• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Mom Never Told Me I Was A Sick Baby...
0

8 posts in this topic

My mom just passed away a couple of weeks ago and I've been at her house going through some of her things. Among them was a little journal in which she was writing about me as a toddler, and a kindergarten report card that were very interesting...

Mom wrote that I used to throw up when I ate, and that I had a lot of intestinal problems that no one could figure out. I had unexplained fevers.

My kindergarten teacher wrote that she was concerned I was missing so much school because of a mysterious "bug" I kept catching.

I put that together with my current blood tests and genetic test, wondering now if gluten has ALWAYS been a problem for me.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


maybe so. do you also have dental defects?

i was a vomit-y baby as well, although i don't think i was sickly other than that. but i was the child who always had cavities and when i got braces at 15, i had to have something like 13 fillings because i had "pits" in my teeth. now i've seen professional articles about enamel defects that are related to celiac disease. that makes me think i've had this all my life as well.

my condolences on the loss of your mom - that's hard.

0

Share this post


Link to post
Share on other sites

((Hugs)) I'm sorry to hear about your mom. Best wishes to you.

I think you may be right. It's a shame celiac disease wasn't well known a few decades ago... I guess there are benefits to having the latest "trendy" disease; it's easier to identify it.

Take care.

0

Share this post


Link to post
Share on other sites

I keep trying to think back before I had symptoms. I keep remembering concerns way back. Fatigue was my greatest symptom. I remember laying my head on my desk in elementary school. I also remember extremely high white blood counts( without illness) that red flagged possible allergies. I remember anemia and urine tracing blood. I remember the enamel being absent from my teeth. Anyway, I don't know if I had colic or anything. Maybe I better ask Mom if it isn't to late. I do remember I was bloated3 month picture time atleast it looked like it in my pictures. Baby fat, or something else?

I guess we might never know. Sorry, for you loss and I hope you are as well as can be.

Diana

0

Share this post


Link to post
Share on other sites

maybe so. do you also have dental defects?

i was a vomit-y baby as well, although i don't think i was sickly other than that. but i was the child who always had cavities and when i got braces at 15, i had to have something like 13 fillings because i had "pits" in my teeth. now i've seen professional articles about enamel defects that are related to celiac disease. that makes me think i've had this all my life as well.

my condolences on the loss of your mom - that's hard.

Yes, funny you should mention the dental defects. I had a lot of decay as a child! ALL my molars got drilled and filled, and also I have some fillings on the sides where little pits formed and brushing should have protected. Thank you for your good thoughts.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I keep trying to think back before I had symptoms. I keep remembering concerns way back. Fatigue was my greatest symptom. I remember laying my head on my desk in elementary school. I also remember extremely high white blood counts( without illness) that red flagged possible allergies. I remember anemia and urine tracing blood. I remember the enamel being absent from my teeth. Anyway, I don't know if I had colic or anything. Maybe I better ask Mom if it isn't to late. I do remember I was bloated3 month picture time atleast it looked like it in my pictures. Baby fat, or something else?

I guess we might never know. Sorry, for you loss and I hope you are as well as can be.

Diana

Thank you for your kind thoughts.Do ask your mom everything you can think of, before it's too late! I have had so many times over the last few weeks when I wanted desperately to ask mom about something, and now I can not. Some things I guess we have to wait until we are on the other side, where all will be revealed and pain and disease will not exist.

0

Share this post


Link to post
Share on other sites

((Hugs)) I'm sorry to hear about your mom. Best wishes to you.

I think you may be right. It's a shame celiac disease wasn't well known a few decades ago... I guess there are benefits to having the latest "trendy" disease; it's easier to identify it.

Take care.

Thank you for your thoughts. I also wish the disease had been better known back in the 1950's. Perhaps if we had figured out I had celiac, my whole family could have been looked at...I am waiting for results from a pathologist who just did a limited autopsy on my mom, he thinks she had lymphoma and perhaps an intestinal lymphoma. If that turns out to be the case, we will have a really solid answer to some family health mysteries, and enough information to protect my kids and grandchildren going forward through time.

0

Share this post


Link to post
Share on other sites




My mother told me that I was a terrible baby. It kind of hurt my feelings. Maybe that's why your mother didn't say anything. It isn't really a nice thing to tell your child. She told me that all I did was cry and it drove her crazy. She had my two brothers to care for too. It must have been very hard. I also have dental defects and missed a lot of school. I think I got progressively worse until I finally got diagnosed. I lost my mother in 1981 and I still dream about her sometimes. I am sorry for your loss.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,374
    • Total Posts
      935,740
  • Member Statistics

    • Total Members
      65,054
    • Most Online
      3,093

    Newest Member
    Elovesme99
    Joined
  • Popular Now

  • Topics

  • Posts

    • The basic idea is that you don't want to use something that might have gluten in/on it.  Pots and pans are easy to wash and get clean - a colander is not - all those little holes full of pasta goo.  A toaster with crumbs.  
    • Newbie mom of 15 yr old DD diagnosed 3 weeks ago. Just purchased brand new Farbwrware, nonstick items. Are these safe to use for her needs? Is it just scratched or oldish Teflon that's not suitable or all Teflon? These will only be used for gluten-free cooking. Trying to learn e as we go.
    • I highly recommend being tested for celiac disease before you go off gluten, if you haven't already done so.
    • Hi.  I'm new to this!  Please help me get started. I want to try..I mean DO...a gluten free life so that, hopefully, my health issues will go away. So, please help me.
    • Hello. I apologize for this being long but I feel I should explain the situation so you better understand where I'm coming from. I am here because I do not have the time or money to be galavanting around to different doctors offices. I spent time doing that already, lost money out of my pay from not working but never found A SINGLE ANSWER.  I am a 23 year old female and back when I was about 13-14 I was diagnosed with Mononucleosis. Prior to this, I had been having other issues, or at least the minor problems I had previously considered as 'growing pains' since that's what my primary at the time attributed my pains to. Well now i'm 23 and it's only gone downhill since then. Back then I was told by a GI doctor who had done two or three EDG's and two colonoscopies that I have "the enzymes for crohn's and need to be careful." No other explanation other than eat 'gluten free'..... Now, this was kind of when it was the new 'health fad' for people, so being so young my logic was 'I'm young, I should be able to do what I want and eat what I want without worry!" so that's what i continued to do, despite feeling overall unwell. (I had really always felt unwell so it wasn't really that big of a deal for me)  Now that i'm older, i've literally experience an entire swath of issues. The only reason I am here is because I am now thinking back to that conversation with the GI Doctor that maybe she was right. While I do have insurance, I honestly don't really have the money to be shelling out for these tests all over again as I was lucky the first time around when my grandparents had taken me since I was underage.  My symptoms over the years and continuing have been: (in full, some may have nothing to do with the another)
      Lower back problems, feeling like sciatica but never confirmed. X-rays, MRIs, etc show nothing despite the intense pain. Drs now refuse to do more tests for 'nothing'. So I am left to handle feeling like an elephant is sitting on my lower back, right above my tailbone. (I did fall on that around 12 or 13 but doc never called back after testing, assumed i was fine...)
      Stomach cramping/spasm feelings
      On and off nausesa, any time of day.
      Inability to sleep. 
      Constant changes from hot to cold. (Original doctor has said over the years my temperature seems to run higher than normal. I almost always feel feverish even if only slightly.)
      Headaches/migraines
      Fatigue
      Lightheadedness at times
      Restless legs (DRIVES. ME. INSANE. The muscle relaxers i've been given just made it 1000000x worse! I was so sleepy but couldn't fall asleep due to the restlessness.)
      On and off diarrhea / constipation (I don't know what a 'normal' bowel movement is)
      Costochondritis that has come and gone since I was in 4th grade. (I remember the day because it was April Fools day and everybody thought I was faking the serious pain I was in. I could barely breathe, it felt like my tendons/muscles were being torn apart on the inside) .  I believe this is what my original DR thought was 'growing pains', except they never stopped even after I was finished growing..
      I used to get sick very easily - for about two years it seemed to clear up then i started getting infections non-stop.
      There are some .... embarrassing things... Such as despite how many times I clean myself I feel like i'm.... leaking.......... 
      Sharp/ache like pains everywhere in my body.
      There are likely many other things that I'm just so used to I'm not listing because I'm not sure if they're even related.



      I am just so tired of feeling like dog crap. I've never felt 100%, ever. For as long as I can remember i've always had issues but I come from a family that kind of just.... deals with their problems and not complain 24/7. After years of that, I need help. I am absolutely fed up not being able to do things because I just feel generally crappy. It's seriously depressing and making my depression and anxiety worse. Is testing for a second time worth it? If it is, what tests should I really be focusing on to figure out if this is my problem?
  • Upcoming Events