• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Dh Have To Blister?
0

9 posts in this topic

Is blistering a necessary characteristic in order for it to be considered DH?....before a biopsy either confirms it or not that is. Mine has never blistered.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


http://www.cureceliacdisease.org/archives/faq/can-a-skin-rash-be-associated-with-celiac-disease

"Can a skin rash be associated with celiac disease?

Dermatitis herpetiformis (DH) is an itchy, blistering skin condition that is a form of celiac disease. The rash usually occurs on the elbows, knees and/or buttocks, and is characterized by its bilateral nature; both knees (and/or both arms) are affected, seldom just one. Many people with DH have no digestive symptoms and only about 40% of them have the positive blood tests (serology) for celiac disease. However, they almost always have the same, gluten-dependent intestinal damage as those with more common symptoms of celiac disease.

DH is diagnosed by a skin biopsy, which involves removing a tiny piece of skin near the rash and testing it for the IgA antibody. DH is treated with a gluten-free diet and medication to control the rash, such as Dapsone or Sulfapyridine. Drug treatment is short term, usually until the gluten-free diet begins to relieve symptoms. It’s not necessary to perform an intestinal biopsy to establish the diagnosis of celiac disease in a patient with DH; the skin biopsy is definitive."

Some pictures from a reliable source:

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002451/

1

Share this post


Link to post
Share on other sites

Hi Jenn, my DH comes in many different forms all at once. Some of them are not blisters at all but still definitely DH, so I would say the answer is no.

0

Share this post


Link to post
Share on other sites

No, it does not have to blister. Read the entire thread in this link:

0

Share this post


Link to post
Share on other sites

Thank you guys for the input, it's really helpful.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I think that, according to the experts, DH does blister. I posted a couple of medical references about this. It could be possible that after you have been gluten-free, it doesn't come back as strong when glutened.

Here's a few more:

http://celiacdisease.about.com/od/whatisceliacdisease/a/DermatitisHerp.htm

http://www.dermatitisherpetiformis.org.uk/

0

Share this post


Link to post
Share on other sites

DH presents as blisters on me.

0

Share this post


Link to post
Share on other sites

I saw a new Dermatologist today. This is the 5th one that has looked at my skin to determine what the rash is or is not. He asked if I had blisters (yes) and said he really wished he had seen a blister. I had pictures and described how I used a sterile needle to release the fluid from blisters. That seem to satisfy him that I had blisters even though I have quite an area of rash that the skin has broken and inflamed. Gave me another steroid cream and warned me about infection, told me not to scratch. He asked me, "Does it feel like nettles?" "You ever gotten into a nettle patch?" My reply is "Yes sir."

He wasn't really happy that I was on Dapsone but did take 2 more biopsies NEXT to the lesions on my lower back. He asked if I had had a G6PD test to see if I could tolerate Dapsone. Not had that so he ordered that test. So, not sure without seeing a blister and with being on Dapsone what this biopsy will show but he documented on my record that I had DH.

I told him about the Dermatologist that told me to see a mental/health doctor. He defended him by saying that the skin on my back is thickened from rubbing, scratching and the lesions healing and that is why he would have told me it was neurological in nature. I guess he had to speak up for his associate. :rolleyes:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,762
    • Total Posts
      932,258
  • Member Statistics

    • Total Members
      64,227
    • Most Online
      3,093

    Newest Member
    Jer22v3
    Joined
  • Popular Now

  • Topics

  • Posts

    • Jmg, I am glad you were able to come to the realisation that the culprit was in fact gluten. For me its not so simple. IBS runs in the family, as do several food intolerances. Its just in the last while that I can finally reach the conclusion that for me its gluten. The fact that it is a delayed effect-several hours after, made it harder.  Friday I had some KFC, felt great. Saturday evening felt sleepy, Sunday felt awful and my belly was huge.  I think I have gone from mildly sensitive to full blown celiac over the course of five years-if that possible. Thanks for all your help.
    • I thought I'd take a moment to provide an update, given how much lurking I've done on these forums the last year. It took a long time, but I've since had another gastroenterologist visit, many months of eating tons of bread, and an endoscopy where they took several biopsies. I have to say, the endoscopy was a super quick and efficient experience. During the procedure they let me know that it looked somewhat suspicious, causing them to take many biopsies, and then did comprehensive blood work. About a month later, I received a call telling me that the TTG came back positive a second time, and that the biopsies were a mix of negative (normal) results and some that were positive (showing blunting of the villi). As a result, I've been given a celiac diagnosis. It's been about a month now that I've been eating gluten free. Not sure if I'm really feeling all that different yet. It's a bit twisted to say, but in some way I was hoping for this diagnosis — thinking how nice it would be to have an explanation, a plan of action, and feeling better. It's certainly no small change to be totally gluten free, but I'm hopeful.
    • Is it possible to go from a mild form of gluten sensitivity, to a more severe form, and finally full blown celiac?  If so, that is one of the confusing aspects of this. I have been gluten free for several weeks, and almost feeling 'normal'. I had to go and ruin it with two pieces of KFC! That stuff is  my cocaine! Sure enough,  next two days I was sleepy, depressed, and my belly stuck way out.  Before I could get away with a little cheating. Not anymore I guess!
    • I've had peeling lips for over 3 years now. What helps my lips the most is taking HCL with every meal. Another thing...I've been grain free for the most part for helping to keep my weight down. But I had noticed a few times after eating bread products, that my lips would improve significantly. So I'm eating einkorn wheat and taking HCL and have had the most improvement since it started which was around menopause. The burning at the beginning was really bad until I got off of coffee and the burning stopped. I read that coffee was a hormone disruptor. I don't know what the conclusion will be but thought I would give you my 2 cents thus far.
    • My feet used to swell up too. Impossible to sleep. Started using compression stockings and that helped. Off that job for half year, meanwhile getting 100% gluten free. Back on my feet again all day and 2 weeks later notice my feet are not swelling or heating up like before. So yes, there is a connection. 
  • Upcoming Events