• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone Have Dh Flare Up From Tylenol Pm?!
0

7 posts in this topic

Hi everyone,

I am brand new to this forum. I joined because I am freaking out about a DH flare up and I do not know what the heck is causing it! I am very meticulous about avoiding gluten. I only use gluten-free lotion, shampoo, everything! I am 8 months pregnant and all of a sudden am having a terrible DH flare up on my legs (which is usually where it happens). I have been having back pain and trouble sleeping bc of the pregnancy and my doc suggested I take Tylenol pm every night to help me sleep. I have read that NSAIDs aggravate DH, but I thought tylenol was safe for DH. Does anyone else have this problem!? Is this normal?! I don't know what else it could be.

Please help!

-Itchypregosaurus!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi itchypregosaurus. Welcome to the board.

Tylenol seems to be the safest for us of the NSAID's but I find that even it aggravates my dh if I'm not very, very judicious in my use of it. I never use Tylenol PM so I can't speak for that specifically but plain Tylenol affects me if I take them day after day.

Also, I've read in a lot of the medical literature that pregnancy can make the dh flare like rip. Furthermore, that you may not have had the dh flare with earlier pregnancies but then you get pregnant with another child & it pops up. The stuff is vexing to be sure!

I'm so sorry this is happening to you. What about asking your doc about strong Benadryl to sort of knock you out at night?

0

Share this post


Link to post
Share on other sites

Just saw your post on the photo bank. As far as chlorine goes I couldn't say. We have city water right now & so I'm getting chlorinated but I have not been in a pool or hot tub. I also haven't been showering in anything but city water so have no comparison to non chlorinated water. Interesting thought though.

0

Share this post


Link to post
Share on other sites

Just saw your post on the photo bank. As far as chlorine goes I couldn't say. We have city water right now & so I'm getting chlorinated but I have not been in a pool or hot tub. I also haven't been showering in anything but city water so have no comparison to non chlorinated water. Interesting thought though.

Thanks for replying! I stopped taking the Tylenol PM. I'm definitely going to ask about something else to help me sleep. I stumbled on the chlorine info a while back. The research said that heavily chlorinated pools can cause DH flare ups- and is sometimes linked to causing the onset DH symptoms. I thought this was very interesting bc DH first presented itself when I was 25 after a long day at the pool. I went first thing in the morning to get some sun and I remember thinking the pool had just been treated bc the chlorine smell was very strong. Later that day I had my first DH outbreak. Of course I was misdiagnosed for two freakin' years but finally I have it mostly under control. That summer was when I started drinking beer too. Prior to that I only drank wine and girly drinks. I often wonder if the increase of gluten from the beer was also a culprit. I never had any other indications that gluten was a problem for me. I've been Gluten-Free now for over a year. I hate that I can't ever be completely cured. It's really frustrating. Anyway, I've tried the chlorine theory twice and both times I had a flare up :/ One more thing I have to avoid.

It is so great to be on this forum and read other people's stories and struggles of the same condition. I haven't met anyone with DH and I find that explaining it to people is useless bc no one can relate.

0

Share this post


Link to post
Share on other sites

Interesting Brandi; my strongest gut reactions were always from beer also. As a teen experimenting with drinking I quickly decided beer was NOT the drink for me as I would have violent GI reactions from it --- screaming pain/cramps in the gut & D.

Do you think you can find that info. on chlorine again? It would be great if you could & then post a link here. I haven't come across that info. & would be very interested in reading it.

0

Share this post


Link to post
Share on other sites
Ads by Google:


http://www.cureceliacdisease.org/archives/faq/does-chlorine-cause-a-reaction-for-those-with-celiac-disease-especially-those-with-dermatitis-herpetiformis-dh

"Does chlorine cause a reaction for those with celiac disease, especially those with dermatitis herpetiformis (DH)?

No such link between the two has been researched or reported."

0

Share this post


Link to post
Share on other sites

http://www.curecelia...erpetiformis-dh

"Does chlorine cause a reaction for those with celiac disease, especially those with dermatitis herpetiformis (DH)?

No such link between the two has been researched or reported."

I found this same website FAQ when I was doing my research. I have found several other DH sufferer comments on forums about highly chlorinated pools triggering a DH outbreak. Personally, I have tested this theory twice and both times it was very apparent that chlorine without a doubt causes a flare up. Although, there isn't any peer reviewed reseach on the subject, the only evidence is personal testimonies.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,784
    • Total Posts
      932,403
  • Member Statistics

    • Total Members
      64,261
    • Most Online
      3,093

    Newest Member
    cristicarper
    Joined
  • Popular Now

  • Topics

  • Posts

    • I think the gripe with this sort of article is that it's not telling the right story. When you write anything, you have a choice about whose story you tell and the consequences of it.  While such articles are factual in the sense that objectively, a GFD is worse than a similar regular one, the focus of these articles undermines the struggles of those who must be gluten-free while also not really giving any information that is likely to result in changed behaviour. All this sort of article does is justify the anti-gluten-free circlejerk. I think many of the journalists here think they're on the side of people with celiac disease because they're underlining that the fad diet is dumb/pointless/harmful/whatever. While this may be true, the message the reader remembers is this: the GFD is frivolous. It doesn't matter if there's a line in the article that says something about how the GFD is a medical necessity for those with celiac disease. People don't remember the asterisk in the article. All they remember is that the GFD is for idiots.  What would be valuable and useful is discussing celiac disease - symptoms, longterm consequences etc. and how strict those with celiac disease must be with the GFD in the context of this research. This will do a better job of convincing people that the fad diet is dumb, but do so in a responsible way that doesn't undermine the real problems faced by those with celiac disease or other medical conditions. Plus, the increased awareness might make someone realize that they should get tested.
    • I had to run go google zonulin. Never heard of that! Makes perfect sense though.. I assume every single person on earth with AI disease has leaky gut! Ya know, I drank several glasses to a bottle of merlot every night after work to "unwind" for many years before I figured out it aggravating the leaky gut! I'm SO glad I quit before it did more damage ... Seriously, metformin is awesome. I love it. Great for metabolic resistance and free at a lot of places with an RX!
    • I am on Armour too.  No metformin for me yet.  I am trying to manage on a low carb high fat diet for many reasons like having a damaged gut and being allergic to so many meds (yah know....swelling, hives, etc.).  Leaky gut.  Nope.  Better.  Zonulin seems to be increased in celiacs.  I am going to blame my gut on that!  Seriously, there seems to be a link.  
    • Dang, Ennis.  You rock!  Ironic and I must be near brain dead.  Did I mention that school is out today!!!!!!  I feel so sleep deprived!  S U M M E R! 
    • Wow you have ALOT going on! Sorry to hear about your ongoing issues. Are you super duper strict with avoiding gluten or do you think you are still getting cross contamination? I will check out that portion of the forum- THANKS a bunch for that. It is all a bit overwhelming. I saw some people post that they saw "dramatic improvement!" within 2 weeks and I'm going rreeeaaalllly? *insert sarcasm.. haha. I know I wont get that lucky. I take metformin and armour and victoza. Type 2 diabetes runs in my family too. My glucose levels were never really high and I never got the official type 2 diagnosis but ive dropped all excess weight on these meds. I hope to wean soon. Did you fix the leaky gut? That is a daunting task isn't it!    
  • Upcoming Events