This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Thanks for the info. I will ask the GI about my twin sister and nephews to see if they need to be tested regularly too. I'm hoping our insurance will pay for gene testing also to help rule any of us out if possible.
In the face of budget cuts, and in a move that may offer a glimpse of things to come, doctors with the the UK's National Health Service are eliminating gluten-free food prescriptions for adults, beginning in parts of Devon.
As of July 1, the Northern, Eastern and Western Devon Clinical Commissioning Group (CCG) responsible for planning and buying the majority of healthcare services for local people have recommended limiting gluten free foods including bread, pasta, flour and multipurpose mixes, to under 18 years of age.
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We rarely drink orange juice. Why? Because it is full of fructose which is not bad, but you would probably never sit down and eat more than 2 oranges in one sitting. Makes you wonder why diabetes is so prevalent. The other reason is laziness. I have citrus trees and juicing them takes time and work. I reserve that for special occasions.
Citrus is acidic. It can be harsh on a damaged gut. My non-celiac kid actually gets hives from eating too many oranges. Moderation can be a good thing.
Consider getting your vitamin C by eating fruit and not juice.
Was he tested for celiac disease? If he is positive for celiac disease, you'll need to spend some time learning about it. Celiac disease tends to run in families, so you and your spouse should also be tested if it is celiac.
There is another condition called NCGS which some people have. Those people also get sick from eating wheat, rye, and barley, but they don't have the gut damage that celiac's get.
Recovery from celiac disease damage can take 18 months or more. It is not a fast process for most of us. The antibodies that cause the damage slowly reduce in number over time. Possibly weeks to months. Even a small crumb of wheat, rye or barley can cause the antibodies to flare up again. Then the damage starts again and it's back to recovery.
It sounds like you are giving him a good diet. Meat, veggies, nuts, and eggs are good for the first 6 months. After that people find they can sometimes add dairy milk back into their diet. You need to avoid cross contamination from shared foods like mayo or peanut butter or even a shared toaster. Think of gluten like a tiny germ that you can't see but it can be there. It's really helpful to not have any gluten in the house, if that is possible. Also you have to watch out for other people giving him treats that have gluten.
Welcome to the forum duliano!