• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Gluten Intolerance Post Partum, Now Concerned With Getting Pregnant
0

Rate this topic

9 posts in this topic

Recommended Posts

I'm 37, had 4 successful pregnancies and never had any food intolerances up until post partum of my 4th baby. After the 4th, my blood pressure climbed and stayed high, I had severe insomnia, migraines, panic attacks, irregular heart beats, increased heart rate, depression and anxiety. None of which I had ever had in my life (other than my blood pressure climbing moderately at the very end of each pregnancy). Within a month of the symptoms, I went gluten free (since gluten intolerance runs in my family) and was also tested to find out I was now off the charts sensitive for the gluten! I had post partum induced gluten intolerance. It took 2 years to get healthy again. I'm still gluten free and am also sensitive to many other foods other than whole foods such veggies, fruits and meats.

So now, we have thought about getting pregnant again, but I'm nervous about it. My OB/GYN is not fond of the idea because of my age and my severe post partum symptoms after the last baby. My Naturopathic Dr sees no problem and thinks the symptoms were only caused by onset of gluten intolerance.

Anyone have this experience with post partum induced symptoms? And if so did you have more babies after and how did your body take it now being gluten free?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm 37, had 4 successful pregnancies and never had any food intolerances up until post partum of my 4th baby. After the 4th, my blood pressure climbed and stayed high, I had severe insomnia, migraines, panic attacks, irregular heart beats, increased heart rate, depression and anxiety. None of which I had ever had in my life (other than my blood pressure climbing moderately at the very end of each pregnancy). Within a month of the symptoms, I went gluten free (since gluten intolerance runs in my family) and was also tested to find out I was now off the charts sensitive for the gluten! I had post partum induced gluten intolerance. It took 2 years to get healthy again. I'm still gluten free and am also sensitive to many other foods other than whole foods such veggies, fruits and meats.

So now, we have thought about getting pregnant again, but I'm nervous about it. My OB/GYN is not fond of the idea because of my age and my severe post partum symptoms after the last baby. My Naturopathic Dr sees no problem and thinks the symptoms were only caused by onset of gluten intolerance.

Anyone have this experience with post partum induced symptoms? And if so did you have more babies after and how did your body take it now being gluten free?

Hi,

I think that I had gluten sensitivity since childhood, but I wasn't diagnosed with Celiac Disease until I was postpartum with my 3rd child. My body went totally haywire and I was rather sick in the months leading up to diagnosis and going off of gluten. I miscarried a year later in 2011, and then got pregnant again and delivered a healthy, full term daughter in 2012 (about 24 months post-diagnosis). I was strictly gluten-free throughout the pregnancy, and outside of one "glutening" I felt healthy and strong. My postpartum experience was much better than with my third child! Outside of being sleep-deprived from nursing, I felt well and continue to feel well.

BTW, I have had a lot of friends and professional colleagues get pregnant and have babies in their late 30s and early 40s.

Whatever comes, I wish you the best!

J

Share this post


Link to post
Share on other sites

Hi,

I think that I had gluten sensitivity since childhood, but I wasn't diagnosed with Celiac Disease until I was postpartum with my 3rd child. My body went totally haywire and I was rather sick in the months leading up to diagnosis and going off of gluten. I miscarried a year later in 2011, and then got pregnant again and delivered a healthy, full term daughter in 2012 (about 24 months post-diagnosis). I was strictly gluten-free throughout the pregnancy, and outside of one "glutening" I felt healthy and strong. My postpartum experience was much better than with my third child! Outside of being sleep-deprived from nursing, I felt well and continue to feel well.

BTW, I have had a lot of friends and professional colleagues get pregnant and have babies in their late 30s and early 40s.

Whatever comes, I wish you the best!

J

Awe, thanks! That does make me feel better. I want to believe that my post partum reactions were due to gluten intolerance onset. But this nagging feeling of what if it was a hormone imbalance keeps me hesitant. I sure don't want to be sick like that again! I was practically helpless with 3 kids and an infant.

Share this post


Link to post
Share on other sites

Chex paints, One more thing...did you have your thyroid checked out? Gluten intolerance and Celiac Disease often go hand in hand with thyroid problems. Thyroid gland function can be accepted by pregnancy and being postpartum. I have had symptoms of overactive thyroid after delivering a baby.

Share this post


Link to post
Share on other sites

Chex paints, One more thing...did you have your thyroid checked out? Gluten intolerance and Celiac Disease often go hand in hand with thyroid problems. Thyroid gland function can be accepted by pregnancy and being postpartum. I have had symptoms of overactive thyroid after delivering a baby.

Yes, I was thoroughly tested by two different doctors. Both said my thyroid is just fine.

Share this post


Link to post
Share on other sites
Ads by Google:


Celiac runs in my family and I didn't have symptoms like yours till the second tri with my first baby. What I have found out is that along with the new wheat issue that even though my thyroid is fine that I had high levels of thyroid peroxidase antibodies. From what I can tell this is related to food intolerances and could be what compounded your symptoms. I think if you continue to avoid the trigger foods you should minimize most all of those problems.. in theory :). I would recommend doing a Google search for 'food allergies and autoimmune thyroid disease' for some further insight. May even recommend doing a blood test. I am researching places but read that metamatrix laboratories will do tests on IgGE (true allergies) and IgG4 (delayed allergies). We are planning on trying for our second child and since I am only 2 months into cutting out gluten I will be waiting. I think if you have a good grasp on your health that you are ahead of the game. I would recommend checking out raspberry leaf for warding off a miscarriage. And make sure your vitamins are gluten free.

Share this post


Link to post
Share on other sites

Just to note, some sources say to avoid raspberry leaf tea for the first or first and second trimester if you have a history of miscarriage.

There seem to be some contradictions on the quick internet scan I did, so you would want to be sure of sound medical advice which you are happy using if you want to try it.

There are some contraindications for the third trimester, so you need to know if it suits your particular circumstances.

Share this post


Link to post
Share on other sites


Ads by Google:


I am gluten intolerant myself, and I went undiagnosed for a long time.  (Not for lack of trying either.)  Shortly after I got married, I got pregnant, but miscarried, and it gave me hell, and my gluten intolerance also got worse.  Until I was diagnosed a year and a half later, I didn't even have regular cycles.  Hell, I didn't even HAVE a cycle.  We thought I had actually gone infertile.   But then when I was diagnosed, I got my cycle back, and a year and a half later I was pregnant again.  (Though I didn't realize it because I thought I had just eaten gluten too close to when I should have gotten my period.  I missed TWO periods before I found out.)

So, it may be different for everyone, but I do think you shouldn't worry about the gluten.  It really is the age that is more the concern for you I would think.

Gluten on my pregnancy actually in the last few months didn't affect me so much, in fact I HAD to eat it despite knowing I really shouldn't because my baby seemed to be unsatisfied unless I did.  Though I did absolutely refuse to eat it most of my pregnancy because of my miscarry.  But I think the gluten didn't bother me as much because of the fact I didn't keep anything down anyway, and your stomach gets so squished by the end and you pee everything out so fast anyway that I don't think it had time to affect me.

Share this post


Link to post
Share on other sites

Any others with this experience?  I'm very interested.  I'm just scared of being super sick should I get pregnant again...  So I'd love to hear other's experiences of those that had gluten intolerance onset postpartum and how it went with being gluten free on any subsequent pregnancies.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,132
    • Total Posts
      939,838
  • Member Statistics

    • Total Members
      66,112
    • Most Online
      3,093

    Newest Member
    OliviaFW
    Joined
  • Popular Now

  • Topics

  • Posts

    • Yeah I've wondered a bit if I'm not getting all the other B vitamins from food alone and if they'd do me well. Magnesium content in the keto vitals isn't a lot. I try to get some more through food but I doubt it's optimal. I might have to look into that stuff. Interesting about the meats. Unfortunately I need the fat, especially if I'm gonna continue trying this keto thing for awhile, give it a chance to work. I did know about the difference in omega content, but since starting this diet I've been supplementing with fish oil to offset the omega 6's. Hope you'll be able to eat meat again soon, even if in small amounts. So much this. Every day I want to get up and do anything, and can't and it sucks. I want to climb the walls, get away from myself... Ugh, this takes too long, and I'm too impatient. Yeah, looks like I have to cook everything. I figured I'd at least be able to eat raw baby spinach. I need SOMETHING I can just grab and eat, but it gives me the same slightly itchy mouth that fruit gives me. I've been allergic to fruit forever... Don't have this problem with my steamed broccoli and cauliflower. I already cook everything else I eat. (and it's all organic, real food) So annoying to have to spend half my day cooking, not that I have anything else I can do. But what do I do when (or if) I get healthy again and am like, out somewhere? Damn I miss potato chips. I'll tweak a few things here and there and keep trying.
    • I see banana pudding in your future! ENJOY! I'm glad you came back to report what happened with the cookies.
    • Hey Josh! Corn is hard to digest even when one has a perfect gut. Imagine a damaged gut trying to cope with corn. Ditch the corn for a while. As far as soy goes, many of us, especially in the first 6 months to a year, have problems with soy. Some have problems with soy for years & years & others are able to have soy after their guts heal up. Some never have problems with soy at all. We are all individuals & react differently to different things.  I've never heard anyone having problems with sunflower or safflower oil in the 6 years I've been on this site. As far as lactose goes, again, I'm going to say we are all individuals...... I never had a problem with lactose, some do, some cut it out for a period of time & then later find it presents no problem for them and some can not tolerate it at all and some don't have any problem. A food log is a great tool for you to use to figure out what might be a problem.
    • Ok just to set the record straight, I tried one more cookie and then another and now half the package is gone so clearly these cookies are not to blame for the reaction I had that day. Still don't know what got me but it wasn't these!
    • Welcome, Josh! You have two choices: 1) go back on gluten and get tested.  This will help confirm if you have celiac disease or not.  Some 10% of celiacs are seronegative.  You should confirm if you had the complete celiac panel.  I personally am only positive on the DGP IgA, even on follow-up Testing.  Okay, if you have NCGI, the treatment is the same.  But with a celiac disease diagnosis, that puts you at risk for other autoimmune disorders or cancer (though rare).    You could have both IBD (Crohn’s or Ulcerative Colitis) and celiac disease or maybe Hashimoto’s Thyroiditis.  Knowing this, your doctors can be on the alert for future problems.  It can also help you adhere to a LIFELONG gluten free diet because you will have NO DOUBT.  The endoscopy also provides an initial baseline.  2) stay gluten free for life.  Learn all that you can about cross contamination, avoid eating out (it is like Russian Roulette).  Eat fewer processed foods.  Learn to read labels.  Keep a food and symptom diary to identify other food intolerances.  Read our Newbie 101 advice pinned at the top of the “Coping”section of the forum.  Healing can take months to YEARS.   I have a formal diagnosis (four years ago) and my only known symptom was anemia.  No GI issues.   My hubby went gluten-free 16 years ago per the poor advice of two medical doctors.  We both know odds are that he has celiac disease, but we can not afford for him to be sick for a three month gluten challenge.    He will tell you that I get way more support from medical, family and friends.  We were easily able to get our daughter tested because of my diagnosis.  Easy for me to get a bone scan confirming osteoporosis, etc.   Only you can decide what is best in your case.  I wish you well.  
  • Upcoming Events