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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Ferritin Rising Since Going Gluten-Free!
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4 posts in this topic

Hi folks,

I am so happy! Went on the gluten-free diet in October (to feel better like everyone talks about) and was that ever an eye opener! I honestly had no idea that this could be my problem and really knew nothing about Celiac AT ALL!

My labs just came back since going gluten-free (albeit that is a struggle all it's own) and my Ferritin and Hemoglobin is rising with NO iron supplementation! It's a miracle! My hematologist of three years (who has been pressing me about my GI doc missing something) just called THRILLED. When I told him I was not taking supplements but had merely gone gluten-free, he said, "I hear you, I hear you. Happy New Year dear!".

This journey has been so long. I've spent so many years sick and, no, I don't have a crystal ball but just to THINK this is the answer, well, I am doing cartwheels (in my head because, Lord knows I don't feel well enough for the real ones YET). But I finally have hope.

I'm sure I'll have more to share as the days go by but thank you for your support during this process so far. It is quite the crazy journey at the beginning (WOW what a life changer) but I am so looking forward to continuing the healing process. Thank God for the "fad diet"! It ain't a fad to me. It's a gift.

Sorry for blurting but today is a good day :)

Cali

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I am happy for you. I ran out of Ferritin supplements and I feel it. Hopefully my levels will be headed up again soon.

I think I have 30 years of damage? How about you?

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That's fantastic!! Isn't it great when the numbers reflect how you're feeling?!

Laura

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It's been a roller coaster ride because I have been getting glutened since the start of the diet (about every week to 10 days) so this came as a big surprise. Of course, the Ferritin has quite a ways to go and my D is in the dirt (which also causes fatigue). It is the first time my Ferritin level climbed without supplementation which, to me, speaks volumes. My body is working hard to heal (probably has worked like crazy to fight off the invaders) and so I still just want to sleep all the time (except when it's bedtime). The longest stretch of being gluten-free has been 15 days and that was the first time out. I did take Floravital liquid iron in December but only five days worth. Maybe that's an ultra good vitamin!

I think my body has a lot more healing to do and the numbers might precede my energy level. HA

LadySaved, someone posted a childhood picture of me on Facebook a few years back which horrified me. I was 11-years old and very skeletal looking. I'm holding a roll. It was the first thing in this process that made me think, "holy crow, something has been going on with me for longer than I thought"! Add a few years to that 30 and the last 8 have been a nightmare. Someone here posted that every year being gluten-free greatly decreases the chance of lymphoma and the other diseases that come from this. Having started the medical musical chairs in '05, I am hopeful to turn this slide down the road of unwell, around and actually have a life.

My hematologist still wants me to keep my appointment with the urologist for a cystoscope :-Q but I guess it's prudent to make sure everything is checked out. It's not over yet but this news is very motivating and confirming.

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