This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Thanks for replying! I actually got a blood test for everything and it all came back normal. However, I was slightly anaemic which my doctor said should go back to normal in a few months. I guess I'll go back and get another or speak to the doctor if I am unsure. When I first went gluten free I was still very hungry and my gluten free food also didn't fill me up. I got the same dizzy spells and had to have snacks with me! However, now on the 4th month its gone the complete other way. Anyway, thank you for your feedback and help.
You have a few options.
If your in a restaurant or cafe and want a safe meal, just declare yourself celiac or alternatively say 'no gluten please, it's a medical requirement' if you're uncomfortable doing this. The objective is for them to treat your being gluten free seriously and distinguish yourself from hipster part time fad dieters.
With friends you can develop a shorthand answer:
'I worked out myself I had a problem with gluten and now sadly the tests won't work. I know I either have celiac or non celiac gluten sensitivity, either way I have to be gluten free for life from here on out. No exceptions, its just not worth it'
and stick to that line till they're bored senseless by it and stop asking. Consistency is the key to this and will help you immensely, whilst people think you can be persuaded they'll try to do so and you'll constantly find your willpower being tested. Once they realise that it's just not an option for you they'll stop and that will make it easier for you.
Read up on NCGS here if you're interested: https://www.celiac.com/gluten-free/topic/117969-non-celiac-gluten-sensitivity-a-resource/
Best of luck
You might be like me and need to get a vitamin and mineral panel blood test. And make sure it includes iron. We both might be deficient in certain vitamins/minerals. My medicals bills have been so high I've put it off and just started taking a multivitamin instead. But I'm not sure it has it in what I really might be deficient. So I'm going to spend more money and get a vitamin and mineral panel blood test.
Even at my age I have high metabolism. Gluten free meals only fill me up for 2-3 hours so I have a backpack with me everday and have gluten free snacks to hold me over. My weight went from 168 to 161 my first month gluten free. But it seems to have stabilized and might be going back up again a little. I'm in the start of my 3rd mo. being/trying to be gluten free. If I am hungry for too long I kinda get light headed and dizzy so I bring gluten-free snakes with me.
I drank a bottle of Ensure + my first month to help keep weight on but it didn't seems to agree with my stomach. It might of been my body trying to adjust to the new gluten free diet that caused that issue.
Thanks, cyclinglady. That's encouraging to know that people can have a relatively normal life with Crohn's. I have a co-worker whose in his 50s with Crohn's. I understand he's had it most of his life. Lots of surgeries, iron infusions and ongoing pain.
My GI appointment isn't for another three weeks. I had an abdominal CT scan 9 years ago for similar issues and it was clean. I'm fairly old for Crohn's --I'm in my mid 40s-- and understand that it mostly affects people in their teens and 20s. But, there are always those outliers.
Given that both my brother and his son have Celiac...I'm hoping(?) for the less destructive disease.