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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Lately, I've been noticing various things going undigested in my stool that I didn't have in it before. I know we don't digest corn, and that's why it comes out the way it does, but last week I noticed peas are starting to come out whole as well. And, I had rice last night and this morning there's a few pieces of rice in my stool. I know this isn't normal, but what can I do to help myself? Should I just not eat vegatables?

I have seen a doctor about my digestive disorder, but I haven't been able to get my tests done yet due to my insurance lapsing and I'm waiting until next month so I can resign up for it. I did, however, get one test done with my gastroenterologist and he said I'm only absorbing about 70 percent of my daily fats. However, we don't know why yet and I can't see him again until next month. Any advice would be helpful.

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ONly a comment from my own experience. Meat is digesting best with me and veggies really aren't. Not knowing what is really going well for you, I would continue a varied diet.

I have had stuff coming through unchanged. I am taking digestive enzymes and soon a product to help heal my gut. I also take quality supplements which are easier to digest then food, I guess. It is too early for me to say these are working.

I hope you will be healing and have good care soon.

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Digestive enzymes! I was having a lot of trouble with this as well recently, (and pain and all the other leaky gut fun) and started taking digestive enzymes and huge difference! I still have trouble digesting some things, but as long as I take enzymes with every meal, it's going good.

A few other questions though: are you Celiac? eating a gluten-free diet? If yes, for how long? If you're still healing, or getting into cross-contamination, that could be making things worse, or at least preventing your gut from healing (hence the malabsorption).

If you are sticking to a gluten-free diet, then maybe something else is the cause (dairy? soy? corn?). Are you having pain or other problems as well?

But definitely get yourself some decent digestive enzymes. Digest Gold is mentioned a lot here, but I've used Trophic "Supreme Digestive Enzymes" and Udo's Choice with good success.

A probiotic might also help.

Good luck!

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I agree with the digestive enzyme recommendation until you can get your testing, and after your testing as well, because it is going to take your body a while to heal. You will note that I am assuming you will trial the gluten free diet regardless of your test results because you may be non-celiac gluten intolerant if not celiac.

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I take digestive enzymes too but have to be careful not to get the ones with Bromelain in them because that gives me an upset stomach. The cheapest ones I've seen are from Swanson online. They're called HCL. You may need a different form or something stronger. In the meantime, try to chew your food very well and eat slowly. You might also consider eating as many pureed foods as you can or drinking stuff like smoothies. Or having things like mashed potatoes and refried beans.

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Hi Mac,

You could also try taking Betaine HCL before your meals. It raises the stomach acidity. So if you have low stomach acid it will help with digestion. You are still in pre-diagnosis and still eating gluten right? Another thing that may help is eliminating dairy from your diet. Many of us can't digest dairy at first. Cutting out soy might help too. And sticking with whole foods versus processed foods.

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All of this has helped. I will try ordering some enzymes and see what it does over time. I can't afford the Creon my doctor perscribed me because its astronomically high, but hopefully these other suggestions will help. Yes, I'm still having gluten as well.

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You can also try a couple drops of bitters (homeopathic) on your tongue to try to get your digestive system working before you start eating. Chew and chew your food (I personally have a hard with this - I tend to wolf it down like the animal I am). I also take a digestive enzyme when I go to bed on top of the ones with meals (when I remember).

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just a nit picking little comment....neither corn nor peas are vegetables....

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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