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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

And My Journey Continues...

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Negative celiac blood work

Positive dietary response

Dec 26 ate at o'Charleys (gluten free menu), started with normal uh oh I had gluten response that progressed to anaphylactic shock and ER visit

Jan 11 food allergy testing. Not allergic to anything, but doctor is worried about Mast Cell disorder with wheat and/or gluten as the trigger (this disorder causes allergic reactions to triggers without having a true allergy) started on Zantac 300mg and Allegra 360mg a day. Dr feels I am safe to eat whatever.

Yesterday we ate out (cheeseburger with chili, no bun, FF). I felt a little of my gluten response. I mean just a little (could be the Zantac helping-even though its a tummy med, Techanically it's an antihistamine). About an hour later I started itching ALL over, came home and took the Allegra and within 30 minutes I was fine.

Today, I just took both meds in AM so that it is more in system during day. Wednesday I will start the 24hr urine test and drop it off Thursday am and have blood work done at that time. So my journey continues, but I'm still avoiding gluten/wheat since it is a trigger for something in my body.

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Sorry but that sounds like a true allergy to me. Skin testing is not 100%. If that is what causes it, then avoid it at all costs. I'm surprised you weren't given an epi pen to carry.

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You may want to limit the "eating out" routine, until you have this situation diagnosed. Do you have an inhaler, in case your breathing constricts? (wheat can cause asthma in some people) And sorry you found out that restaurants can vary on how they handle cross contamination. Scary. And thank God for antihistamines.

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caseine and chili are potent allergies, with cheese I get an itch all over and chili raises my pulse sky high

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Takala I'm back to not eating out again, just not worth it.

Seifer, thing is with this disease he is looking at I'm not truly allergic. My skin test was 119 foods, all negative.

Oh well it is what it is.

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Hi Davina-

Might want to do a bit of reading about histamine intolerance / regulation problems - for some reason it is completely off the radar for American docs

....took me a very long time to find this important piece of my wacky health puzzle.

If you can't find info let me know - I've got some great links - just no access to them at the moment.

Hang in there - you will figure this out :)

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