• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hair Loss With Dh Rash?
0

13 posts in this topic

My hair has thinned so much that I'm getting worried. My hairbrush is full each time I brush my hair. Do any of you DH people have the same issue?

When I peel off a scab from my scalp, there are usually 2 or 3 hair follicles that are attached.

Does anyone have a suggestion to prevent hair loss? This head of hair is new from 2008 (chemo) and it is so thinned out. :( I use a fabric covered ponytail band and I now have to twist it around 2 extra times due to how thin my hair is now.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Oh I have just started to notice this too...never occurred to me they were connected. Everytime I brush my hair, more and more is coming out. I thought maybe i'm just getting older...

0

Share this post


Link to post
Share on other sites

I believe hair loss probably belongs to the celiac category in general, although mine is accompanied by psoriasis and seborrheic dermatitis in my scalp too. You just cannot have these conditions in your scalp, from my experience, and expect your hair to be gorgeous and full and healthy :) I do not have DH but my hair is currently in a falling out by the handful phase, despite no antibiotics or other adverse medications, which will also cause it (for me at least, although my former hairdresser said it is a common medication problem).

I sure hope for both our sakes that our hair stops falling out before it is all gone :ph34r:

0

Share this post


Link to post
Share on other sites

Thank you for both replies. I sure hope it stops soon. :huh: I am now mid 50's but not happy at all with this hair loss. I may have to research online to see if this is common for DH patients. I am still scheduled to see a new Dermatologist in February that is to use light therapy to help heal my skin. I'll be sure to ask him about the hair loss.

0

Share this post


Link to post
Share on other sites

I can't speak about the diabetes with respect to hair loss.

I find my hair loss on my head to be relative to the amount of dh I have on my scalp at any given time. As shroomie says; you can't have skin conditions in your scalp without hair loss. Although alopecia is associated with celiac disease I do not think my hair loss is due to alopecia per say. The trauma to the skin on the scalp from dh & therefore the hair follicles has to be a great factor IMHO.

Curiously enough, for the last several years the hair on my legs has been becoming more & more & more sparse even to the point of having almost none. I was pretty happy about this; it made shaving quick & easy. Well guess what? In the last 2 weeks the hair on my legs is coming in like days of old. RATS! I mean, on the one hand it's a good sign that I am healing but on the other hand I have hairy legs to worry about again. And darn it all, as the stubble comes in, I find it impossible to cross my lower legs as the bristly stubble irritates the heck out of the dh!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Mine does! Especially when I get a couple spots around my eyebrows - hair falls right off and leaves a bald spot. :ph34r: My hair loss, however, seems to be confined to wherever the DH is (sometimes OK, sometimes not so great). In other words, if I get the rash around my shoulders, I don't notice any hair thinning.

0

Share this post


Link to post
Share on other sites

Hi

Just a thought on hair loss.

My hair falls most of the time (last 7ish years approx) but less than it used to when eating gluten. I think soy and processed food make it worse and have had DH on scalp since teens.

Hardly dare put this in print but the last few weeks it is thickening up (holding my breath while writing this!) and have been meaning to post to other hair loss folks that I have a feeling it may be benefiting from taking Vit D - well that's the only thing different.

Also shampoo/conditioner with wheat derivatives makes my hair fall (yes, it does) and of course, makes the DH go beserk. Has taken me a long time to find one that is acceptable to my scalp and makes my hair good condition.

1

Share this post


Link to post
Share on other sites




Well this is one thing Coeliac (sorry Celiac) Disease can't do to me....male pattern baldness got me years ago :-)

0

Share this post


Link to post
Share on other sites

I am using shampoo and conditioner w/o wheat for an emulsifier. I do not eat soy now and that is hard on me as I love Asian and Chinese foods. Fortunately I have found a restaurant that does not use soy nor flour when preparing Asian food.

I had hair loss many years ago but it wasn't due to male baldness, doctor thought it was stress loss. I figure it was DH now as I had lesions on my scalp then.

I looked online and several sites state that hair loss is not unusual for Celiac.

0

Share this post


Link to post
Share on other sites

Well, I can't say for sure I had DH but I was getting blistery pimples on my chin in clusters that would rupture on their own. I also experienced heavy hair loss. My doctor doesn't believe I have Celiac because I don't have stomach issues (just everything else, lol) so I just was extra strict with my diet (which I already was). I also got rid of all cleansers with sulphites, I used zinc diaper cream (Penaten brand), and coconut oil for moisturizing. I used Dr. Bronners soap (lavender) for cleansing my face and my scalp to clear any bacteria. It is very heavy on the hair but I only have to use it once a week and then an SLS free shampoo the rest of the week. I also started a zinc supplement. I have been rash free for five months now and my hair loss stopped and my "bald" spots are filled in. I tend to get rosacea at times too - the Penaten works wonders for that too.

0

Share this post


Link to post
Share on other sites




Thanks janpell for the info.  I will check into those items.  I don't know what I'm doing differently but I'm not seeing as much hair coming out, in the past week.  Whew!  Hope it fills out soon.  My hair is just below my shoulders now and I can make one pin curl held with a small bobby pin.  Really thin!

0

Share this post


Link to post
Share on other sites

I had this issue - my hair falling out.  I am intolerant to gluten, dairy, soy, eggs, sunflowers, corn and dyes and my beauty products are no exception.  I was using Head and Shoulders shampoo and though my hair was falling out I figured it was some medical issue, however when i switched to L'Anza shampoo (it seemed to have ingredients I could tolerate) my hair started falling out in chunks.  I have since switched to using Acure shampoo and though my hair seems to be staying on my head, my hair doesn't look the greatest because it feels greesy and looks dirty. 

 

I would check your hair products and see if switching them makes a difference.  I even found that the dye in Softsoap irritated my skin and caused me to have a rash.  It's amazing what your body reacts to.  Everytime I leave the hairdresser I have a rash on my forehead from whatever products she used and when I use a certain hairspray that has gluten in it, i get lesions on my head.  My two cents.

0

Share this post


Link to post
Share on other sites

I had this issue - my hair falling out.  I am intolerant to gluten, dairy, soy, eggs, sunflowers, corn and dyes and my beauty products are no exception.  I was using Head and Shoulders shampoo and though my hair was falling out I figured it was some medical issue, however when i switched to L'Anza shampoo (it seemed to have ingredients I could tolerate) my hair started falling out in chunks.  I have since switched to using Acure shampoo and though my hair seems to be staying on my head, my hair doesn't look the greatest because it feels greesy and looks dirty. 

 

I would check your hair products and see if switching them makes a difference.  I even found that the dye in Softsoap irritated my skin and caused me to have a rash.  It's amazing what your body reacts to.  Everytime I leave the hairdresser I have a rash on my forehead from whatever products she used and when I use a certain hairspray that has gluten in it, i get lesions on my head.  My two cents.

 

 

Hmmm, I have been using Head and Shoulders every other shampoo.  My scalp burns so much as some of the lesions are open due to scratching.  I know . . . that's bad.

 

I stopped using hairspray years ago due the irritation to my scalp.  I sometimes spray my finger tips and spot touch my hair if it's windy outside.  

 

Seems my hair has stopped falling out but it is breaking off badly.  

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,332
    • Total Posts
      935,528
  • Member Statistics

    • Total Members
      64,993
    • Most Online
      3,093

    Newest Member
    EmmaLauren
    Joined
  • Popular Now

  • Topics

  • Posts

    • Former lifeguard and competitive swimmer here. There could be some potential issues, but I think it's pretty unlikely. Here's why I think that: 1. The water volume in a standard 25m pool is enormous (hundreds of thousands of liters). Assuming there are people swimming in the pool, any hot spots are likely to get dissipated pretty fast, so you'd have to swallow a lot of water to get a serious gluten hit. 2. By law (at least in Canada), the water inflow and outflow rates must be such that the volume of water that makes up the pool must be replaced every 24 hours in public pools. There are always some dust bunnies, bandaids and whatnot trapped in the corners at the bottom of the pool, but the main volume you're interacting with gets replaced regularly, so no build-up. Public pools are also vacuumed on a regular basis. For cleaning agents, typically on bleach and baking soda are used in my experience. Private pools are another story and there no guarantees. 3. Most public pools prohibit food on deck due to public health regulations and/or wanting to avoid cleaning up messes. This limits potential sources of gluten to personal care products on other people's skin. Considering the volume of a pool, I'm having trouble imagining this resulting in a significant exposure, but I have also swam in packed outdoor pools that taste like sunblock, so who knows. I would definitely worry if people were eating hot dogs or shotgunning beers in the pool though (definitely a thing at backyard pool parties). 4. Pool chlorine can be either tablet based, liquid based or gas based depending on the pool. Either way, it is bleach-based (sometimes literal bleach gets dumped in smaller volume bodies like hot tubs when the chlorine is off). The pool I worked at, which was newer used liquid injection, and I would imagine this is true of most newer facilities (gas is undesirable as it can leak and kill people because it is odourless - some older pools still have this set-up though). Tablets are more common in backyard pools, and it's possible that these might contain gluten in some form (I have no idea and have never checked).  For reference, the concentration of chlorine in a swimming pool should be between 0.5-5 ppm, depending on the pool temperature and your region (lower for colder pools, higher for hot tubs).  So, I guess my opinion would be that a public pool is most likely pretty safe from a gluten perspective. Chlorine (or rather, the volatile gases resulting from the reaction of chlorine with biological waste in the pool) is an irritant though - occupational asthma rates in lifeguards and swimmers is quite high. Some people are more sensitive to this than others. My dad cannot swim anymore because he becomes ill for a week with severe upper respiratory symptoms (open water swimming is ok). I get similar, but less severe symptoms (part of the reason I don't swim anymore, sadly). Not sure what symptoms you experienced, but something to consider. http://www.ncceh.ca/documents/practice-scenario/pool-chlorination-and-closure-guidelines
    • I look back at photos from a few years ago now and can see the inflammation in my face. I spent decades with my body fighting constantly without my really being aware. Freaked me out when I realised! Few things to think about: If up to 1% of pop are celiac, at much as 6% could be NCGS - further reading here: https://www.celiac.com/gluten-free/topic/117969-non-celiac-gluten-sensitivity-a-resource/ NCGS can present in the same varied ways as celiac - Not just or even primarily gastro related. I get back pain, chest pain, skin problems, eyesight problems, anxiety, depression, balance issues, nerve tremors and twitches etc. etc Try to treat these next months as a special case. Dial your diet back and eat really basic and simple. I lived on omelettes filled with veggies, huge green salads with olive oil and cider vinegar as dressing and a very simple evening meal with maybe some meat and rice. I ate as little processed foods as I possibly could. So try and avoid sauces, anything in a box really.  Your aiming to help your body heal and to reduce the amount of ingredients going in to the basic safest foods. Eat clean and healthy and avoid any possible gluten source. Spend a bit of time learning about hidden sources of gluten too. This thread will help:  https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/   Final point. You may like me eventually have to live life without gluten and without the comfort of a diagnosis that says precisely why. This is not always easy, but what you learn about your body in the next 3 months of this trial could help you to do this. Keep the diary, note your reactions and hopefully when you see the Rheum in 3 months you'll have conducted your own science experiment and have the data you need to make a good decision. Best of luck Matt  
    • Newly diagnosed, who do I tell? I'm not talking friends & family. I am normally private about health matters but I feel it seems I need to tell so many people. Does anyone have a list? Some are obvious like doctor and dentist but one came up for me the other day when my massage therapist asked if I'd had any changes in my health and I said no but halfway through the session realized that, "Duh I should have mentioned Celiac! Clearly the lotion used could be an issue." So who is on your list to tell? Here's who I have so far: Doctor(s) Dentist Restaurant Servers Massage Therapists Hair Stylist Babysitters, Petsitters or Housesitters (anyone who might bring or prepare food in my home)      
    • Hey, I am learning also...make sure you are taking a good multi-vitamin...gluten-free of course.  I have had a few "charlie horse" pains in my thighs and am taking an extra B12 tablet...If you have an ALDI grocery store nearby they have lots of gluten-free items snacks and frozen.  Vitamins will help...you are not getting enough nutrients with what you are eating.
    • I feel the same way! Newly diagnosed (gluten-free since July 1) and never had major GI symptoms mostly neurological issues and other very random stuff. So no red flags to tell me, "You just glutened yourself!" Or at least I haven't identified them yet. I'm not sure if I'm feeling better or not yet. I do have more energy but lots of anxiety and random symptoms that might be celiac related... but who knows. I'm just not sure if this is what "feeling better" is yet. I can't imagine what that is like... or will be like. And I keep reading about people "getting sick" when they are glutened but that is so vague. For me, I'm not sure I'll know if I've actually been glutened or not. I feel like I'm extremely careful but I'm not sure if I'm being over the top, or if I'm doing it right, or not enough and need to do more. I'd just like to get to a nice gluten-free baseline and note what that is like so that I can compare how I used to feel and how I might feel if glutened so that I'll know! Sorry, didn't mean to hijack your thread and provide no answers. I can just relate, that's all.
  • Upcoming Events