• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Are You Beyond Your Past Intolerances? Needed Answers For How To.
0

16 posts in this topic

I am hearing so many that are struggling with intolerances and having extreme difficulty. They seem to need to avoid everything in their diet.

I am here to ask to hear from someone who has been there done that. We need to know how you did it.

Sometimes I am feeling so well lately, I am wondering if I have done it, but I want someone gluten free longer than 7 months.

I hope all will get there one day: Beyond intolerances.

If you are still in the process, you might describle how you are trying to overcome it.

Diana

1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Diana, once again, we are totally on the same wavelength. Just sayin'. :rolleyes:

0

Share this post


Link to post
Share on other sites

Four that I am beyond: can eat all dairy now; can eat things with corn starch in them now; can eat things with potato starch now; can eat things with soy lecithin now. Small but significant steps in what can be added back into the diet. Pamela's baking mix, anyone? Udi's bread? Chocolate?

1

Share this post


Link to post
Share on other sites

Took me a very long time to find all mine, but I can do small amounts of cocoa and I had a slip up a week ago and ate dairy - no reaction! I'm staying the course on my current list of foods since I've only been vertical again for a little over a month.

Mid-May I plan to trial many of my problem foods with the exceptions being gluten and histamine containing and histamine inducing foods.

Hang in there Diana - it really does get better and going without many foods doesn't bother me now that I'm feeling better - you will get here too :)

Edited to add...just read your tag -- sorry guess I should not have responded as I have not overcome many intolerances -- I just have every reason to believe I will.

Edited by GottaSki
1

Share this post


Link to post
Share on other sites

Got corn starch back. Seem to have gotten nightshades back. Although I haven't tested ASPERIN yet, I seem to do OK with the salicylates in most fruits and veggies now. I can eat chocolate again too. :wub: There are a bunch of things I haven't tested yet.

How did I do it? By sticking to nothing but whole foods for a year. Then I added back one thing at a time, and only trying a new food once a month. And I really think that the fact that I went totally organic for the first six or eight months really helped.

2

Share this post


Link to post
Share on other sites
Ads by Google:


I have been gluten free for 8 years, I developed a (likely stress-related) intolerance

of all things tomato a couple years ago. Gave myself a year off, tried it again, was good.

Sometimes, you just have no idea.....

1

Share this post


Link to post
Share on other sites

I have been gluten-free almost 8 years and the only other intolerance I have is to dairy. I haven't gotten that back so it's doubtful I will at this point.

I can eat small amounts like milk in my tea but can't eat ice cream, drink a glass of milk or eat anything with a big dairy hit. However, I am not too bothered by this because dairy isn't always the best thing to go heavy on. If you have asthma, which I don't, or have allergies where you can develop congestion from time to time, dairy is something to be avoided as it's very mucous producing. I feel clearer in my lungs and head when I don't eat dairy. Besides, there are alternatives like soy milk and almond milk, which I like so it's not a problem for me.

Other than that, I have healed to the point where I am doing well and rarely get sick from GI issues anymore.

1

Share this post


Link to post
Share on other sites

Had to go grain- free in the beginning, did everything with nuts I ground myself, and at first dairy free, then a tiny bit of hard cheese, but after a nearly week - long storm damage power outage around 2008(?), realized that it would be easier in an emergency if I could tolerate some sort of packaged foods, so I gradually added in things like rice cakes and peanut butter. Finding an agreeable p-b was entertaining ("here, honey, could you finish this jar while I open a new one :rolleyes: ") but I got there. Was really amazing the first time I ate gluten-free pizza out and didn't suffer, took a while. Had to go back to avoiding cc in many gluten free grains with commercially prepared products because I can't do soy flour, flax or oats, but, fortunately I have the "baking gene" :D , got to taste what is possible, and I just make my own stuff, using the gluten-free Chebe tapioca as a base product, because at least that's in the hf stores around here.

I don't think of this as being "restrictive," because it certainly beats being crippled by neurological problems, so much as it is just being time consuming. I have family members who have actual food allergies and who must avoid other categories, which I can eat, so I think I'm fortunate, and I think that is actually a bigger problem, a sort of mental trick. They probably think the same thing. To each their own... B)

0

Share this post


Link to post
Share on other sites

How could I forget.....I got almonds back - was nut free for over a year - still can't do cashews - haven't tried others yet. Almonds were a fantastic addition - I use whole raw almonds to make milk, flour, butters and the best thing is my cocoa "mousse" - yum!

1

Share this post


Link to post
Share on other sites

I have been gluten free for over 3 years , soy free over 2 years. I has taken me a very long time to identify all my intolerances.

I fought very very hard to keep corn ( that did not work out so well :blink: I am grain free ( with the exception of rice , which I limit ) Xanthum gum is totally of limits :ph34r: . Legumes and nuts I rotate in/out of my diet .Potatoes are not happening for me but now I can rotate tomatoes and peppers in /out of my diet.I have a lot of foods that I still rotate in/out of my diet .

The key to getting "past" your intolerances? I would think it would be identifying them. Then eliminating them to allow your body to heal, then reintroducing them ( one at a time) to judge your reaction to see if it is now something your body can tolerate.

Not to be a downer but, I do not expect to " get beyond" most of my intolerances. I was undiagnosed for an extremely long time. There was a lot of damage . I have A LOT of intolerances. Most of them are here to stay.I live with that every day and I am OK with that because for the first time ( probably ever in my life ) I am healthy :D And I am good with that :D

I did get dairy and eggs back :D ( two biggies to me :D )

2

Share this post


Link to post
Share on other sites

Just found this thread, been looking for some inspiration! It's a great topic (for me!), as I am SO struggling with just eating fruit & veg. It's so good to hear that some of you are actually getting a few foods back. I'd be happy with dairy, eggs, and corn. Life would be soooo much simpler. And happier.

0

Share this post


Link to post
Share on other sites

I got back high iodine foods (egg yolks, potato, asparagus, dairy, sea fish, etc) after my DH cleared. Weaned back on them slowly. Took about 4-5 months total.

Can have more sugar now that adrenals have improved: that includes fruit and processed sugar. Drastically reduced it for months.

Have discovered sugar delivered with starch/grain is not good. I have no "stop" button. Sugar with coconut/nut flour hits the stop button. Problem solved.

My gut is much better, energy better, no rash (unless I get a virus then it seems to flare just a tad, but nothing that stops me). I attribute the bulk of "feeling better/energy" to time, healing, and finally being able to work out. That said, working out has been an adventure with a few setbacks. But overall, I move forward.

I've been gluten-free almost2 years.

0

Share this post


Link to post
Share on other sites

I have a concern that  eliminating food could be conterproductive..  Someone might get malnourished as a result.  That is why I was wondering if anyone recovered when they had very few things left in their diet.  The whole thread has been interesting for me, though.  I was intolerant to some degree to most things I was eating.  Rather then just eat the ones Ihat I had left, I began a rotational diet.  I was puzzling which way to go, to take out every food that I had antibodies for, or the rotational diet.  The rotational diet has done well.  I didn't have  an IgE reaction to anything, so that is why I was allowed to eat all of the foods.  If a person has an allergic reaction, they would not have it in their rotation.

 

Any thoughts in these directions I would appreciate.

0

Share this post


Link to post
Share on other sites

My experience seems different from others here.  It has been close to 6 years now.

 

I hadn't been eating dairy for years when I was diagnosed, but I was able to add it back after about a year.  Then I started reacting to it again.  I found some grass fed milk locally and I can drink that, but when winter comes, the cows get wheat and I can't drink it anymore.  The same thing happened with eggs.  I was told that I must be intolerant of nightshades because I reacted to tomatoes.  Then I found someone at the market whose tomatoes I could eat.  Unfortunately she wasn't there the next year, but I had planted some of my own by then.  Same thing happened with rutabega, squash, potato, etc.  I would get quite sick sometimes from other sources, but when I grew my own I was good. 

 

As far a your questsion goes, I did seem to be able to heal with a limited diet.  I paid careful attention to getting all necessary nutrients and that can be difficult with a limited diet.  My diet is still pretty limited in the winter.  It would sure be a lot easier if I could find more sources of food that I could trust. 

 

It is really nice feeling this healthy.

1

Share this post


Link to post
Share on other sites

I found going organic resolved a lot of my issues . Meaning that it was the pesticides  ,waxes  ,additives and fertilizers  I was reacting to rater then the food its self .

Buying local organic fresh foods has made alot of foods tolerable.  Winter is tough but we deal :)

 

** just to add ** certain foods are off my consumable list permanently,,, meaning even if  organic  they are  NOT something my body tolerates .   Soy,Gluten,Sugar/Artificial sweeteners  and grains are OUT of my diet .

2

Share this post


Link to post
Share on other sites

I have a concern that  eliminating food could be conterproductive..  Someone might get malnourished as a result.  That is why I was wondering if anyone recovered when they had very few things left in their diet.  The whole thread has been interesting for me, though.  I was intolerant to some degree to most things I was eating.  Rather then just eat the ones Ihat I had left, I began a rotational diet.  I was puzzling which way to go, to take out every food that I had antibodies for, or the rotational diet.  The rotational diet has done well.  I didn't have  an IgE reaction to anything, so that is why I was allowed to eat all of the foods.  If a person has an allergic reaction, they would not have it in their rotation.

 

Any thoughts in these directions I would appreciate.

 

 

The malnourishment I suffer before my elimination diet was killing me. So eating foods that my body could  actually absorb ,, even though very limited in my selection ,, saved my life .

Removing those foods I was intolerant  of allowed my body to utilizes the foods it could actually absorb and allowed my body   to heal so that I could eventually add some foods back into my diet

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,808
    • Total Posts
      932,595
  • Member Statistics

    • Total Members
      64,302
    • Most Online
      3,093

    Newest Member
    AnLi
    Joined
  • Popular Now

  • Topics

  • Posts

    • Update: for most accurate results, I am eating one piece of white wheat bread a day and am hating the symptoms. Less than two weeks until the endoscopy so I'm hanging in there.
    • Gaerty, I am glad to hear that you've ruled out the worst stuff. That at least helps clear any anxiety or worry you might have. I know that would clear up mine. I have good news! About three days ago my splinter hemorrhages cleared up 100%! The one that was on my right thumb was long and was there for about 2 to 3 months. I started taking this Vitamin C supplement 1000 mg once a day about 3 weeks ago. Whats crazy is that on the day I started the Vitamin C I noticed a small hemorrhage cropping up on my left thumb. It was very small. By day 7 of taking the vitamin C the one on the left thumb started growing out. By the second week I noticed the one on the right thumb shrunk drastically and by the end of week 3 they were all gone. By day 10 I also started taking 25mg of iron because all my muscles keep twitching. My B's and Magnesium came back good 5 months ago. I heard low iron can cause that symptom as well. So thought I'd give it a try.  I am not sure if it was a combo of the C and Iron or just the C that helped clear the splinter hemorrhages but for sure it was one of those things because they are the only things I have changed recently with supplements in the past 30 days.  
    • The nasal spray is safe, per the 2017 gluten-free drug list, but check the list as there are a few different manufacturers.   http://www.glutenfreedrugs.com/newlist.htm Claritin is fine.   Get a Nedi pot.  Helps tremendously.  It is safe.....100% gluten free.  Just use pre-boiled and the cooled water.  
    • Thanks Ravenswood. I need the strength and encouragement to keep going. The last sessions fall out was 4 days of my body revolting on a nervous system level.  I'll look into your acupressure book suggestion. I have done sinus acupressure for myself and my daughter for years but did not explore more.  In the past when gluten-free my fibromyalgia symptoms improved but since they come back the concern is it might be actual fibromyalgia.  After 2016 I found out I have Barrett s esophagus, fibromyalgia, additional food intolerance plus the gluten. I had in my head I was ncgs and it was all related to  that and leaky gut that occurred after my challenge., So I wasn't prepared to digest all the above. Pun intended. Thanks for the encouragement Awol
    • So I'll try to keep this short and sweet.  I'm a 25yo male and have had GI issues for about 7 years. Through many years and many doctors visits, I've gotten potential diagnoses of IBS, post-infectious IBS (d/t a Giardia infection in 2014), small intestine bacterial overgrowth, GERD, and even a strong suspicion of inflammatory bowel disease (Crohn's/Ulcerative Colitis). I've had two colonoscopies (no biopsies taken) and one EGD (biopsies only taken of STOMACH which showed chronic gastritis, not small intestine). Pretty much all of my tests have come back "normal."  I'll start by saying that back in 2014ish my blood results for Celiac were negative. My GI symptoms vary and fluctuate greatly... When I'm really struggling, I'll have chronic diarrhea, debilitating reflux, hours of burping after eating anything, epigastric and lower right quadrant abdominal pain, severe fatigue (nearly passing out), migraines, awful brain fog / depression, unilateral eye pain and photophobia, mouth ulcers, glossitis (tongue inflammation), and occasional bloody mucus in my stool if I'm extremely flared.   So my GP recommended I try a gluten-free diet after my IBD panel came back as negative. I reluctantly gave it a shot. I was gluten-free for about 2 months - slowly but surely, my chronic diarrhea relented, fatigue lifted, and my reflux nearly disappeared (to the point of considering stopping my omeprazole). Since eating gluten-free is so difficult, I decided to try a 3-day gluten challenge to see if gluten truly was the culprit. I ate gluten products 2-3 times/day for 3 days. It made my reflux a bit worse and gave me some pain, but nothing severe. My tongue however started progressively burning/stinging that week.  The BAD symptoms came about 2 weeks after my first gluten exposure... My acid reflux became MUCH MUCH worse, despite medication. I lost about 7 pounds over 3 weeks from not wanting to eat. I had much more abdominal pain. My tongue became very inflamed and sensitive to eating/drinking. I got mouth ulcers. I became very depressed, irritable, and brain-fogged out of NOWHERE. I was nauseous and having headaches. It was NOT fun. That's when I thought, "Ok, I am definitely more sensitive to gluten than I thought." That was about 6 weeks ago and my stomach is still feeling the effects of those 3 days. So, my questions: Has anyone experienced a similar story? Has anyone had lower GI bleeding with celiac? For those who have Celiac, are your symptoms typically delayed like that (2-3 weeks)? I know NCGS is supposed to have much more immediate symptom-onset. Has anyone tested negative to blood work, but positive on small intestine biopsies?   
  • Upcoming Events