• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Casein Intolerance
0

16 posts in this topic

Does anyone else also have casein intolerance? If so, what are the typical symptoms? Are they similar to gluten intolerance?

How does one know if they are casein or lactose intolerant? (maybe that's too many questions at once, but I am confused).

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Peeptoad,

Casein is a protein in dairy. lactose is a sugar. When you eat hard cheeses, you are mostly eating casein because the cheese making process removes the lactose. So if you take out all dairy for a week, and then eat some hard cheese, like cheddar and it makes you sick, that could be a casein intolerance.

Symptoms are variable, but digestive upset is one that is somewhat common.

0

Share this post


Link to post
Share on other sites

So if you take out all dairy for a week, and then eat some hard cheese, like cheddar and it makes you sick, that could be a casein intolerance.

Symptoms are variable, but digestive upset is one that is somewhat common.

Thank you! That's a good idea to test for casein intolerance... think I'll give it a try.

0

Share this post


Link to post
Share on other sites

I'm casin intolerant. For me, my symptoms are kinda like a mild version of getting glutened, a little GI upset, a lot of brain fog and that lovely "been hit by a bus" feeling.

Personally, I am only sensitive to cow's milk. I can eat goat and sheep (as long as it is grassfed.) You might want to try a nice goat cheese and see if you can handle it. :)

0

Share this post


Link to post
Share on other sites

Thanks dreacakes. I do eat goat cheese (and other dairy) normally, so maybe if I eliminate just cow it will help me figure things out. I also read that most dairy (cow) problems come fro holstein and that milk from Jersey cows might not be a problem (something genetically is different about the milk they produce I think?)... might try to find some Jersey cow substitutes, although I'm not sure if they are labeled differently from other products.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Oh boy do I know about casein intolerance. I gave up dairy about 2 months after gluten. That was in the summer. Over the holidays I mistakenly had some real cheese. I thought the gluten free pasta dish I bought had the vegan cheese. Well I didn't react too badly so I had cheese again the next day, then the next. Christmas I had trifle with mascarpone cheese and whipping cream. (I made it, so I know it was gluten free) By then my gums were inflamed, I was bumping into things again, constant headaches, tinnitus worsened, slurring my words, tingling in my hands worsened, I couldn't sleep and my skin became really itchy. So for me, I'd say it's pretty much like a glutening. It took over 2 weeks to recover. I'm too afraid to try sheep or goat cheese. Maybe after I've had time to forget how bad I felt. B)

0

Share this post


Link to post
Share on other sites

Anyone had any luck with raw dairy? I thought I was fine trialing raw grassfed cowcheese yesterday but then the itching, nausea and bloating came back. I guess I'll try to find raw grassfed goat/sheep-cheese next. Man it's so convenient being able to eat cheese, a lot less cooking involved

0

Share this post


Link to post
Share on other sites

for me casein reaction is the same as eating gluten as well. As a child my mom would still feed me goats milk and cheese but now i find even that will set me off. best advice is to pick a time when its not inconvenient to get sick and try to test goat and cow milk.

good luck. hope you can still eat some cheese. If not, i find Daiya cheese is great for pizza and other hot dishes. :)

0

Share this post


Link to post
Share on other sites

Thanks Chai.

I'm going through a LOT of work-related stress right now and, mentally, I don't think I can deal with yet another dietary restriction. I'm definitely going to try a dairy-free trial when things calm down at work (hopefully in the next month or two) and will test out both sheep and goat products, as well as aged cheeses (to see if there is possiblity of casein intolerance). I have been experiencing some symptoms that would lead me to believe one of those 2 dairy sensitivites is a possiblity: over all body itching with no rash is one, plus I ate yogurt the other day after not having it for quite some time and had moderate GI problems immediately afterwards.

0

Share this post


Link to post
Share on other sites

I finally went dairy free last week. It's been almost 8 days and so far I have not noticed a real decline in the symptoms I was having (chronic phlegm/post-nasal drip, etc). I'm going to give it another day or two and then re-introduce hard cheses to see if they bother me. If no problem there, then I'll go back to my nomral gluten-free diet and see how it goes.

0

Share this post


Link to post
Share on other sites

This is actually true!  I was talking to elder milk farmer's daughters and they were telling me about the finer points of milk.  (OK so I nearly blanked out from boredom but did manage to retain some information.) :rolleyes:

Different breeds of cows are known (actually bred for) the small differences to their milk.  i.e. Higher fat content in this breed opposed to that breed.

Pasturization changes things A LOT.

The food the cows eat makes a HUGE difference.  The farmer's know the taste between early season hay and late season hay feedings by taste.  (That is also logical, because the totally knew when those cows got into the onion field too. :wacko:

 

Now you can't have any doubts that I am living in the Midwest! ;)

Thanks dreacakes. I do eat goat cheese (and other dairy) normally, so maybe if I eliminate just cow it will help me figure things out. I also read that most dairy (cow) problems come fro holstein and that milk from Jersey cows might not be a problem (something genetically is different about the milk they produce I think?)... might try to find some Jersey cow substitutes, although I'm not sure if they are labeled differently from other products.

0

Share this post


Link to post
Share on other sites

Started eating hard cheese (fresh parmesan, etc) yesterday morning. Been about 24-36 hours and so far no ill effects. I guess I will re-introduce other dairy tomorrow and see what happens. It's not looking like dairy is a major issue for me (aside from drnking a full glass of milk, which I haven't done in about 20 years).

0

Share this post


Link to post
Share on other sites

I finally went dairy free last week. It's been almost 8 days and so far I have not noticed a real decline in the symptoms I was having (chronic phlegm/post-nasal drip, etc). I'm going to give it another day or two and then re-introduce hard cheses to see if they bother me. If no problem there, then I'll go back to my nomral gluten-free diet and see how it goes.

Phlegm/post nasal drip.

Have you tried allergy meds?

It is allergy season and they can literally give me a fever (cedar).

0

Share this post


Link to post
Share on other sites

I have tried allergy meds: Benadryl, Sudafed, etc. None if it helps. I've had this chronic phlegm/pnd for about 15 years now and I'm not exxagerating. It started when I was in the Pacific Northwest and I've since lived in Southern California, and now the northeast and I still have it. :(

If dairy turns out not to be the culprit, then it is something I can live with, but it really is a head-scratcher for me. One thing I know for certain: the phlegm started after I had mononucleosis in late 1996. I recovered from the virus fine, but the phlegm has remained ever since.

 

Phlegm/post nasal drip.

Have you tried allergy meds?

It is allergy season and they can literally give me a fever (cedar).

0

Share this post


Link to post
Share on other sites

Unlike lactose, there are multiple different caseins. I remember reading that only 2 types seemed to cause reactions in celiacs. In any case, different types of milk will probably have different amounts of them.

0

Share this post


Link to post
Share on other sites

Thanks for the info from everyone. I ate hard cheese (aged parmesan) for a couple of days earlier this week and started back in other dairy (yogurt, cream) yesterday... so far no bad reactions or anytning new, so I'm assuming dairy is not a major issue for me.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,031
    • Total Posts
      933,911
  • Member Statistics

    • Total Members
      64,597
    • Most Online
      3,093

    Newest Member
    Connie Harrison
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • Avoid gluten removed beers, or gluten reduced ones as they are not safe for celiacs. There are some ciders that are decent like Austins Honey Cider they make hard and sweet ones, I started using them in recipes that call for a beer for marinades etc recently. https://austineastciders.com/ There is another member here who can give you a long list of 100% Gluten Free Beers I Say play it safe with Rums and mixers, pure agave taquilia, some non grain vodkas. Avoid flavored liquors.  My personal favorites are admiral nelsons rum, I cook with it often, and used to drink it a lot before my ulcer issues and UC started having flare ups and bleeding with alcohol. Nothing used to beat a root beer, and rum or orange soda and a whipped vodka or rum at the end of the day. The admiral nelsons is very smooth.   Miss drinking, perhaps I might be able to have a shot or so in a few more years.
    • My numbers are right at the lower border of in range. I don't know if that's significant. Hemoglobin 12.7.  When I had surgery a year ago it was 10.3 afterwards.  I have heard of testing ferritin. Does low ferritin but normal CBC indicate anemia? I'm also wondering how quickly a CBC rebounds versus low ferritin if you have compromised iron absorption. 
    • Hello everyone I just received a call from my doctor's office that the Celiac lab work they drew returned 3 positive results.  I asked her to check me for Celiac as it was a suspicion of mine. I don't see the GI until next week. Can someone tell me what these lab numbers mean. I have tried to figure it out, but I'm not getting it. Can these numbers signal 'weak' chance or is it you have it or you don't? I am 37 years old. I have vitiligo (since 12 years old), chronic autoimmune related hives, thyroid removed from Graves disease at 20 years old, chronic anemia (last ferritin was 2). I've had meningitis and shingles. I had my gallbladder removed 1.5 years ago and the chronic pain in my URQ has never left. CT scan last August shows only cysts on ovaries, which I also have recurrent problems with. Stomach pains now for months and months, cramping, burning. Joint pain, headaches, anxiety, etc. Any advice please!? I am not so concerned about having to cut gluten as I am hoping that this may finally make me feel human again.
    • Only you can make a decision on whether to do a challenge or not.  My hubby went Gluten Free 12 years before I was officially diagnosed.  He refuses to do a challenge, because we need to pay our bills and we know that gluten makes him sick.  Why would anyone remain gluten free for more than 16 years if they did not need to?   He does tell me that I have received way more support from medical, family and friends.  It also has helped other members in my family (easy to ask for a celiac screening for my kid).   Good luck!  Do what is best for you.  
    • A CBC would check for size of blood cells, number of blood cells and hemoglobin levels, etc.  If you are within range, you probably would not be considered anemic.  A ferritin test (iron stores) can be checked too.  If very low, it starts to create symptoms.   https://en.m.wikipedia.org/wiki/Anemia  
  • Upcoming Events