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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten Intolerance Post Partum, Now Concerned With Getting Pregnant
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chexpaints    0

I'm 37, had 4 successful pregnancies and never had any food intolerances up until post partum of my 4th baby. After the 4th, my blood pressure climbed and stayed high, I had severe insomnia, migraines, panic attacks, irregular heart beats, increased heart rate, depression and anxiety. None of which I had ever had in my life (other than my blood pressure climbing moderately at the very end of each pregnancy). Within a month of the symptoms, I went gluten free (since gluten intolerance runs in my family) and was also tested to find out I was now off the charts sensitive for the gluten! I had post partum induced gluten intolerance. It took 2 years to get healthy again. I'm still gluten free and am also sensitive to many other foods other than whole foods such veggies, fruits and meats.

So now, we have thought about getting pregnant again, but I'm nervous about it. My OB/GYN is not fond of the idea because of my age and my severe post partum symptoms after the last baby. My Naturopathic Dr sees no problem and thinks the symptoms were only caused by onset of gluten intolerance.

Anyone have this experience with post partum induced symptoms? And if so did you have more babies after and how did your body take it now being gluten free?

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jebby    43

I'm 37, had 4 successful pregnancies and never had any food intolerances up until post partum of my 4th baby. After the 4th, my blood pressure climbed and stayed high, I had severe insomnia, migraines, panic attacks, irregular heart beats, increased heart rate, depression and anxiety. None of which I had ever had in my life (other than my blood pressure climbing moderately at the very end of each pregnancy). Within a month of the symptoms, I went gluten free (since gluten intolerance runs in my family) and was also tested to find out I was now off the charts sensitive for the gluten! I had post partum induced gluten intolerance. It took 2 years to get healthy again. I'm still gluten free and am also sensitive to many other foods other than whole foods such veggies, fruits and meats.

So now, we have thought about getting pregnant again, but I'm nervous about it. My OB/GYN is not fond of the idea because of my age and my severe post partum symptoms after the last baby. My Naturopathic Dr sees no problem and thinks the symptoms were only caused by onset of gluten intolerance.

Anyone have this experience with post partum induced symptoms? And if so did you have more babies after and how did your body take it now being gluten free?

Hi,

I think that I had gluten sensitivity since childhood, but I wasn't diagnosed with Celiac Disease until I was postpartum with my 3rd child. My body went totally haywire and I was rather sick in the months leading up to diagnosis and going off of gluten. I miscarried a year later in 2011, and then got pregnant again and delivered a healthy, full term daughter in 2012 (about 24 months post-diagnosis). I was strictly gluten-free throughout the pregnancy, and outside of one "glutening" I felt healthy and strong. My postpartum experience was much better than with my third child! Outside of being sleep-deprived from nursing, I felt well and continue to feel well.

BTW, I have had a lot of friends and professional colleagues get pregnant and have babies in their late 30s and early 40s.

Whatever comes, I wish you the best!

J

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chexpaints    0

Hi,

I think that I had gluten sensitivity since childhood, but I wasn't diagnosed with Celiac Disease until I was postpartum with my 3rd child. My body went totally haywire and I was rather sick in the months leading up to diagnosis and going off of gluten. I miscarried a year later in 2011, and then got pregnant again and delivered a healthy, full term daughter in 2012 (about 24 months post-diagnosis). I was strictly gluten-free throughout the pregnancy, and outside of one "glutening" I felt healthy and strong. My postpartum experience was much better than with my third child! Outside of being sleep-deprived from nursing, I felt well and continue to feel well.

BTW, I have had a lot of friends and professional colleagues get pregnant and have babies in their late 30s and early 40s.

Whatever comes, I wish you the best!

J

Awe, thanks! That does make me feel better. I want to believe that my post partum reactions were due to gluten intolerance onset. But this nagging feeling of what if it was a hormone imbalance keeps me hesitant. I sure don't want to be sick like that again! I was practically helpless with 3 kids and an infant.

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jebby    43

Chex paints, One more thing...did you have your thyroid checked out? Gluten intolerance and Celiac Disease often go hand in hand with thyroid problems. Thyroid gland function can be accepted by pregnancy and being postpartum. I have had symptoms of overactive thyroid after delivering a baby.

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chexpaints    0

Chex paints, One more thing...did you have your thyroid checked out? Gluten intolerance and Celiac Disease often go hand in hand with thyroid problems. Thyroid gland function can be accepted by pregnancy and being postpartum. I have had symptoms of overactive thyroid after delivering a baby.

Yes, I was thoroughly tested by two different doctors. Both said my thyroid is just fine.

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Celiac runs in my family and I didn't have symptoms like yours till the second tri with my first baby. What I have found out is that along with the new wheat issue that even though my thyroid is fine that I had high levels of thyroid peroxidase antibodies. From what I can tell this is related to food intolerances and could be what compounded your symptoms. I think if you continue to avoid the trigger foods you should minimize most all of those problems.. in theory :). I would recommend doing a Google search for 'food allergies and autoimmune thyroid disease' for some further insight. May even recommend doing a blood test. I am researching places but read that metamatrix laboratories will do tests on IgGE (true allergies) and IgG4 (delayed allergies). We are planning on trying for our second child and since I am only 2 months into cutting out gluten I will be waiting. I think if you have a good grasp on your health that you are ahead of the game. I would recommend checking out raspberry leaf for warding off a miscarriage. And make sure your vitamins are gluten free.

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Just to note, some sources say to avoid raspberry leaf tea for the first or first and second trimester if you have a history of miscarriage.

There seem to be some contradictions on the quick internet scan I did, so you would want to be sure of sound medical advice which you are happy using if you want to try it.

There are some contraindications for the third trimester, so you need to know if it suits your particular circumstances.

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Rowena    55

I am gluten intolerant myself, and I went undiagnosed for a long time.  (Not for lack of trying either.)  Shortly after I got married, I got pregnant, but miscarried, and it gave me hell, and my gluten intolerance also got worse.  Until I was diagnosed a year and a half later, I didn't even have regular cycles.  Hell, I didn't even HAVE a cycle.  We thought I had actually gone infertile.   But then when I was diagnosed, I got my cycle back, and a year and a half later I was pregnant again.  (Though I didn't realize it because I thought I had just eaten gluten too close to when I should have gotten my period.  I missed TWO periods before I found out.)

So, it may be different for everyone, but I do think you shouldn't worry about the gluten.  It really is the age that is more the concern for you I would think.

Gluten on my pregnancy actually in the last few months didn't affect me so much, in fact I HAD to eat it despite knowing I really shouldn't because my baby seemed to be unsatisfied unless I did.  Though I did absolutely refuse to eat it most of my pregnancy because of my miscarry.  But I think the gluten didn't bother me as much because of the fact I didn't keep anything down anyway, and your stomach gets so squished by the end and you pee everything out so fast anyway that I don't think it had time to affect me.

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chexpaints    0

Any others with this experience?  I'm very interested.  I'm just scared of being super sick should I get pregnant again...  So I'd love to hear other's experiences of those that had gluten intolerance onset postpartum and how it went with being gluten free on any subsequent pregnancies.

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