• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cross Contamination....suggestions Please!
0

3 posts in this topic

Hello! I'm pretty positive my whole family has issues with gluten. We do not have a DX...only positive results from gluten-free diet. Myself along with my three children have been gluten-free for almost a year....with a few mishaps here and there. My husband only eats gluten out of the house with the exception of beer. I've posted about this on another post...my 10 year old son has been blinking his eyes and licking his lips until they are extremely chapped. This all started after returning home from a vacation in October. We were not gluten-free on vacation. (his twin was DX with a low wheat allergy and this is why we started gluten-free....he had a rash and going gluten free cleared it).

So, he has been blinking (hard blinks similar to tics) since October. We go back to eating gluten free and he finally stopped blinking on 1-4-13!! YAY!! :)

We went shopping and my husband wanted to go out to eat the next day (1-5-13). My husband called the restaurant (flaming amy's burrito barn)

and was told they had a few items that were gluten-free.

We arrived at the restaurant (after a few hours

of shopping and with starving kids) and the gluten-free

option is hamburger in a bowl topped with

lettuce and cheese. To avoid total meltdowns

(from all 4...lol, husband included) we ordered a

taco salad with chips. It was gluten-free but the chips

were fried in the same oil as gluten battered

meats....I know it was a terrible mistake! We left

and went to whole foods to do some grocery

shopping.....all 4 practically ran to the bathroom

as soon as we arrived ;) I'm dizzy and have a very noisy stomach. We leave the store and go to the next (approxamently 1 hour after eating). At costco my son starts blinking again and by Sunday his lips are chapped again. My youngest also starts licking his lips until they are chapped as well.

1-11-13 his blinking seems to be almost gone and lips are heeled again!

We have company over the next day (1-12-13) and I do all the cooking....but they thought it would be nice to bake gluten-free cookies and bring them over (gluten home). Well, blinking is back and lips are getting chapped again....ugh!

Now, is it possible to be more sensitive to trace amounts after being gluten-free for a year. Does this happen with NCGI?? Or could this be more like celiac??

I have my husband an appointment to get the full celiac panel done and made sure he has increased his gluten intake at work. He is eating two sandwiches, crackers, pretzels, and cereal daily until his test (next Friday) and he has gained almost 10 pounds (in 2 weeks). He is bloated, pimples everywhere, undigested food in stool, having muscle spasms in arms, and tired!

I do want to have the kids tested but I will wait for summer break. They are foggy brained when on gluten!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Well, first off I wanna say good job so far. As my neice just reminded me tonight, just think... It could be worse. You sound like you are doing the right things. I don't know what works for everyone else, but I use a bit of kombucha when I think I've been "tainted". If you google it you might find some useful info. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,551
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • I have 2 copies of DQ9. One from each parent.
    • Obviously from the outside it's difficult to comment, but if I were you I'd leave allergies for now and pursue definitive celiac testing via your doctor and preferably a gastroenterologist. They're the first port of call for digestion issues. If you do wind up being celiac it's possible that other allergies or intolerances would resolve or improve in any case once you've been on the diet for awhile. That's been my experience.   Ps note that wheat allergy is completely different and unrelated to celiac or non celiac gluten sensitivity. 
    • Thank you ps, it may be better if the thread title was changed as we now have two 'overwhelmed' topics. If it were 'Bile ducts and celiac?' then it may attract more users with direct experience?
    • Hello and welcome Maybe? From reading others accounts there's a big variation in how quickly gluten antibodies respond to the gluten diet. I did similar to you and my doctor said that 1 week back on should be enough to show up in a test, but he didn't know what he was talking about sadly... The 2 week figure refers to the endoscopy, for blood testing 8-12 weeks on gluten is more normal.  Basically if it comes back positive fine you have your answer. If its negative it may be a false negative due to your going gluten free beforehand. If you want to pursue a diagnosis then yes. Don't go off gluten again until you confirm that all testing is complete.  Keep a journal noting any symptoms, that may be useful to you later. More info here: There's some good info in the site faq: https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/ I know how you feel! Partway through my gluten challenge I knew that too results notwithstanding. Fwiw I think you've found your answer. Good luck!
    • Learn more about testing for celiac disease here: http://www.cureceliacdisease.org/screening/ You do have to be on a gluten diet for ANY of the celiac tests (blood and biopsy) to work.  While the endoscopy (with biopsies) can reveal villi damage, many other things besides celiac disease can cause villi damage too: http://www.cureceliacdisease.org/faq/what-else-can-cause-damage-to-the-small-intestine-other-than-celiac-disease/ So, both the blood test and endoscopy are usually ordered.  There are some exceptions, but those are not common.  
  • Upcoming Events