• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Just Got Back From A Doctor Who Knew!
0

7 posts in this topic

After over a year of doctors and specalists I met a doctor who actually said the words celiac!! After describing my symptoms he said its highly likely and that my body is in over reaction mode,given my possible celiac and other allergies (dust mites).My systemic response to gluten right now is 1: muscle tension jaw/neck/shoulders 2: cold extremities 3: heart rate elevated 4: fatigued 5: sinus flares .Then over a course of a few days to a week the symptoms decrease (if I don't eat gluten) and I start healing slowly .Any infiltration of gluten and it restarts,the longer I take between gluten ingestion the less the symptoms will hit if I do consume a small amount. He said I may also have adrenal fatigue? Because its been a year solid of non stop symptoms plus all my regular allergies (dust mites/pollen) amplified 10fold.So my body is exhausted hence why coffee affects me negatively.He said once the adrenal fatigue is fine coffee can come back into diet no problem.He also said I could consume gluten and come back for official tests but I just can't take another beating like that on my body I need rest badly.Thank you Xmas snacks for that !!!! Anyways does this make sense to some of you? He did take the usual thyroid/ blood cell tests and also a cortisol test to check adrenal functions.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


That's great you found a doc who "gets" you! Sounds like you know you can't eat gluten.... like me, there is NO way I can eat enough gluten to go for a biopsy, and luckily my doc also said my strong reaction and a few other signs and tests were good enough for him.

My next step is going to be testing for nutritional deficiencies, will you be doing that too?

0

Share this post


Link to post
Share on other sites

He did that today all b12 ,zinc iron magnesium etc although I already heavily boost myself daily I'm curious to see the results

0

Share this post


Link to post
Share on other sites

So the doctor didn't order blood tests? It's a really quick blod darw that any lab could do... If you want to check if it's celiac (vs Non-celiac gluten intolerance - which has the same symptoms but not the intestinal damage) you should request the blood tests and do them in the next day or two before the gluten really starts to clear from your body.

The most common tests are:

ttg IgA and IgG

total serum IgA

EMA IgA

DGP IgG and IgA

Did he check your TPO Ab, Free T4 and Free T3's as well as your TSH? TSH doesn't always tell the whole story, and thyroid problems are common with adrenal fatigue.

I am glad you have a doctor who is willing to look at the current thinking about these issues; many docs won't admit adrenal fatigue exists and think you can only have celiac if your gut hurts and you get malnourished and skinny. Sounds like a good one. :) Best wishes with the gluten-free diet (after you are satisfied with any testing, or lack there of that is).

0

Share this post


Link to post
Share on other sites

Very nice that you found a doctor that looked at the puzzle and suggested Celiac Disease - this warms my heart.

I agree with Nicole - get all the blood tests before removing gluten - this data may become very valuable to you.

0

Share this post


Link to post
Share on other sites
Ads by Google:


It had been almost two weeks since I ate gluten he didn't want to waste my money on a test,he gave me two options 1: go eat gluten for at least two weeks snd come back to test or try gluten diet .He also said my symptoms match up to s milk allergy as well (not intolrence,but allergy).Im not sure which is worse celiac or milk allergy? I had a gluten intolrencr test done this summer but it came back neg (not celiac test).And I was eating gluten everyday before that test. He did do thyroid test ,cortisol test,vitamin deficiency test on Wednesday and iron test, so I'm waiting for those results

0

Share this post


Link to post
Share on other sites

If gluten is making you ill and you cannot tolerate consuming for testing -- I still think the Celiac panel has value -- better now than when you have been gluten-free for longer.

Many folks question the need to remove gluten as time passes - this is why I think it important to get tested if at all possible. You may be negative, may be possitive, but the longer you are gluten-free you will definitely test negative.

Edited by GottaSki
0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,036
    • Total Posts
      933,943
  • Member Statistics

    • Total Members
      64,611
    • Most Online
      3,093

    Newest Member
    siddhartha singh rajput
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • Hey everyone, I need some advice. After being diagnosed with celiac disease, I have been eating just rice and potatoes for carbs and its really hard to make up the calories and I am losing weight fast. I know my local supermarkets (Tesco, Sainsburys, Asda) have many gluten free breads and pastas, but I read from this forum that even though they say gluten-free they might be cross contaminated. So I really need some advice on the actual products that are 100% gluten-free that you guys use that I can get in the United Kingdom. I am really desparate here and really need some recommendations that you guys know 100% are gluten-free and/or use yourself. Thanks alot )
    • I agree with the others that this looks like a positive celiac disease diagnosis (and I didn't really see anything that indicates a weak positive). What I have never seen before is the "celiac cascade." After thinking on what that is for several minutes, I concluded it is an indication of positivity based on the tests. Is that right? I have no idea, can someone explain in clear English or point to a clear web site? Thanks! Plumbago
    • hey i've been vegetarian for 8 years and gluten free for almost a year. its difficult since they are kind of opposites. i actually just noticed the advertisemnts from the cancer counil here is australia now has meat listed next to alchol, cigarettes and the sun. a few years ago when i read about it, it seemed hot dogs and super processed meats like salami were the only issue. which i only remember when i see a sausage sizzle to raise money for cancer lol  but it surprised me that now the guidelines are including red meat as well and smaller amounts. https://www.cancercouncil.com.au/1752/cancer-prevention/diet-exercise/nutrition-diet/other-foods-nutrients/meat-and-cancer-3/ so i would reccomend easing into it and slowly replace meat with alternatives to make sure you are getting enough protein etc get your iron and b12 levels checked every now and then. buffalo cauliflower and eggplant schnitzels are two of my favorites. you can also make alot of cheeses and sauces out of nuts and tofu. i also eat alot of falafel, hommus and tahini. i can send you some links to recipes if you like
    • I'm going to guess the additive effect of a few months of mystery CC glutenings (since resolved), plus heavy training load. The last time I had my antibodies/iron checked in Feb 2016, both were good. Since diagnosis to that point, I'd been taking iron supplements only sporadically, but stopped altogether at that point as my ferritin was quite high (hemochromatosis runs in my family, so some concern about taking too much iron). Unfortunately, my DH is only speculative - I've seen a dermatologist in an attempt to get it biopsied/prescribed Dapsone, but she was convinced it had to be acne as it "did not look exactly like in her textbook." My protestations that this was because it she was looking at the remains of a rash that I'd picked the heck out of were sadly ignored. I do have a GI appointment coming up in a few weeks though.
    • I'd love to visit! I'm half Irish and half English and would so adore to see Ireland. I loved England when I visited a million years ago. People were so kind.
  • Upcoming Events