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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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10 posts in this topic

hi there

well i eventually got my results -six biopsies taken.no significant inflammation. mucosa with villi of normal size and architecture. no granulomata,no giadia. no evidence of celiac or malignancy. duodenal biopsy; within normal limits.

so ive not got celiac but i have got gastro-oesophageal reflux disease - not sure how i feel really. i was hoping for some answers!. anyway i did remember to ask for copy of results. mentioned abt my palm rash getting worse since reintroducing dairy and if the rash on my face could be caused by my vitamin e face cream( possibly wheat based) and reminded her of the food intolerance,s( that originally brought me to the docs in the first place) to my complete and utter shock she said she would refer me for allergy testing!!!! this put me off my stride and i completely forgot to ask for blood test results and for new tests to be done.although i expect they will be done when i have the allergy tests.

i also asked for the notes from the hospital when i was told i had scleritis- i wasnt told what it was so i never went back. just to check if it was a definite diagnosis or the doc was just surmising it could be that.

so got some meds for the reflux, but i dont really want to go an get them- id rather try to modify my diet - any suggestions anyone?? ta!

also been having probs with my teeth and now i think ive got yet another abcess, so another trip to dentist!!!

the other thing is - if my bloating is not celiac- its prob dairy .so now im faced with eatin it till i get my allergy testing done even though its gonna make my rashes worse. soz if it sounds like im moaning abt not havin celiac - just a bit miffed thats all. any imput welcome thanks...

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My basic guidelines for GERD is as followed: no greasy, no rich, and no spicy. Sodas can be done depending on how tolerent you are.

Endoscopys are falling out as the gold standard. Try the gluten free diet and see if it makes this all go away.

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My basic guidelines for GERD is as followed: no greasy, no rich, and no spicy. Sodas can be done depending on how tolerent you are.

Endoscopys are falling out as the gold standard. Try the gluten free diet and see if it makes this all go away.

hi there, thanks for your reply

iv,d been reading some of your posts coz id noticed you mentioned gerd in a few. odd thing is ,reflux wasnt one of the symptoms i complained abt to my doc as its one of the newest symptoms and id put it down to my age lol. as for sodas- im fine with diet coke , but anything else especially lemonade sets me off. ive noticed in mornin i get it abt an hour after breakfast and thats toast, sunflower margarine(dairy free) and coffee. so im guessing the coffee may have to go... oh yeah and chocolate- thats bad!!!! ( not for breakfast lol- just generally) ha!

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I used to have stomache aches in the morning after my breakfast; I thought it was the coffee or sugary syrup on my waffles... turns out it was the waffles. I would stop with toast for breakfast if I was you. It could be non-celiac gluten intolerance (NCGI) or they missed the damaged parts in the biopsy.

Like shadowicewolf sugested, I would try the gluten-free diet for at least 3 months before you rule out gluten as a cause.

... My boys tested negative for celiac but 2/3 has seen their health improve after going gluten-free. Don't rule it out yet.

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I really want to say, lol just to keep from crying. Celiac was ruled out for me also, stayed gluten free anyway because I felt better. Accidentally had some and ended up in ER from anaphylactic shock. So I headed the allergy direction to. On a positive note, you can avoid the the things that bother you and still have accurate skin allergy tests (it's really not as bad you will think). Now I'm at testing for a mast cell disorder (it's means you have allergic reaction to triggers, but are not allergic in the sense that allergy shots help) and have been placed on Zantac 300mg and Allegra 360mg a day. Hang in there, the answer is out there.

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I used to have stomache aches in the morning after my breakfast; I thought it was the coffee or sugary syrup on my waffles... turns out it was the waffles. I would stop with toast for breakfast if I was you. It could be non-celiac gluten intolerance (NCGI) or they missed the damaged parts in the biopsy.

Like shadowicewolf sugested, I would try the gluten-free diet for at least 3 months before you rule out gluten as a cause.

... My boys tested negative for celiac but 2/3 has seen their health improve after going gluten-free. Don't rule it out yet.

hi

i,d actually be glad to give up the toast- im absolutely fed up of it. i only started to eat it coz i was trying to up the wheat for the tests and id given up dairy (kinda) for a while, so that meant no cereal - although i cant think of a wheat free cereal. im a bit flummoxed as what to eat for breakfast as im veggie and not a big lover of eggs or fruit. a major overhaul of my diet is needed i think.!!!! its nice to hear your boys are feelin better on a gluten free diet - good luck. oh organic cornflakes should be ok - i,ll try them..

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hi

i,d actually be glad to give up the toast- im absolutely fed up of it. i only started to eat it coz i was trying to up the wheat for the tests and id given up dairy (kinda) for a while, so that meant no cereal - although i cant think of a wheat free cereal. im a bit flummoxed as what to eat for breakfast as im veggie and not a big lover of eggs or fruit. a major overhaul of my diet is needed i think.!!!! its nice to hear your boys are feelin better on a gluten free diet - good luck. oh organic cornflakes should be ok - i,ll try them..

Every few days we make gluten-free pancakes. I'm lazy so I start with a mix but change it from there. For instance, the recipe calls for 1/4 oil, 1.5cups mix, 1cup milk. I use 1c mix, 1/2 to 1 cup of golden flax, 1/4 coconut oil, about 1.5 c coconut milk, 1/4 protein powder, bee pollen and cinnamon to taste (sometimes add cocoa). I try to "healthy it up" a bit. This would make left overs so we have frozen pancakes to toast or nuke the next day.

There are a few gluten-free cereals. Chex is a good one. There are other rice or hemp cereals that are in health food stores. Be careful with organic since that doesn't mean gluten-free. Evenstuff like Rice Krispies has wheat as a general rule.

If you like toast, Udi's is our favourite store bought bread; it's good as toast...not so good plain but the bagels are good untoasted.

Good luck to you! :)

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I do gluten free bisquick for pancakes. I normally eat chex though.

Be careful with corn flakes, sometimes depending on the brand, they can use a barley sweetener I believe.

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My celiac test was also negative. I did have allergy testing done, because I was already allergic to peanuts. I am allergic to wheat on the blood test and skin test. They did do Igg testing on me and I was allergic to alot of things, but the biggest were gliadin, gluten and wheat. I decided to go gluten free completely, it's been two years now and if I am glutened I can tell the next day (strangely it doesn't hit me right away) I was also diagnosed with gerd and IBS about 9 years ago. My heartburn only bothers me if I have bad seasonal allergies now.

I love chex and vans gluten free cereal. Sometimes I have a hershey bar with my cup of coffee in the morning and it is wonderful!!!

Good Luck

Sarah

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thanks for all your replys

ive been food shopping today and decided im going to buy a few things each week until ive got a stock of gluten free foods i can rely on when i try goin gluten free. im gonna concentrate on the gluten free and not think about the dairy for now - sort out breakfast and lunch and then slowly over the next few weeks try a few recipes for tea. im no cook so god knows what they,ll taste like!!!!. think i,ll start with soup. haha!

im british, so im not sure if we get the brands you,ve mentioned, but we have holland and barrett- which is a wholefoods shop, so i,ll have a trip to that an see what i can find- and look in the recipe section on here. bought the organic cornflakes they were in the gluten free section in the supermarket - im guessing they should be ok - but i.ll check and hazelnut milk to try. oh and some fruit smoothies which i thought would be ok for breakfast- no additives at all -just blended fruit . im gonna google american brands and see if anywhere here sells them . not sure wot a hersey bar is but im thinking chocolate lol!

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    • I am very interested in this too. My daughter tested negative for celiac, but has terrible primarily neurological symptoms. Because she tested positive for SIBO at the time and was having some GI symptoms, I was told it was just a Fodmap issue.  I knew better and we have been gluten free for 2 years.  Fast forward to this February. She had a SIBO recurrence that I treated at home with diet and herbal antibiotics because I couldn't get the insurance referral. She was doing great. Then stupid me brought in gluten containing chick feed for the new baby chicks we got.   Feed dust everywhere. Total mess.  Really, no GI symptoms (she was SIBO free by then)...but the neurological symptoms! my daughter couldn't walk for three days. Burning down one leg, nerve pain in the foot. Also heaviness of limbs, headache and fatigue. Better after three days. But unfortunately she had a TINY gluten exposure at that three day mark and had another severe reaction: loss of balance, loss of feeling in her back and arms, couldn't see for a few seconds, and three days of hand numbness, fatigue, concentration problems.  Well, I actually contacted Dr. Hadjivassilou by email and he confirmed that the symptoms are consistent with gluten ataxia but any testing would require a gluten challenge. Even with these exposures, antibodies would not be high enough.  His suggestion was maintain vigilance gluten free.  I just saw my daughter's GI at U of C and she really only recognizes celiac disease and neurological complications of that. But my impression is that gluten ataxia is another branch in the autoimmune side of things (with celiac and DH being the other two).   At this point, I know a diagnosis is important. But I don't know how to get there. We homeschool right now so I can give her time to heal when she is accidentally glutened, I can keep my home safe for her (ugh, that I didn't think of the chicken feed!)  But at some point, she is going to be in college, needing to take exams, and totally incapacitated because of an exposure.  And doctors state side that are worth seeing?  Who is looking at gluten ataxia in the US?
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