This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Thank you for all the information. I am sorry for the late reply to everyone. I have been feeling worse and worse lately. Got the blood test results, it came back negative. Seeing a G.I specialist in three months (too long for me :/) I've been keeping a food diary and realize I feel worse after eating gluten. After the G.I I want to start the diet. I'm going to call him and see if I can get seen sooner. The bloodwork said theres no signs of inflammation and they don't suspect it to be autoimmune but they want me to do the diet anyway.
I wish I had answers because my vision is getting worse, cramping, nerve pain and trips to the bathroom are amplifying. Meh. Also I have a vitamin d deficiency so I am taking d3 2000iu with vitamin b12. Thanks for the help!
I'm sorry you are dealing with this. My son deals with food intolerances that are not identified by any biomarker as well. I hear the same response from doctors in that, "if the food makes him feel bad then it's probably best to avoid the food." (Thanks for your insight doc!) His symptoms are not dermatological though. His symptoms are mostly neurological and psychiatric with some bloating and mild digestive issues. He loses his mind quite literally if he digests gluten. Also develops what is known as a stereotypy, involuntary movement of hands. He is otherwise a normal child. We are unable to obtain any kind of diagnosis though.
I know you're avoiding a lot of foods right now, but don't get discouraged. It's just a way of life and you're doing the right thing. Right now we are avoiding foods such as soy, all types of grain, chocolate, dairy and nightshades. I have limited his iodine intake as well. I have personally found that gluten, iodine and soy cause intensely itchy blisters and joint pain for me. Perhaps have you tried cutting back on iodine intake?
It is entirely possible to get a safe meal at an airport. I always go to the high end places and that makes a difference. I have no idea what they have at LAX but Legal Seafoods, if they have one there, is ALWAYS safe because they follow strict protocol for Celiac dining. I ate at the Boston one on my Colorado trip in October and it was excellent and I never had a problem. The menu is limited for gluten-free at an airport but who cares......all I wanted was a safe meal and that is what I got. The baked fish was delicious. They even had gluten-free cracker crumbs for the topping but that is Legal's...they do good work for the Celiac community. The manager oversees the meal prep for food allergy folks.
In Denver, there was a Wolfgang Puck's for breakfast. They had prepackaged fruit salads which were very good. I took a leap of faith and asked the server if they could make me a gluten-free omelette, in a separate clean pan and they were very accommodating. They had an open kitchen so I could watch them make it. I could not order the other stuff that went with it but the omelette was delicious and I never had a problem.
It can be done but you have to be careful. There was a place that advertised gluten-free sandwiches in Denver. You could see the guy making the sandwiches. I ran from that place because there was bread all over the place and no way could they make that space safe for a Celiac. A lot of the places had open kitchens so you can watch what they do and that makes a big difference. Check out the restaurant listings on-line as they are listed.
Have a great trip!
You are a nice person, Ennis, to do this for Thanksgiving! If I were in Texas, I would feel safe eating your food and it sounds delicious! To have an allergy safe meal served in a church is a wonderful thing.