• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
uhs514

Symptoms Similar To Celiac Disease

Rate this topic

Recommended Posts

I'm a 26 year old male, who in the past few years have had some major stomach problems. About four years ago I had a nasty parasite that caused me to lose about 65lbs. After healing from that, they found that the parasite had attacked my gall bladder, causing me to have that removed. For a year or so I started feeling better, then what I thought was the flu hit me. Instead it was cdiff, which I had 4 times in one year. After getting over that I started gaining weight, but never felt all there. Had a lot of bloating and gas. Well for the last 2 months it has picked up alot. I get very very bloated and gassy. This seems to be hitting me at night more than the day. But its also making me very nauseous. It wakes me up in the middle of the night and I can here my stomach churning and making noises. I have a lot of gas and burp a lot. I also have been really tired and get kind of stiff or sore in the muscles. The only reason I suspect it could be celiac is because my grandpa has it. I havent been tested for food allergies, but will here in the next few days. Also another thing is , when these symptoms started it seemed like I was very stressed. The bloated and gassy feeling I have comes and goes, but these last few months have been terrible. Sometimes I cant make it ten mntures after eating to rush to the bathroom. Then sometimes I wont go for a day or two, then when I do go , I will have to go several times. If anyone has any opinions please respond. I just wont to feel better and know its not all in my head! Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hello, and welcome to the boards. I hope you will feel you are in good company :)

No, I do not believe it is all in your head, and I do not believe it is because you are stressed, apart from the condition itself being stressful, I am glad you are going to get tested. Make sure you are tested for celiac disease first, a panel which consists of the following tests:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

If they baulk at doing them all make sure they at least do the last three. Whatever you do, do not stop eating gluten until your testing is finished as this can affect your results. If celiac runs in the family this is much more likely to be your problem than the average person on the street. Your symptoms are certainly consistent, including the alternating constipation and diarrhea.

A c.diff infection can really knock one back and I recently found some experiences on the net which indicate one might never fully recover from it, that it does leave some lasting damage. And celiac disease seems to make us more susceptible to these gut bugs because our body does not have the strength to fight them off.

So get thee to thy physician and get yourself tested right smart. And do let us know the results. :) Good luck!

Share this post


Link to post
Share on other sites

Thanks for the response. Cdiff was no fun at ALL! I honestly thought I was going to die the first time I had it. I was in the hospital for a few days pretty much knocked out on morphine. It seems since that, I havent felt right. Not fun for an active male in his mid 20s. I have a few more questions. Sometimes I do feel alright and can eat fine. But Im always rushing to the bathroom. Also my hips and knees always feel stiff. Is joint stiffness a symptom? I really hope in part of my mind I'm positive for celiac. It would give me some resolution! I just want answers....

Share this post


Link to post
Share on other sites

Yes, joint problems are a common symptom in celiac persons, ranging from stiffness to rheumatoid arthritis, so here's hoping once you get off gluten - regardless of your test results, do give the gluten free diet a good trial once your testing is complete - that they go away :)

  • Upvote 1

Share this post


Link to post
Share on other sites

Also, it seems like my symptoms really bother me at night. It has been waking me about almost nightly for the past month or two. A lot of nauseous and churning of the stomach. It last about an hour. If I pass gas or burp it tends to make it better, but I also feel very weak during this. Has anyone else had these symptoms?

Share this post


Link to post
Share on other sites
Ads by Google:


Oh yeah!!! I could burp / belch for an hour :D

Share this post


Link to post
Share on other sites

Evenings were definitely the worst time for symptoms; I would get more pregnant looking as the day wore on. LOL

Joint pain and stiffness was a big one for me, and it's finally STARTING to improve after 6 months on the diet. That symptom takes a while to go for many people, so be patient once you go gluten-free.

Good luck with your testing!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,929
    • Total Posts
      943,567
  • Member Statistics

    • Total Members
      67,201
    • Most Online
      3,093

    Newest Member
    GemD
    Joined
  • Popular Now

  • Topics

  • Posts

    • There was a study where they checked 2 weeks on a gluten-free diet , and antibodies were still going up .  The study wasn't about that, so I think that is why they didn't go any further.   So... looks like 2 months gluten free?  If we think that antibodies are still being made at least two weeks gluten free.... account for the fact that most people need a few weeks to actually figure out and eat gluten-free...I would say it was a bit soon to re- test antibodies.     Edit it to add- if you were tested sept 12 and ate gluten for 6 more weeks before going gluten-free - who knows how high it got.  Shame on your doctor for doing the re- test so soon and discouraging you!  
    • Your numbers should not be going up at all. You are getting gluten somewhere. Do you eat out? Have you read the Newbie 101 at the top of the coping section? That will help you to ferret out how you may be getting glutened. Do you have a gluten free household or is it a shared household? Do you read ingredient labels?
    • Thank you so much!!!! I have a severe allergy, I can not even walk through a grocery store without getting a migraine. I have always used dreft but now I know for a fact that it is safe.
    • I’m 62 and have just now been tested for Celiac.  My Titer was negative, I have zero IGa and too much IGg (16) which is an indicator of intolerance at the very least and may indicate the need for another endoscopy. He also tested for EPI (exocrine pancreatic insufficiency) which was negative.  I just had a colonoscopy/endoscopy last year as a part of being diagnosed w/ Gastroparesis. I also have (among other things which I’m not sure are as relevant) - T2 Diabetes, Hashimotos Thyroiditis (late 30’s) Chronic Kidney Stones (since age 40), Osteoporosis (way before Menopause and not well controlled), and Gallbladder disease.(was removed) I’m discovering that all those I listed may be related in some way, and related to Celiac.  I haven’t seen the gastro doc for followup since the testing (obtained results from lab) so I’m not sure what he’s going to recommend.  Here’s where it gets scary... my daughter has many of the same things. She was just diagnosed with EDS (Ehlers-Danlos Syndrome) at 32.  She was diagnosed w/Glucose intolerance at 15, had her Gallbladder removed at 20, PCOS at 22, and Gluten intolerance at 30 (no testing, just her gastro’s recommendation). She’s been diagnosed w/Gastroparesis, POTS,  MAST Cell Activation Disorder, Peripheral Neuropathy, (lost use of her bladder and has a neuro stimulator) - all in the last year.  Too much coincidence for me.  This has to be all related. I keep reading more and more studies linking all these things (like EDS and Celiac) together. My daughters  geneticist is blown away by the multiple overlapping and co-morbid conditions we have and tells us it’s not uncommon. She also says research is expanding.  Sadly, the specialist docs seem baffled and can’t even begin to address our issues, and only help to manage the symptoms - sometimes. And every “Disease/Disorder” has a “diet” or protocol, and they are all at odds with each other - very frustrating.  I guess the moral of this story is to let others know that there’s a lot more to all this than meets the eye. Don’t let anyone tell you you’re fine if you have what seem to be strange unrelated symptoms. You’re not crazy. Keep fighting for understanding and knowledge. Be an advocate for yourself, you’re loved ones,  for us all.      
    • Nice to know that Disney makes an effort to take care of people with allergies or special diets (like gluten free!): https://publicaffairs.disneyland.com/walt-disney-parks-resorts-receives-honors-allergy-friendly-fare/
  • Upcoming Events