• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Potential Gluten Reaction: Enlarged Spleen
0

Rate this topic

5 posts in this topic

Recommended Posts

Hi, my daughter's reactions to being glutened seem to be getting more severe. We are very strict and cautious but we travelled recently and I left her for one hour with my relatives and she got glutened. She is 13 years old and when she is exposed now, she gets horrible stabbing pain in her side near her appendix which is her mesenteric lymph nodes as evidenced by CT. This is how we know she gets glutened and then come all the other symptoms: constipation, lethargy, paleness, overall malaise. LIke she has the flu.

This time, it was bad. She had the stabbing pain and now her abdomen and back (bilateral flank pain) occurred.

She is being tested for mono (UTI and kidney infection ruled out) and we should have the results. However, I don't think it is mono. She tested positive for strep (maybe that could cause the enlarged spleen?).

Anyway, I am just wondering if anyone else has a glutening response of enlarged spleen. It seems pretty out there but thought I would ask.

Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I had an enlarged spleen only once (that I know of) and that was when I developed ITP (thrombocytopenia). If she has that, her blood and platelet counts will be low because the spleen is destroying platelets... it's a rare disorder and unlikely but if she is at anemic it could be something to give a quick look at.

I hope she feels better soon... Poor kid.

Share this post


Link to post
Share on other sites

I had an enlarged spleen only once (that I know of) and that was when I developed ITP (thrombocytopenia). If she has that, her blood and platelet counts will be low because the spleen is destroying platelets... it's a rare disorder and unlikely but if she is at anemic it could be something to give a quick look at.

I hope she feels better soon... Poor kid.

Thank you for replying. The mono was negative but her Free T4 is low. More testing. Thanks again. I don't think that swollen spleen is from gluten. I think it has something to do with whatever she is fighting. I hope.

Share this post


Link to post
Share on other sites

nvsmom beat me to it. I too had ITP and only got an enlarged spleen then. I used to get really sick when my platelets were low. I would start with a tickly throat and then 3 hours later have a fever of 104F, without fail! If she's fighting something that is even mono-esque ask what her platelet count was/is at.

I can't say that my spleen gets enlarged now after a glutening as I don't have one. I definitely get inflammation in other areas when glutened though.

Share this post


Link to post
Share on other sites

I missed the strep test mention there... when I was a kid I tested positive for strep every day of my childhood; if they tested it, it was positive and they had me on antibiotics for a full year... and then I still tested positive. I mention it as a warning that if she doesn't have strep symptoms (which I usually didn't) then she might not need antibiotics for it.

Is your doctor testing TSH, Free T3, and TPO Ab as well? Hypothyroidism (even subclinical when the TSH is within range but high and FT4 and 3 are low normal) can make you feel pretty slow and weak. I often described myself as a sluggish too... you feel very "blah". I felt poorly when my TSH was above a 3.

Best wishes.

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,157
    • Total Posts
      939,978
  • Member Statistics

    • Total Members
      66,141
    • Most Online
      3,093

    Newest Member
    Victoria Zoey
    Joined
  • Popular Now

  • Topics

  • Posts

    • Well I was going to attach the copies of the test but it says the file is too large. The stool results are from a "Comprehensive Stool Analysis/Parasitology x3 test by Progressive Medical. Sample 1 had rare RBC, WBC, and Yeast. Sample 2 had Rare yeast. And Sample 3 had Rare RBC and yeast. The yeast amount is in the normal range but it doesn't say anything about RBC health.  I'm not sure if a "rare" amount of RBC  (in my stool, yes) means anything but this holistic provider thought it meant I needed further investigation. She was also the one who diagnosed me with Celiac though. My grandfather did have colon cancer so maybe she is being precautionary.  Other tests from 2017 (don't remember if I was eating gluten that week but I have been on and off for a few months): Blood tests: T-transglutaminase, IgA 4 (range 0-20) IGa Antibody 186 (range 81-463) Antigliadin Abs, IgA 12 (range 0-20) and the REticulin IgA and IgG were negative. Stool tests: Lysozyme 644 (range <600), indicates inflammation Secretory IgA 150 (range 51-204) Saliva test from 2014 (was eating gluten then): sIgA 61.7 range (25.9-136.5) Gliadin IgA (gluten) 18.6 H (normal <6.0) Gliadin Antibody Ration 30.1 H (normal <22.4%) This is pretty confusing... Please let me know what y'all think!
    • Noticing I am having D quite easy nothing bad, painful or gassy, just D or super soft stool in the mornings for the past 4 days. Food Diary suggest several culprits, my BBQ jackfruit seems to be the number one suspect, This is my BBQ cuisine week or two and I can not eat meat so I have a big wad pinch of shredded homemade BBQ Jackfruit. I have done a gluten test on it and that is not the reason but perhaps the seasonings or perhaps hte cider vinegar I put it in fermented it a bit?

      Other thoughts on culprits, I have upped my vitamin C intake to about 1500mg a day spaced out in 2 doses Vitamin C has been linked to D in many cases and is one reason why some people get D when they take a vit C supplement in conjunction with fruit.
      I have also upped my cocoa nib intake this could be a culprit also,
      I have cut back on binding seeds like flax, whole shell pumpkin, and chia which used to be a huge fiber supplement so this could be the cause of more softer stools.Next week I start back on chia seeds in my eggs and we shall see if my stools firm back up. 
      I also doubled up on probiotics as I was taking half the recommended dose prior.
      Eating a bunch more cinnamon, and cinnamon oil, but I do this on rotation so doubt it,
      My new low carb bread, I am eating 2-4 slices of this grain less bread a meal now. This could be it but this bread using coconut flour in it, and egg whites. I doubt this is the case, as coconut flour is known to absorb liquid a lot, and tends to firm up ones stool and in fact cause constipation in people if they do not consume it with a lot of liquid. I came across health concerns with other bakers when I was working on this recipe about it.
      My protein intake went up to double what it used to be 5 weeks ago, doubt this is the issue but this week, I changed it using a custom blend with MUCH less rice protein and more pea and sancha inchi. I noticed the more rice protein I consumed the worse my edema got with legs and feet swelling. Have this well under control now with no swelling,
      I considered it perhaps my extreme coffee intake but I have changed to only 2 cups of caffeinated coffee a day starting mid last month. Down from a whole pot.......so now I drink about a pot of decaf a day. I doubt this is it as it never gave me a issue with the much more likely culprit of full on caffeinated in the same amount.

      While I try to trouble shoot it I am actually slightly enjoying it. Odd as this might sound, I spent most my life with chronic constipation, and the only relieve I used to get came with a glutening and that had EXTREME pain and gas. Followed by a week or so of constipation so bad I had to take laxatives.  This....this is just a release with no pain or gas....odd and creepy but I seem to have much more energy, and I can eat and drink a lot more. >.< I think I might enjoy this ride a bit of regularity even if it is a bit off, it is a huge change from my hard stools and painful movements of years past.  I mean I have gone as far in the past as taking a entire bottle of miralax to try to go and just had gassy normal BM 24 hours later and frankly miralax makes me feel like groggy, tired, and like the blob, I am that guy that had to double the dose of everything for the scope prep and had the doctor think I cheated when I told him the first time I did it right and did not clean me out. I want to find out what is triggering this and add it to my regime for clean out or laxative treatment after a glutening next time when that C hits for a week.
    • Yeah noticing some others, black tea, gives me that film/mucus on top of my stomach while green tea, herbal/hibisicus, and coffee do not. I have recently fell in love with Rythem Kale chips, and roasted kale. Kale raw...I always get sick from. At first it was due to the waxy stuff on the ones I was getting, then I got organic washed. and still got the issue minus the floating waxy stuff in my stomach. Now if I stewed it, nuked it, or made chips out of it no issues. But with the farmer market, me baking for it, and Texas Summer preventing afternoon baking due to heat. I never had time to roast kale this summer. Now with the Rythem Kale it comes prepared in a way that doe not make me sick. Love using it crushed up in my omelettes, or using it crushed as a garnish over my miracle noodles or rice. with a pesto or butter flavored coconut oil. Considered this, I have a friend who has this with bananas and a few other fruits, they do not bother him if he cooks them, raw causes hives and swelling. Again I considered it but I no not have sores form in my mouth like I do with my corn allergy, nor do I get itchy or swelling. Still might be a slight issue I might  give it some more thought. >.> could be the fact I do not have much feeling for heat or pain in my mouth (nerve issues).  But it does sort of apply I need to do some research and see if others have this and might be limited to the vomiting and stomach mucus symptoms also. I might try eating some foods I know I have a allergy to like peaches and mango, just a tiny bit in a extract, and see if I get the same reaction, They normally just cause drainage, and sniffles, even stuff with just the flavoring or extract.
    • Hate to add more to your list but you may also want to look into Oral Allergy Syndrome. Mostly because how you describe almonds. Yes, it is another extensive list of foods for intolerance and allergies. 
    • How long were you fully gluten free for Kirsty?  
  • Upcoming Events