• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Extremely Confused Due To Symptoms.
0

4 posts in this topic

Hi all,

This amazing forum helped me diagnos myself (or at least help me put my doctor on the right track) I'm lucky enough to have my doctor be my uncle (so he actually listens to me and he's very open to my opinion and trying nearlly anything to get my skin under control) and finally after a year I had a blood test done and came back wheat intolerant (found out three months ago) so far he has me on an antibiotic for possible infection under my skin, I'm also on a wheat/dairy/fish free diet (blood test came back intolerant to all three) and so far it's certainly healing but recently I've started to question certain symptoms on my skin that are making the healing difficult.

The first and most confusing (haven't been able to find anything on it) are these varying in size (from a pimple to an inflamed mosquito/flea bite) lumps I get under my skin, they're close enough to the surface to see the lumps but when I squeeze them nothing really comes out they're also painless - just really itchy.

Sometimes they leak a fair bit of clear fluid, sometimes it's just blood (if I squeeze the blood blotches around the lump on my skin and takes a day or so to fade) one guess was that my skin tissue is becoming inflamed because when I squeeze these lumps they make a popping noise under the skin (it's quite loud as well) which I assumed was the sound of tearing my skin tissue.

They're situated almost everywhere on my body, but they cluster on the back side of my thighs, buttocks, tailbone/slighty above the buttocks, mid to lower back, shoulders and just above my belly button.

The ones that are worrying me however are defieantly the ones on my buttocks, thighs, tailbone and sides of thighs and belly because they itch ALL THE TIME where as the rest of my body only tends to itch on occasion.

Since they itch so much I end up scratching them off, making the skin in the area leak clear fluid (really wet) and leaving red "holes" that scab/bleed/itch even more, I'm confused because I haven't been able to find a close enough description of these symtoms anywhere - please help me identify what's wrong. (I'm thinking of asking my uncle/doctor to put me on dapsone?) Thanks.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Did you have the celiac panel blood test, or the foods intolerance testing?

0

Share this post


Link to post
Share on other sites

Did you have the celiac panel blood test, or the foods intolerance testing?

I'll have to talk to my uncle, I'll be seeing him in the next week so I'll find out.

0

Share this post


Link to post
Share on other sites

I just wanted you to know that my sister has the exact same thing as you and was diagnosed with MRSA. She is frustrated with it because it takes awhile to heal but she pretty much is cleared up. She did a couple rounds of antibiotics but went to a more holistic approach which is working well for her.

A clean diet will do wonders for you. Myself, I go gluten, dairy, soy, sulphite, peanut, free. And have a huge list of foods that have to limited and rotated. Food is just a habit.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,369
    • Total Posts
      935,717
  • Member Statistics

    • Total Members
      65,045
    • Most Online
      3,093

    Newest Member
    Alaina15
    Joined
  • Popular Now

  • Topics

  • Posts

    • So sorry it is difficult.  There is soy and fish flavoring in everything!   I too have neurological damage from 40 years of gluten.  I can feel your pain.  Do you want me to look for a base contact for you?   I still have a connection at my Okinawa church which is near Camp Foster.
    • I find it amusing I brought this up to point out that discrimination is not something that should happen to those of us with this disease and if handled well we can compromise by bringing our own food where allowed and calling and contacting places prior to going explaining and setting things up. In this way we do not end up feeling out of place and can try to live a more normal life with social interactions and gatherings if all is handled well. I am unsure if this goal was met or blown out of the water . One point I think this applies also and has for me so far it seems, is theme parks. Places like Six Flags where your stuck in their grounds, and they can not guarantee food safety. I found that with my celiac diagnoses I can talk to them and be allowed to bring my own food into the park. This not only allows me to head out and eat but also saves me a ton of money >.< as expensive as gluten-free food is theme park food is like another 3x that. They just put a medical sticker on my cooler and I store it in a locker in the park and go back to it for snacks and food. Odd thing from years past.....I have a life time member ship to Six Flags, But I can not go unless someone else is with me for when I get anemic, or sick so I go once a year if even that (not gone this year or last year). My other option is to book a hotel near by or sleep in my car. (I get deathly tired at night and pass out around 9pm). There is also the lines I have to buy a flash pass to skip the lines, or I have panic attacks being unable to move for hours waiting for a ride.  
    • I lived in Okinawa for 4 years prior to diagnosis.  My son however tried to go gluten free during that time.  His school had no idea what I was trying to say and could do nothing for him.  Everyone eats school lunch. Period.  It was difficult.  If I went back I would eat the percooked hard boiled eggs from Lawson's or your nearest convenient store.  You may feel more comfortable rinsing them before eating them.  I would also eat the plain rice onigri.  If you know the contents of the mayo you could eat mayo/fish onigri. Stay away from the ones that use soy sauce.  Maybe look at tins of fish while you are there to see if they contain soy sauce. The other idea is to connect you with someone on a base.  They have great American grocery stores with lots of options and American doctors and hospital.  They deal with American insurance companies.  I looked into that for my father in law who came to visit while terminal.  He had postal insurance and was 100% covered in Okinawa on base.  Do you have military connections there?   Camp Foster or Kadena grocery stores are the big ones with the best selection.  The others may be too small for your needs.
    • Sounded like it's against the law in that state to bring in outside food to any restaurant. A simple phone call to the tavern would have told them that. Prior planning is exactly what was needed here. We don't have the right to break laws, and outside of school and jail, (with the correct paperwork),  we don't have the right to have gluten-free food everywhere we go. I'm shaking my head at the parents and how they dropped the ball here. 
  • Upcoming Events