• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

How To Navigate Living In Asia - Gluten Free
0

Rate this topic

6 posts in this topic

Recommended Posts

Hi all,

After a recent hospitalization and confirmed malnourishment, doctors have suggested that I may have celiacs. We originally thought it was crohns, but a colonoscopy showed that my large intestine is looking healthy enough, although a cat scan showed some inflammation in the small intestine.

My sister and aunite are both celiacs and I have suffered from celiacs symptoms for about 10 years.

Anyway, I live in Japan and can't get the proper testing done until I go home in about a month. So, I was wondering if any celiacs living in Asia could give me some advice about living with the disease over here. Any suggestions on diet or lifestyle would be great.

Thank you

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Stay on gluten until you get all of your testing done.

I've heard of those with celiac being sucessful overseas. The one way would be to eat a whole foods diet, nothing processed. I think that could be the easiest route, as you can find meats, veggies, fruits (if they aren't sky high in price :) ) and rice (if you can handle it).

Eating out would be far more difficult, or so i've heard.

I've actually researched the heck out of this because i have always wanted to go visit Japan.

Share this post


Link to post
Share on other sites

Thanks for the reply.

If you have a contact you can stay with or stay at a hostel with a kitchen, there is no reason why you can't visit Japan. Eating out may be impossible as soy sauce is pretty much in everything over here, but if you were willing to go to the supermarket and cook for yourself during the stay, then it would be fine.

Anyway, I've lived here for more than 4 years now and I do think it's a beautiful, but expensive, country and is definitely worth visiting.

I'd be more than happy to help with any questions you have about travel and such :D

Edited by sabin112

Share this post


Link to post
Share on other sites

Hi there,

I live in Hong Kong and it is equally difficult once you eat out, but there is a good Japanese Soy Sauce called Tamari that is gluten free and I just take it out with me everywhere I go (I do the same with gravy powder too!), then I get them to use it instead of the regular stuff.

However, cross contamination is a bigger issue when eating out and most chefs might understand the gluten-free issue but they don't get the cross contamination!

Share this post


Link to post
Share on other sites

I just visited HK in June. It must be hard to resist all the lovely pork buns and such that line the street every morning. When I visited I was still unaware of my condition and binged on yamcha and beer everyday- I was so sick that I couldn't leave the hotel by the third day :(

Thanks for the tip about the tamari soy sauce. If I got some of that I could still go out with friends to eat sashimi :lol: I'm actually thinking of moving to my wifes hometown, Nanjing, next year, but cross contamination seems unavoidable if you eat out.

Anyway, it gives me a bit of hope knowing there are other people living with Celiac disease/GI in Asia.

Share this post


Link to post
Share on other sites
Ads by Google:


I lived in Japan for a year pre-diagnosis, and I've always wanted to go back. Being able to manage the diet is the one thing that's keeping me away (I'm soy intolerand now too!)

However, if you've lived there a while and have a decent grasp of the language, it should be easier to at least navigate the supermarket (I can just imagine myself spending 2 hours trying to decipher kanji...)

Remeber: not all tamari is wheat-free, but there are more wheat-free varieties out there than there used to be (at least I've seen some in import shops here.) I believe Kikkoman has one now, but I could be mixing up brands.

Be careful of sauces in general. I'd say buy ingredients as raw as possible and make your own. Also, no seasoned nori (usually has soy sauce= wheat)

Oh, and aparently someone there is making gluten-free ramen/soba/etc noodles. They have some at the Japanese food store here in Toronto. I can't remember the name, and I haven't tried it yet, but you might be able to ask around.

You can do tempura with corn starch and/or rice flour.

Anyway, as Shadow said, don't go off the gluten until your testing is done (which means time to go out and enjoy whatever you can.)

Good luck!

Peg

  • Upvote 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,159
    • Total Posts
      939,995
  • Member Statistics

    • Total Members
      66,144
    • Most Online
      3,093

    Newest Member
    honeyboss
    Joined
  • Popular Now

  • Topics

  • Posts

    • Cheetah, We all have to make our own health decisions based on our individual circumstances.  There is not any “one size fits all” approach.  ☹️In your daughter’s case, she was asymptomatic.  I also would find it hard to believe that she had celiac disease despite confirmed biopsies and antibodies tests.  I get the denial.  I just had anemia that was disguised by a genetic anemia.  I was shocked at the suggestion of celiac disease.  My hubby had been gluten free for 12 and I knew exactly what the treatment meant — gluten free for life.  A total game changer.   Because we have bought our health insurance for over 20 years, we have lived through the times that I was uninsurable due to my Hashimoto’s, Rosacea and toe nail fungus (yes, that is right).    I never went without, but I could not freely jump from plan  to plan.  My premiums were higher than my hubby’s.  So, we worry that health insurance could change and I would be uninsurable again.  (Did I mention that our annual premium is $24,000?) However, the genetic test can be invaluable but is mostly used to help rule out celiac disease.  There are other genes associated, but they have not been studied well.   “So far, scientists have identified over a dozen possible non-H.L.A. genes that may be associated with celiac disease, but whether these genes actually play a role remains to be seen.”  (Sheila Crowe, now head of the American GI Association).   https://consults.blogs.nytimes.com/2010/01/13/genetic-testing-for-celiac-disease/ The antibodies test, in conjunction with the biopsies is the best means of diagnosing celiac disease to date.  The blood test is the least reliable as there are false positives (rare).    It is hard to dispute villi damage.  Too bad your Aunt did not get a biopsy, but understandably, an endoscopy can be costly if you lack insurance and there are many other reasons, so many are forced to forgo this procedure.   https://www.ueg.eu/education/latest-news/article/article/mistakes-in-coeliac-disease-diagnosis-and-how-to-avoid-them/   It is unfortunate that we must weight the risks and benefits of everything.    
    • Kirsty, in my experience, being ‘gluten light’ is not helpful. I think it doesn’t make any sense tbh – it does more harm than good. The withdrawal period is very different from being gluten-free long term. The withdrawal symptoms can be extremely unpleasant but they are temporary! Let’s say 4-6 weeks. I personally was feeling like a drug addict or an alcoholic in rehab at the time. I was having all kinds of withdrawal issues – one of them was extreme hunger and unusual stomach cramps caused by hunger. I had to eat approx. every 2 hours – otherwise I would get very dizzy and lightheaded. It felt as if my body was finally getting the types of foods it needed (= gluten free) and wanted these ‘right’ foods constantly.   The fact that my body viewed gluten as a drug and was addicted to it was a proof in itself for me that I am gluten intolerant. Let’s say I wouldn’t eat any potatoes for 2 or 3 weeks – nothing would happen. Often the types of food we love the most, crave and can’t live without are the very types of food we are intolerant and addicted to. If you’re not a diabetic, the hypoglycemia could resolve completely on the gluten-free diet.   My advice would be read about gluten withdrawal and don’t let it discourage you.
    • I know this thread is eight years old, but I'm bringing it back because ingredients have (very likely) changed since 2009. Jimmy Dean breakfast bowls still don't list gluten, wheat, etc. But they did give my mom and I terrible stomachaches. I know the scientific method calls for repeat experiments but we don't really feel like it. However, I will say we usually stick to a strict gluten-free diet (only eat if it states gluten-free or if there's no way it contains gluten; fruit, veggies, etc) So it's extremely unlikely it was anything else. These were just a risk we took because there's so few explicitly gluten-free quick meals- we both work long-hour jobs and have school so quick meals are very helpful. TL;DR: They are very likely NOT gluten-free. Just because it doesn't say gluten/wheat in the ingredients doesn't mean it's not present. Call me paranoid, but I feel it's a good rule.
    • Victoria. Yes I got tested for Addison’s but passed. The first test I barely passed. I have had adrenal issues for a while. Adrenal fatigue, but not advanced. I always had a lot of food intolerances. But gluten was fine. Histamine and salicylates where a problem though. Mast cell activation syndrome. In hindsight possibly caused by Lyme and my genetic makeup. Then I tried psych meds and they put me on valium to counteract startup side effects. I actually had a paradoxical reaction, not side effects. And after waiting that out I could not stop valium at once. I went to a very heavy withdrawal process for a year. That is when my mast cell actvation syndrome gt way worse and I became gluten intolerant. Had hardly any foods left. And because the withdrawal of gluten was so heavy, I could not go through with it fully. I hoped it would just go away after withdrawal was over. But I still have this limited diet and am gluten intolerant 2,5 years afer withdrawal. But the withdrawal process really hurt my adrenals and my nervous system. I can’t even tolerate most supplements. I guess the valium withdrawal and damage it did is also the reason that stopping gluten gives such bad withdrawal.
    • Read this about the benefits of having a celiac disease diagnosis.  It is written for doctors, but it is very useful.   https://www.ueg.eu/education/latest-news/article/article/mistakes-in-coeliac-disease-diagnosis-and-how-to-avoid-them/
  • Upcoming Events