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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Do You Do At The Hospital?
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15 posts in this topic

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kristenloeh    14

This is a huge fear of mine... When/if I have to have my brain surgery, if the hospital doesn't provide gluten free options, how will I eat while staying there? I saw in the prison post that a lot of people said that the hospitals where they are at didn't provide a gluten free option. Any suggestions as to what to do if they don't? Anyone else been in this dilemma?

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IrishHeart    1,633

Before you worry for nothing in advance (a quality many of us have PhDs in) :D

Find out what hospital you are going to and meet with the staff dietician. They may be more enlightened than we think. (okay, I am being skeptically sarcastic here...)

or

Have someone you know bring you food?

or

Check with a local gluten-free cafe? For example:

The local gluten-free cafe here--the angel who owns it will make food and have it delivered to you.

I am sure others will chime in now.....wait for it......it's coming..............

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Adalaide    361

Do you have friends/family who are non-moronic and can bring you food that isn't a thousand kinds of contaminated?

If not, can you plan ahead and bring things with you? You'll probably be on clear liquids first. You could bring broths you know are safe in small containers from the store or in the boxes and they can refrigerate it. They should have a microwave on the surgery floor and a nurse can just microwave the broth for you. Bring jellos in little plastic single serve cups. (They usually make their own jello at the local hospitals here, I trust them not at all to even get that right.)

Thinking back to after I had my gallbladder out, after I was handling clear liquids they let me add pudding and milk. Milk came in cartons, any moron can bring you a carton of milk up and not open it. (Assuming you do milk.) And you could bring pudding cups from home too. Or if you have a friend/family you trust this is where you could have them bring a dairy sub if you need to made with whatever "milk" you use.

Eventually you'll be on "real" food. I never got that far in the hospital but you will since your surgery is pretty serious. You'll probably have to talk to either your doctor or plan time to go talk to the surgery floor staff ahead of time about what that food is. Plan what sorts of things you can bring. If you can't trust someone to prep food for you, you could always prep it and freeze it and have someone bring it when it is time.

I remember after my surgery I was STARVING!!! However much time they say you'll be there, plan for longer. However much you think you'll eat, plan for more. Better to be over-prepped than under. I haven't done this myself, as my surgery is when I was diagnosed but it is something I have thought on often as it is a super huge fear of mine.

Also, make sure they know ahead of time what brands of what meds are okay orally, or that they are only allowed to give you IV meds. My hospital charts all say that I am never to be given oral medication under any circumstances. With enough planning, everything should be as stress free as possible. (As if, right?)

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kareng    1,992

Honestly, we have a hospital here that thinks a diet for someone with high blood sugar is anything they want except dessert. I would have someone bring my food and pack some food. The last thing you need is diarrhea or migraines from a glutening.

Maybe you live in an area that is gluten aware? I thought you said Portland in another post? The hospital might be Ok there. I would check with them first and make sure your doctor writes gluten-free diet in as many places as he can. Then if you get any trouble, you can refer them to your doctor's orders.

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lindalee    2

I take a crockpot, cup, spoon and ladle to the hospital for friends with homemade chicken soup. The first few days they can eat the broth and afterwards the chicken. Vegetables can be added when solid food can be eaten. The crockpot can stay plugged in -it's in the room so they can have a cup whenever they want. It is much healthier for them than microwaving, also.

Whatever you have prepared at home can be used at the crockpot later.

Hope that helps!

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kareng    1,992

She said she's in Seattle. (where are your cheaters, Missy??) :P

I was trying to remember. Too lazy to stop posting, go back and check, re- post or edit.

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IrishHeart    1,633

I take a crockpot, cup, spoon and ladle to the hospital for friends with homemade chicken soup. The first few days they can eat the broth and afterwards the chicken. Vegetables can be added when solid food can be eaten. The crockpot can stay plugged in -it's in the room so they can have a cup whenever they want. It is much healthier for them than microwaving, also.

Whatever you have prepared at home can be used at the crockpot later.

Hope that helps!

Fantastic idea. The vegs and chicken can stay fresh enough for a few days like that?? Impressive.

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Adalaide    361

Fantastic idea. The vegs and chicken can stay fresh enough for a few days like that?? Impressive.

Meh, it's soup. What is the worst that will happpen? It will be soggy? I'm sure she'll totally care, drugged senseless on narcotics.

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My children are realizing that if I need a hospital stay they will need to bring me food. If I knew in advance I would freeze servings. I might try bringing my electric skillet if allowed. However, otherwise my children could cook or eat it at home and then keep it warm in my car oven. I am hoping I do not end up in the hospital.

Diana

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lindalee    2

Fantastic idea. The vegs and chicken can stay fresh enough for a few days like that?? Impressive.

It stays fresh, I tell them just to keep it on warm overnight. They tell me everyone in the hospital comes by because it smells so good.

I have all size crockpots. If you are staying several days, I recommend that you take the large one. I usually carry it and supplies into the hospital in a box and leave the box there for them to carry it home and then I pick it up.

The broth is delicious. It is the basic SCD chicken soup recipe. whole chicken, onions, carrots, celery and parsley and filtered water.

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IrishHeart    1,633

Meh, it's soup. What is the worst that will happpen? It will be soggy? I'm sure she'll totally care, drugged senseless on narcotics.

No, giraffe girl..........not because it will be soggy. :P

I have a "thing" about food sitting out for days ......, but if the poster Linda Lee says it's okay, I believe her.

That's why I asked.

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kareng    1,992

I got the little lunch crockpot. One reason was, if I had to go to the hospital, it would be easy for my family to bring me some Progresso gluten-free soup or some chicken broth from home in the morning. It would be hot for my lunch while they were at work or school.

I would definitely check with the hospital first. Many hospitals have this "super broth" that is the first food they give people after surgery. It tasted like beef broth but I would check the ingredients first. Most hospitals have yogurt, jello, pudding, milk, juice in sealed packages you could suplement with. There are also microwaves on all the floors. Some have fridges you can keep food in. They are behind the nurses desk, you have to ask a nurse to get it. These are all things to find out first, not while you are groggy and your family is worried about you.

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kristenloeh    14

Thank you all for the great advise! I was seriously freaking out about it! You guys are my saviors! <3

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