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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Got Results - Negative!
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hi there

well i eventually got my results -six biopsies taken.no significant inflammation. mucosa with villi of normal size and architecture. no granulomata,no giadia. no evidence of celiac or malignancy. duodenal biopsy; within normal limits.

so ive not got celiac but i have got gastro-oesophageal reflux disease - not sure how i feel really. i was hoping for some answers!. anyway i did remember to ask for copy of results. mentioned abt my palm rash getting worse since reintroducing dairy and if the rash on my face could be caused by my vitamin e face cream( possibly wheat based) and reminded her of the food intolerance,s( that originally brought me to the docs in the first place) to my complete and utter shock she said she would refer me for allergy testing!!!! this put me off my stride and i completely forgot to ask for blood test results and for new tests to be done.although i expect they will be done when i have the allergy tests.

i also asked for the notes from the hospital when i was told i had scleritis- i wasnt told what it was so i never went back. just to check if it was a definite diagnosis or the doc was just surmising it could be that.

so got some meds for the reflux, but i dont really want to go an get them- id rather try to modify my diet - any suggestions anyone?? ta!

also been having probs with my teeth and now i think ive got yet another abcess, so another trip to dentist!!!

the other thing is - if my bloating is not celiac- its prob dairy .so now im faced with eatin it till i get my allergy testing done even though its gonna make my rashes worse. soz if it sounds like im moaning abt not havin celiac - just a bit miffed thats all. any imput welcome thanks...

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My basic guidelines for GERD is as followed: no greasy, no rich, and no spicy. Sodas can be done depending on how tolerent you are.

Endoscopys are falling out as the gold standard. Try the gluten free diet and see if it makes this all go away.

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My basic guidelines for GERD is as followed: no greasy, no rich, and no spicy. Sodas can be done depending on how tolerent you are.

Endoscopys are falling out as the gold standard. Try the gluten free diet and see if it makes this all go away.

hi there, thanks for your reply

iv,d been reading some of your posts coz id noticed you mentioned gerd in a few. odd thing is ,reflux wasnt one of the symptoms i complained abt to my doc as its one of the newest symptoms and id put it down to my age lol. as for sodas- im fine with diet coke , but anything else especially lemonade sets me off. ive noticed in mornin i get it abt an hour after breakfast and thats toast, sunflower margarine(dairy free) and coffee. so im guessing the coffee may have to go... oh yeah and chocolate- thats bad!!!! ( not for breakfast lol- just generally) ha!

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I used to have stomache aches in the morning after my breakfast; I thought it was the coffee or sugary syrup on my waffles... turns out it was the waffles. I would stop with toast for breakfast if I was you. It could be non-celiac gluten intolerance (NCGI) or they missed the damaged parts in the biopsy.

Like shadowicewolf sugested, I would try the gluten-free diet for at least 3 months before you rule out gluten as a cause.

... My boys tested negative for celiac but 2/3 has seen their health improve after going gluten-free. Don't rule it out yet.

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I really want to say, lol just to keep from crying. Celiac was ruled out for me also, stayed gluten free anyway because I felt better. Accidentally had some and ended up in ER from anaphylactic shock. So I headed the allergy direction to. On a positive note, you can avoid the the things that bother you and still have accurate skin allergy tests (it's really not as bad you will think). Now I'm at testing for a mast cell disorder (it's means you have allergic reaction to triggers, but are not allergic in the sense that allergy shots help) and have been placed on Zantac 300mg and Allegra 360mg a day. Hang in there, the answer is out there.

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I used to have stomache aches in the morning after my breakfast; I thought it was the coffee or sugary syrup on my waffles... turns out it was the waffles. I would stop with toast for breakfast if I was you. It could be non-celiac gluten intolerance (NCGI) or they missed the damaged parts in the biopsy.

Like shadowicewolf sugested, I would try the gluten-free diet for at least 3 months before you rule out gluten as a cause.

... My boys tested negative for celiac but 2/3 has seen their health improve after going gluten-free. Don't rule it out yet.

hi

i,d actually be glad to give up the toast- im absolutely fed up of it. i only started to eat it coz i was trying to up the wheat for the tests and id given up dairy (kinda) for a while, so that meant no cereal - although i cant think of a wheat free cereal. im a bit flummoxed as what to eat for breakfast as im veggie and not a big lover of eggs or fruit. a major overhaul of my diet is needed i think.!!!! its nice to hear your boys are feelin better on a gluten free diet - good luck. oh organic cornflakes should be ok - i,ll try them..

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hi

i,d actually be glad to give up the toast- im absolutely fed up of it. i only started to eat it coz i was trying to up the wheat for the tests and id given up dairy (kinda) for a while, so that meant no cereal - although i cant think of a wheat free cereal. im a bit flummoxed as what to eat for breakfast as im veggie and not a big lover of eggs or fruit. a major overhaul of my diet is needed i think.!!!! its nice to hear your boys are feelin better on a gluten free diet - good luck. oh organic cornflakes should be ok - i,ll try them..

Every few days we make gluten-free pancakes. I'm lazy so I start with a mix but change it from there. For instance, the recipe calls for 1/4 oil, 1.5cups mix, 1cup milk. I use 1c mix, 1/2 to 1 cup of golden flax, 1/4 coconut oil, about 1.5 c coconut milk, 1/4 protein powder, bee pollen and cinnamon to taste (sometimes add cocoa). I try to "healthy it up" a bit. This would make left overs so we have frozen pancakes to toast or nuke the next day.

There are a few gluten-free cereals. Chex is a good one. There are other rice or hemp cereals that are in health food stores. Be careful with organic since that doesn't mean gluten-free. Evenstuff like Rice Krispies has wheat as a general rule.

If you like toast, Udi's is our favourite store bought bread; it's good as toast...not so good plain but the bagels are good untoasted.

Good luck to you! :)

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I do gluten free bisquick for pancakes. I normally eat chex though.

Be careful with corn flakes, sometimes depending on the brand, they can use a barley sweetener I believe.

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My celiac test was also negative. I did have allergy testing done, because I was already allergic to peanuts. I am allergic to wheat on the blood test and skin test. They did do Igg testing on me and I was allergic to alot of things, but the biggest were gliadin, gluten and wheat. I decided to go gluten free completely, it's been two years now and if I am glutened I can tell the next day (strangely it doesn't hit me right away) I was also diagnosed with gerd and IBS about 9 years ago. My heartburn only bothers me if I have bad seasonal allergies now.

I love chex and vans gluten free cereal. Sometimes I have a hershey bar with my cup of coffee in the morning and it is wonderful!!!

Good Luck

Sarah

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thanks for all your replys

ive been food shopping today and decided im going to buy a few things each week until ive got a stock of gluten free foods i can rely on when i try goin gluten free. im gonna concentrate on the gluten free and not think about the dairy for now - sort out breakfast and lunch and then slowly over the next few weeks try a few recipes for tea. im no cook so god knows what they,ll taste like!!!!. think i,ll start with soup. haha!

im british, so im not sure if we get the brands you,ve mentioned, but we have holland and barrett- which is a wholefoods shop, so i,ll have a trip to that an see what i can find- and look in the recipe section on here. bought the organic cornflakes they were in the gluten free section in the supermarket - im guessing they should be ok - but i.ll check and hazelnut milk to try. oh and some fruit smoothies which i thought would be ok for breakfast- no additives at all -just blended fruit . im gonna google american brands and see if anywhere here sells them . not sure wot a hersey bar is but im thinking chocolate lol!

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    • Hi All, I just got back from my first visit to Montreal in a couple years, and had to report back. STUFF IS HAPPENING THERE!

      One word: Croissant.
      CROISSAAAAANT!  Yes, the flaky exterior fluffy interior pull it apart in sheets melt in your mouth OMG I didn't think I'd ever eat anything like this again how is this even possible kind of croissant. I think I might have had a religious experience while eating it. In any case, if you happen to be in La Belle Province, in one of my favourite cities as it is, run, don't walk (or better yet, hop on the metro to Jean Talon) to La Boulangerie Marquise Sans Gluten. The most beautiful gluten-free bakery I have even been in. Aside from the aforementioned croissant, they have beautiful cakes and pastries, pizza, quiche, tarts, fresh bread, bagels, etc etc... Only downside is that their products do contain soy (I cheated. It was worth it) and some contain dairy (again, worth it), so if you have serious problems with that, please stay away (cause if you step in there you WILL be tempted. For reals).

      Aside from that, other places to go:
      - Creperie du Marche - at Jean Talon market. They only do buckwheat crepes, and they are pretty good.
      - Arepera du Plateau - not only the best arepas (cornbread sandwiches) I've ever had, but known as one of the best spots in the city. Get there early.
      - Mais - my favourite spot for tacos. Most everything on the menu is usually gluten-free, but be sure to ask.
      - Cookie Stephanie - another nice bakery in Old Montreal
      - Luv - lovely new mostly gluten-free vegetarian spot.
      (not listed as gluten-free but still amazing and very accomodating):
      - Le Vin Papillon - hands down one of the most amazing meals ever. They asked me what my restructions were before I even said, and put together 3 amazing plates. Of course, the wine is amazing too.
      - Lawrence or Larry's - have eaten at both and both very accomodating and lovely.
      Generally, I find  knowledge of gluten-free (sans gluten) at most reputable Montreal restaurants is pretty high, so don't restrict yourself. Just call and ask beforehand.

      And of course, don't forget to drink some GLUTENBERG! 100% gluten-free and pretty dang good beer. Pick from their blonde, IPA, red ale, very nice belgian white, and if you can find them, their special releases like Myrcene de Glace. (I may  have returned with a suitcase full of beers)

      Closed since I was last there (RIP)
      - Mi & Stu - I used to get bagels at this bakery up Rue Park, but they have since closed their Montreal location and moved to a commercial space. Bummer.

      Have you been to or live in Montreal? Leave your suggestions here!
    • The original poster hasn't been on for many months.
    • Hi ScarlettsDad, Sorry such a slow reply to this, but I also live in Toronto and definitely have a few safe suggestions. Of course, my tastes and your 5-year-olds are probably quite different, but I've got a few we might all agree on. First of all, as a general rule: don't order the gluten-free pizza/pasta anywhere unless the kitchen can prove they use dedicated equipment to prepare and cook it: fresh water for pasta, separate prep area and oven or other protective measures for pizza. Any place with flour flying around on a regular basis is going to be a real gamble no matter how careful the staff are. Anyway, here are a few Celiac safe and kid-friendly spots:

      Off the Hook: fish and chips, you say!? that are safe?! YES! It's true! This fantastic fish&chips joint is on Broadview just south of Danforth. They have a gluten-free chickpea batter, and keep everything safe by having a dedicated fryer for gluten free things, and another dedicated fryer just for fries! I have eaten there many many times and never gotten glutened (though it's still fried food, so have to go easy on it). It's a good spot to hang out if it's not busy, or you can get take out.

      The Dirty Bird: This is more of a takeout spot, but again with the fried food. They use a rice flour batter for the chicken, and the fries are safe too. They do make regular waffles, but can do gluten-free as well. There are 2 locations - one in Kensington market, and one on Bloor near Bathurst. Arepa Cafe - on Queen between spadina and bathurst. One of my favourite places to get a quick meal, but you could easly hang around for a while. Arepas are corn bread stuffed with stuff. Little tricky eating for small hands, so can get a platter instead. Almost everything (except I think for fried stuff) is gluten-free. Magic Oven - I can't do dairy either, so this is my occassional pizza splurge. They are very conscious of gluten free safety, have a dedicated fryer for fries (and wings!), make pretty decent pizza though it is not cheap.
      Il Fornello - another safe place for pizza, though also not cheap. I believe one of the owners is celiac, so they put gluten-free pizza in a special bag in the oven to keep it safe. If you like Mexican, the Playa Cabana family of restaurants is good option. One of their owners is Celiac, so they actually mark items WITH gluten on their menus. And if very adventurous, Chez Riz at Yonge and Lawrence, and on Mt Pleasant are both asian fusion (think dim sum and sushi) with completely dedicated gluten-free sections of their kitchens. There are lots of good restaurants that will accommodate gluten free, but they do tend to be on the "nicer" side, not likely a chain. Wherever you do want to go, be sure to call in advance and ask what they can do for your little one. And of course, if you want to take the family out but are afraid to feed her anything there, ask if you can bring something for her. Most restaurants are accommodating as long as everyone else is eating. It's also helpful to ask around your neighbourhood. Of course, there's always desert:
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    • Walmart brand great value is what we use. Ingredients: Ingredients: Nonfat Dry Milk, Vitamin A Palmitate, Vitamin D3
    • I think I just used Carnation.  Its just milk with vitamins.  It may even say gluten-free on it?  
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