times.  It was labeled either modified wheat starch or modified starch ( wheat).       i just went to their web site site and The ingredients are "Yellow Corn Flour, Salt, Maltodextrin, Paprika, Spices, Modified Corn Starch, Sugar, Garlic Powder, Citric Acid, Autolyzed Yeast Extract, Caramel Color (sulfites)."   it states CORN starch
  • Upcoming Events