• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Casein Intolerance
0

16 posts in this topic

Recommended Posts

peeptoad    7

Does anyone else also have casein intolerance? If so, what are the typical symptoms? Are they similar to gluten intolerance?

How does one know if they are casein or lactose intolerant? (maybe that's too many questions at once, but I am confused).

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


GFinDC    609

Hi Peeptoad,

Casein is a protein in dairy. lactose is a sugar. When you eat hard cheeses, you are mostly eating casein because the cheese making process removes the lactose. So if you take out all dairy for a week, and then eat some hard cheese, like cheddar and it makes you sick, that could be a casein intolerance.

Symptoms are variable, but digestive upset is one that is somewhat common.

Share this post


Link to post
Share on other sites
peeptoad    7

So if you take out all dairy for a week, and then eat some hard cheese, like cheddar and it makes you sick, that could be a casein intolerance.

Symptoms are variable, but digestive upset is one that is somewhat common.

Thank you! That's a good idea to test for casein intolerance... think I'll give it a try.

Share this post


Link to post
Share on other sites
dreacakes    2

I'm casin intolerant. For me, my symptoms are kinda like a mild version of getting glutened, a little GI upset, a lot of brain fog and that lovely "been hit by a bus" feeling.

Personally, I am only sensitive to cow's milk. I can eat goat and sheep (as long as it is grassfed.) You might want to try a nice goat cheese and see if you can handle it. :)

Share this post


Link to post
Share on other sites
peeptoad    7

Thanks dreacakes. I do eat goat cheese (and other dairy) normally, so maybe if I eliminate just cow it will help me figure things out. I also read that most dairy (cow) problems come fro holstein and that milk from Jersey cows might not be a problem (something genetically is different about the milk they produce I think?)... might try to find some Jersey cow substitutes, although I'm not sure if they are labeled differently from other products.

Share this post


Link to post
Share on other sites
Ads by Google:


Oh boy do I know about casein intolerance. I gave up dairy about 2 months after gluten. That was in the summer. Over the holidays I mistakenly had some real cheese. I thought the gluten free pasta dish I bought had the vegan cheese. Well I didn't react too badly so I had cheese again the next day, then the next. Christmas I had trifle with mascarpone cheese and whipping cream. (I made it, so I know it was gluten free) By then my gums were inflamed, I was bumping into things again, constant headaches, tinnitus worsened, slurring my words, tingling in my hands worsened, I couldn't sleep and my skin became really itchy. So for me, I'd say it's pretty much like a glutening. It took over 2 weeks to recover. I'm too afraid to try sheep or goat cheese. Maybe after I've had time to forget how bad I felt. B)

Share this post


Link to post
Share on other sites
Seifer    3

Anyone had any luck with raw dairy? I thought I was fine trialing raw grassfed cowcheese yesterday but then the itching, nausea and bloating came back. I guess I'll try to find raw grassfed goat/sheep-cheese next. Man it's so convenient being able to eat cheese, a lot less cooking involved

Share this post


Link to post
Share on other sites


Ads by Google:


chai    0

for me casein reaction is the same as eating gluten as well. As a child my mom would still feed me goats milk and cheese but now i find even that will set me off. best advice is to pick a time when its not inconvenient to get sick and try to test goat and cow milk.

good luck. hope you can still eat some cheese. If not, i find Daiya cheese is great for pizza and other hot dishes. :)

Share this post


Link to post
Share on other sites
peeptoad    7

Thanks Chai.

I'm going through a LOT of work-related stress right now and, mentally, I don't think I can deal with yet another dietary restriction. I'm definitely going to try a dairy-free trial when things calm down at work (hopefully in the next month or two) and will test out both sheep and goat products, as well as aged cheeses (to see if there is possiblity of casein intolerance). I have been experiencing some symptoms that would lead me to believe one of those 2 dairy sensitivites is a possiblity: over all body itching with no rash is one, plus I ate yogurt the other day after not having it for quite some time and had moderate GI problems immediately afterwards.

Share this post


Link to post
Share on other sites
peeptoad    7

I finally went dairy free last week. It's been almost 8 days and so far I have not noticed a real decline in the symptoms I was having (chronic phlegm/post-nasal drip, etc). I'm going to give it another day or two and then re-introduce hard cheses to see if they bother me. If no problem there, then I'll go back to my nomral gluten-free diet and see how it goes.

Share this post


Link to post
Share on other sites


Ads by Google:


mommida    158

This is actually true!  I was talking to elder milk farmer's daughters and they were telling me about the finer points of milk.  (OK so I nearly blanked out from boredom but did manage to retain some information.) :rolleyes:

Different breeds of cows are known (actually bred for) the small differences to their milk.  i.e. Higher fat content in this breed opposed to that breed.

Pasturization changes things A LOT.

The food the cows eat makes a HUGE difference.  The farmer's know the taste between early season hay and late season hay feedings by taste.  (That is also logical, because the totally knew when those cows got into the onion field too. :wacko:

 

Now you can't have any doubts that I am living in the Midwest! ;)

Thanks dreacakes. I do eat goat cheese (and other dairy) normally, so maybe if I eliminate just cow it will help me figure things out. I also read that most dairy (cow) problems come fro holstein and that milk from Jersey cows might not be a problem (something genetically is different about the milk they produce I think?)... might try to find some Jersey cow substitutes, although I'm not sure if they are labeled differently from other products.

Share this post


Link to post
Share on other sites
peeptoad    7

Started eating hard cheese (fresh parmesan, etc) yesterday morning. Been about 24-36 hours and so far no ill effects. I guess I will re-introduce other dairy tomorrow and see what happens. It's not looking like dairy is a major issue for me (aside from drnking a full glass of milk, which I haven't done in about 20 years).

Share this post


Link to post
Share on other sites

I finally went dairy free last week. It's been almost 8 days and so far I have not noticed a real decline in the symptoms I was having (chronic phlegm/post-nasal drip, etc). I'm going to give it another day or two and then re-introduce hard cheses to see if they bother me. If no problem there, then I'll go back to my nomral gluten-free diet and see how it goes.

Phlegm/post nasal drip.

Have you tried allergy meds?

It is allergy season and they can literally give me a fever (cedar).

Share this post


Link to post
Share on other sites
peeptoad    7

I have tried allergy meds: Benadryl, Sudafed, etc. None if it helps. I've had this chronic phlegm/pnd for about 15 years now and I'm not exxagerating. It started when I was in the Pacific Northwest and I've since lived in Southern California, and now the northeast and I still have it. :(

If dairy turns out not to be the culprit, then it is something I can live with, but it really is a head-scratcher for me. One thing I know for certain: the phlegm started after I had mononucleosis in late 1996. I recovered from the virus fine, but the phlegm has remained ever since.

 

Phlegm/post nasal drip.

Have you tried allergy meds?

It is allergy season and they can literally give me a fever (cedar).

Share this post


Link to post
Share on other sites
cavernio    9

Unlike lactose, there are multiple different caseins. I remember reading that only 2 types seemed to cause reactions in celiacs. In any case, different types of milk will probably have different amounts of them.

Share this post


Link to post
Share on other sites


Ads by Google:


peeptoad    7

Thanks for the info from everyone. I ate hard cheese (aged parmesan) for a couple of days earlier this week and started back in other dairy (yogurt, cream) yesterday... so far no bad reactions or anytning new, so I'm assuming dairy is not a major issue for me.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,903
    • Total Posts
      938,578
  • Member Statistics

    • Total Members
      65,815
    • Most Online
      3,093

    Newest Member
    Jmsc4321
    Joined
  • Popular Now

  • Topics

  • Posts

    • Solid advice. Wish that more people would consider that this might be necessary for some and not entirely paranoid. Could very well be airborne, but most likely culprit is something you're eating. That said, baking, construction/open drywall, farms/animal food and bulk/flour aisles in grocery stores are legitimate worries. I was recently having frustrating problems with random but minor flare-ups, and have eliminated almost all packaged food (even gluten-free) for a bit. It has helped tremendously. I hope that perhaps my sensitivity levels will calm down in a few years, but not being itchy and scabby is worth almost any cumbersome restriction. I think for me the problem has largely been to do with the use of oats in many dedicated factories (even gluten-free oats make me very, very sick). I came to this when lodging a complaint/notifying a company that I'd had an issue with one of their GFCO certified products. I figured that mistakes could happen, and could not imagine anything else I'd eaten that day could be a culprit (had only eaten veggies/rice/meat) so I contacted them to report it. Their response made me quite sure that the lot my food came from was fine from a legal/GFCO gluten-free perspective, but revealed that they make all their gluten-free products on the same line - which include granolas, oat flour etc. When I investigated it a bit more, I realized that many of the gluten-free products that I suspected were causing me problems (but had no real basis for why) were all made by companies that also make lots of gluten-free oat products. Previously, I had only avoided gluten-free products that contained oats as an explicit ingredient, and had never considered that the residues from gluten-free oats could be problematic. Unfortunately, now that gluten-free oats have been legalized in Canada, it is very difficult to find companies that do not use them in some capacity, which is why I axed most of the processed gluten-free stuff. Presumably, because the oats are considered gluten-free, there is no reason to clean the line or employ any allergen food safety practices from the company's perspective. While this may not be a concern outside of those who are super sensitive, it might worth considering if you are still having problems or have a known issue with oats. At the very least, avoiding most processed gluten-free foods (breads/flours/pastas/baked goods) seems to have helped me a lot, even if minor contamination with oats is not the true culprit. I would vouch for mostly sticking with rice, dry beans, root veggies and fresh corn (from the cob) as complex carbohydrate sources for a bit, even though it's a bit inconvenient.   
    • Hi everyone! I'm obviously new to the forums, but I'm also new to the idea of celiac/gluten free/etc.  Lemme give you the Cliff Notes version of my journey: 1992: I'm diagnosed with CFS/ME. It sucks and I'm tired and sick all the time. 2014: I'm still tired and sick all the time, so I decide to become a vegetarian. Maybe that'll help, right? I began getting deathly ill when I ate. Vomiting and diarrhea, everything I eat seems to be a problem.  I go to a doctor who runs a million tests. Nothing turns up. In among those tests is a celiac panel which has this result: no antibody detected and no serological evidence of celiac disease. No cause is ever found. I continue to suffer. Later in 2014: I notice that my stomach issues are triggered every time I eat a raw vegetable. I can eat bread or pasta no problem. Fake chicken? Great. Have a salad? I'm dying. This is a problem, as I'm a vegetarian. I nix the fresh veggies and continue to live my life. 2015: I'm diagnosed with Fibromyalgia. I realize that the problem with vegetables is worse than I thought. I can no longer eat cooked spinach, can't have lettuce on my sandwich, and stealing a single slice of cucumber set my stomach on edge for days. I'm becoming hypersensitive to veggies in food and protecting myself from their evil influence; my stomach thanks me. 2017: After a relative peaceful period, the stomach issues are back, worse. So I go to a new doctor (I've moved) and he recommends a colonoscopy and EGD (no labs). This was done yesterday. The full results will of course have to wait for the biopsies to be examined, but apparently there is scalloping "through the entire duodenum".  Doc told my partner that he believes I have celiac and discharged me with orders to go gluten free. Now I'm sitting here alternately considering drinking alone in the dark and throwing things--I guess I'm wavering between the stages of depression and anger on my trip through grief for my lost favorite foods. But here's where the confusion comes in...everything I'm seeing says that I should give up bread and eat more veggies, but veggies make me sick. Does anyone else have this reaction to vegetables? Meanwhile I'm thinking back to the labs done in 2014 and wondering if its possible to have a negative test and still be positive for celiac? Also, what actually happens if you DON'T go gluten free?
    • Hi Guys, I just thought of giving update on my case. I finally got my EGD done and unfortunately, the conclusion is I have Celiac. There was Villus atrophy and presence of Inflammatory Cells, looks like the atrophy of Villi isn't that worse yet, but of course, I need to get on strict gluten free diet right away. I am planning to see a Dietitian next week to have a healthy gluten free diet plan. Any suggestions from the experts in here are most welcome and appreciated. Thanks  
    • Hi this is my first time commenting but I just had to. I too get chest tightness. I have had it flare up several times with no answers. I was diagnosed with celiac about 6 months ago and am pretty confident this is a glutening symptom for me. Last month it was so bad... Started with random chest pains for a couple days then chest tightness that last for two weeks. I ended up going to the emergency room ( again) because I started worrying about my heart. Felt like my bra was so tight, bloated belly, trapped gas like pain in chest, swollen lump under sternum and no relief. EKG, chest xray and blood tests showed heart was fine. GI said he didn't think it was GI related. I give up on doctors. I've had this before and I'm sure I will again. It's like inflammation in there or something but it makes you anxious and uncomfortable. I truly hope you are okay and I hope it will give you some comfort to know you aren't the only one with this.
    • While I agree that getting more sleep when ill or stressed is a must, many people can easily get by on 6 hours of sleep a night.  Not everyone needs 8 hours of sleep.  Sleep needs, like the gluten-free diet, is different for everyone.  Nursing school can be very tough so it may be hard to get 8 hours every night.  I think the most important thing is to make sure no gluten is getting into your diet at all so you feel well and can manage your schedule better.  Good luck to you!
  • Upcoming Events