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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Stiff And Achy Is This Just Part Of It?
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8 posts in this topic

My gosh here lately, I am so so stiff and achy. I feel like I have the flu but I am not sick. I went to the dr. for this and was tested for lupus, RA, MS, Thyroid came back ok and arthritis and the blood work all came back ok except for elevated liver enzymes that I assume will straighten out after some time on the diet.

I am so tired of being stiff and achy. Any ideas?

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I have been feeling like that. I started taking a beginner yoga for people with physical challenges. And I have been exercising more and my joint pain and stiffness seems to be going away.

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I had horrible joint pain along with my GI stuff when all this started last year. I am sooo happy to say that after 6 months gluten-free all the pain and stiffness are gone.

Maybe it's a matter of time??

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I hear you. I have run the whole gamut of tests like you as well - everything is 'normal' except for the fact that I hurt ! The rheumy said I likely just have tendonitis......in my hands, wrists, elbows....runners knees....why do my ankles & feet hurt ? Neck pain and stiffness ? He doesn't know. Fatigue ? Doesn't know.

Guess I will just wait & see if anything develops. Cold weather is definitely worse...and I make sure I get enough rest. Sometimes that's just sitting down with a coffee or tea and relaxing here & there. Sometimes bloodwork doesn't show some conditions right away or at all. It is very frustrating.

I am very carefully gluten-free so I don't relate it to gluten at all.....only so far as celiac being an autoimmune and a chance of other autoimmune things developing.

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I had these issues too. Joint pain, stiff, achy, easily got tendinitis, even had muscle spasms and other issues. All other autoimmune disorders tested negative, and no swelling at the sites of the pain. They told me I had "fibromyalgia" and just tried to give me pain pills. I declined!

What healed me was going on a totally grain free Paleo diet, and cutting out nightshade plants as well. The pain is due to inflammation from leaky gut, which won't heal on a regular gluten-free diet, and also from nutrient deficiencies due to the gut damage.

I also take sub-lingual B12 supplements and fermented cod liver oil (a great source of vitamin D, low levels of this nutrient are linked to pain. This is the best brand: http://www.greenpasture.org/public/Home/index.cfm) Make sure you're eating foods with cholesterol in them as well, as it is actually essential to proper vitamin D absorption.

This condition is super common, I actually saw a doctor in Berkeley who knew exactly what it was and how to treat it, he was the one who got me on this diet in the first place.

The diet is really limiting, but totally worth it, I promise. If you need more info feel free to message me. :)

If you have a Kindle or reader, this book is helpful too: http://www.amazon.com/The-Autoimmune-Paleo-Diet-ebook/dp/B0092FZKK4

I hope you feel better soon!

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I also get the achiness, definitely after being glutened (for a couple days at least), but often without any link to something I might have eaten. I usually think it's sitting around too long at work or at home, but then why are my arms all achy and tingly?

They are right now, actually, and I know I have not eaten anything that could have been ccd with gluten/dairy/soy in over a week, but it started after I had a banana earlier this morning. So I don't get it.

I haven't been tested for arthritis or anything like that (maybe should? it runs in my family, but gad! I hope I'm too young for that to kick in now!), but it could be my vitamin levels or that "mild gastritis" still hasn't healed. I don't know!

GFreeMO, do you feel kind of jittery/tingly/unsteady as well?

It could just be that it's the middle of the winter and that's bad enough (depending on where you live).

Hope you figure it out!

Good to hear the Paleo diet is working for you, Dreacakes. I'm kind of too chicken to try it out. Yet.

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