• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone With Adrenal Fatigue And Gluten Intolerance?
0

9 posts in this topic

I have been suffering with terrible back pains all my life.

3 years ago I started gluten free - just to be in this with my son who had an autoimmune condition, and, surprisingly, my bakc pains (back muscle spasms) have gone.

Along with depression, insomnia and other nice symptoms.

This way I found I am not celiac, but gluten intolerant.

Unfortunately last September my symptoms returned in milder form, and new symptoms added (orthostatic low blood pressure, hypoglicemia, blurred vision, constant fatigue etc etc) - and this despite that I am keeping the GFDF diet very strictly.

By the collection of symptoms I found out I have adrenal fatigue (another condition not recognized by conventional medicine, but making people suffer greatly).

I took measures recommended for adrenal fatigue (first of them was gluten free caseine free, but I was already on that, very high doses of vitamin B5, very high doses of magnesium, limitation of potassium - and again my symptoms improved greatly - apart from insomnia and morning orthostatic pressure, and inability to function the first hour-two in the morning and until stretching...

Frustrating is that I cannoot reduce the dose of B5 and Mg - I am highly dependent on them.

If you have experience and tips to share, I would be very grateful.

I am aware of leaky gut and convinced I have this too. Anticandida therapy (oregano oil) in process...

Any other factors? What expectations on cure?

THank you

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have adrenal fatigue, leaky gut, all that fun stuff too.

Interesting, my back pain and adrenal issues have also been the thing that has taken the longest to heal itself. I am making progress though, so I hope I can help!

This supplement, and the diet that goes with it (it's basically a Paleo diet) is what really helped me begin to heal. http://www.ovitaminpro.com/repairvite.html

Expensive stuff, but worth it!

This doctor also has a wonderful guide here on his website for healing your gut: http://chriskresser.com/9-steps-to-perfect-health-5-heal-your-gut

My adrenals have been helped most by sticking to the diet, not drinking coffee, and also lately I've been taking licorice root extract, and that has helped a ton.

Also, are you eating foods high in magnesium and B5 as well? I know that personally I do way better when I eat the real food versions of nutrients, sometimes in addition to the supplements if I'm really deficient. Liver is very high in B vitamins, and I've been a lot healthier since I added some liver into my diet a couple times a week. I've also been making huge batches of bone broth, which is a powerhouse of nutrients and makes you feel great.

I hope that was helpful! All the best to you!

0

Share this post


Link to post
Share on other sites

I hope that was helpful! All the best to you!

Very very much helpful! Many thanks!

I will try the licorice root - the rest I am more or less in line with... Thank you for great links.

Health to you too!

0

Share this post


Link to post
Share on other sites

I have had adrenal fatigue and control it using supplements. I have leaky gut and am using a rotational diet. I am suspecting my hypoglycemia is caused by malabsorption.

Diana

0

Share this post


Link to post
Share on other sites

I am suspecting my hypoglycemia is caused by malabsorption.

Diana

What is the connection between the two? I have suspected I have mild hypoglycemia issues since I almost always (like 80% of the time) get extremely nauseous if I am even 15-20 minutes late for a meal, or if I've eaten certain foods in abundance. I also have malabsorption to some extent (low ferritin and steatorrhea, among other things, but I assumed these were due to SIBO, which I had previously).

0

Share this post


Link to post
Share on other sites
Ads by Google:


I have had adrenal fatigue and control it using supplements. I have leaky gut and am using a rotational diet. I am suspecting my hypoglycemia is caused by malabsorption.

Diana

Please, what supplements do you use?

0

Share this post


Link to post
Share on other sites

Have you tried eating more protein. I am exhausted if I eat mostly carbs. I had a grilled cheese sandwich for dinner and the next day I was wiped out even though I had plenty of protein for breakfast.

0

Share this post


Link to post
Share on other sites

So, I see now after a quick search that malabsorption and hypoglycemia are connected somewhat via frustose malabsorption. I know for sure (or pretty sure) that I do not have that since I did a hydrogen breath test specifically for fructose a couple of years ago and it was negative.

0

Share this post


Link to post
Share on other sites

Definitely had severe adrenal fatigue, it's getting better though. Well what can I tell you, number 1 of course is to avoid all stress to the furthest extent possible. I don't know how bad you got it but when I was at my worse I could barely move from the bed and every little noise or whatever felt like a huge stress.

Stop cardio exercise and probably weightlifting too, depending on what stage of adrenal fatigue that you're at. Focus on walking out in the sun during the day, shopping your food or whatever.

Having family and friends that understand and respect your condition and don't overburden you would probably be a huge help. I found hanging out with my cat has helped out, as cats provide company but don't expect so much of you as people usually do.

Just as excessive exercise avoid all stimulants. Obviously drugs and alcohol are a big no no. I would avoid caffeine and sugar too.

As far as diet is concerned DO NOT do a low carb diet, low-calorie diet, a candida cleanse diet or whatever, this is a HUGE stress on your adrenals. Eat plenty of non gluten starch, plenty of non casein protein, plenty of healthy fats such as butter and coconut oil, and water to keep hydrated of course

Personally I'm of the opinion that nutrition should be used instead of supplements to the furthest extent possible. I currently supplement with vitamin D3 and nothing else since I live in Sweden. I am open to suggestions on supplements but basically a lot of the time they're very expensive, you never quite know if they're working and I think you can improve with diet and lifestyle changes

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,426
    • Total Posts
      930,498
  • Member Statistics

    • Total Members
      63,849
    • Most Online
      3,093

    Newest Member
    ilo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Could be we generally say get off of dairy for a few months when going gluten free. The part of the intestines that produce the enzymes, and help break down dairy are associated with the tips of the villi, which are the most damaged if not gone in celiacs. THIS is why most of us end up with a lactose intolerance early on. And most can introduce it later after healing. As to her symptoms with it there was a bunch of research about dairy permeated the gut and causing neurological issues in a autism study I was looking at years ago. And there have been other studies about damaged intestines and how the hormones in milk can easier effect ones body.   Personally I also have a huge grudge against dairy on a personal level as it is not natural to suck on a cows tits and drink the stuff, nor your dogs, nor a rabbits......I mean come on even Human Breast milk you would find odd to drink as an adult right? Back in the past dairy was a great way to get calories and fats when there was famine, etc around I mean it is meant to make a calf grow into a 500+lb cow. But on a genetic and hormonal level it is not really for human consumption and now days the whole corporate BS propaganda push and dairy farms shove that oh its healthy stuff down your throat. There are plenty of dairy free options for everything feel free to message me if you need help finding anything I have been dairy free for over a decade.
    • The full celiac panel checks TTG IGA and IGG, DGP IGA and IGG, IGA, EMA as Jmg stated above. Your test included TTG IGA and IGA. If your IGA was low, a low on TTG IGA would be inconclusive. But your IGA is fine. A high on any one test is a positive for celiac and should lead to an endoscopy for confirmation. So I'd get tested for TTG IGG, DGP IGA and IGG and EMA since there are symptoms. Warning I'm not a doc.    
    • I did a gluten challenge for my endoscopy and requested a second blood test after my follow up with the consultant. I never did see those results but my GP said no celiac was indicated:  Which left me gluten free for life, that wasn't an option after the challenge, but with a less satisfactory diagnosis, one by omission rather than the definitive 'you're celiac' one I was expecting. Yes! I have been 'properly' glutened on a couple of occasions but on several more I've detected a change or a reaction based on what could only have been trace amounts. NCGS is as yet poorly understood but patients tend to have more neuro symptoms than digestive. That's definitely been my experience, although it was only after going gluten free that I realised quite how many digestive symptoms I had just been living with as 'normal'. Close friends and family get the full explanation. 'I have an auto immune disease similar to 'coeliac etc.' If they stay awake long enough I'll tell them about the less than perfect testing process I went through or the Columbia Med research and the possibility of a blood test soon.  They can see the difference between me on gluten and off it so they understand its not all in my head* If I'm ordering food in a restauarant or asking questions about food prep etc I will often just self declare as coeliac - people are aware of that and understand those requests are medical rather than fad diet based. I don't have any problem doing this, I'm not going to claim that and then cheat on dessert for instance and to be honest I expect once the research is complete the two conditions may wind up alongside others as different faces of the same coin.   In the meantime I safeguard my health and avoid getting into a detailed conversation about genuine gluten sensitivity versus faux hipster posturing!       *apart from the bits which are in my head  
    • I originally had it on my face and scalp. (22 years ago)  First biopsy with dermatologist came back as folliculitis.  Then when I had a new outbreak on my upper back, she was able to remove a nice clean blister and we got the diagnosis of DH.  She started me on Dapsone (100mg/day) and gluten free diet.  Now I take 25-50 mg/day.  My understanding at the time was that DH was the skin version of Celiac.  Did a lot of research on my own.  I met Dr. Peter Green at a Gluten free Vendors Fair and he said that a diagnosis of DH  IS a diagnosis of Celiac, even if no other symptoms.    So I stay gluten-free  
    • I was diagnosed with DH in 1995.  I don't remember how long it took to clear up after going gluten-free,  I was taking 100 mg Dapsone, now I take 25-50.   The only true treatment is being gluten-free.  Iodine will not cause a flareup but it can aggravate one.   I don't mind continuing the Dapsone.  It helps with the occasional slip.  But I am as close to 100% gluten-free as possible.
  • Upcoming Events