This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
The only test I have had done is the TTG because that's what I had done initially after taking matters into my own hands and going to my local health fair. Celiac is so common they do that screening at our health fair. My number was so high that my doctor didn't order other labs and went straight for a biopsy, which showed stage 3b damage. I've had my blood re-drawn (the TTG IGA) at 2 months and then at 9 months, and now. It's always just been that TTG IGA test. He hasn't ordered anything else, and has said it's not necessary for me to get the other panels done. I think that's probably because all he had at first was the TTG and he followed protocol by going for the biopsy since my number was so high. They didn't do the IGA deficiency test on me first, but Gemini said that if I were deficient my test would have been falsely negative, rather than >100. Plus my intestines showed blunting and hyperplasia, so that's how he confirmed his diagnosis. I am going to ask him why he doesn't order me the other tests though, out of curiosity. I know that the TTG tests mostly for intestinal damage and that's likely how he's monitoring my internal healing. He's always said that as long as I feel ok and my TTG is normal he isn't worried about me and said that we can just touch base annually unless symptoms arise. I've always wondered a bit about the DGP because I've never had it done, but Dr. Kim said it's not necessary to have that done (in my case). I'm sure he knows why, but I've never asked. I know others on here have suggested that I have that done, but since my doctor hasn't ordered it I haven't had it done.
The results usually come back within a week so I should know something soon. I'll repost to let you guys know how it's going.
Celiac used to be considered a children's disease - so, by the old standards, you are a bit old to be diagnosed. We now know that Celiac can start at any age.
I don't know if you are a male or a female, but untreated Celiac can lead to miscarriages and infertility. And all the other stuff mentioned above.
19 is not young for this. One can be diagnosed at any age.
How about this stat: before anyone understood what actually caused celiac disease, most folks diagnosed with it died. The complications when consuming gluten affect every system of the body. Lack of symptoms doesn’t mean there isn’t damage. The cancer risk is real. The neuropathy risk is real. At 19, you have a lot ahead of you that you would be willingly tossing aside.
It is a real, serious disease where the treatment is only food...not drugs with side affects, not chemo, not stents or insulin.
Nope, you don't have to go on a gluten free diet. It is a choice everyday what you put into your body. But there caveats to that -- if you continue to eat gluten, you don't know how good you could feel. Eating gluten will eventually lead to malnutrition, osteoporosis, likely gut cancers, other autoimmune diseases, and probably an early death due to your auto immune disease.
The only thing on your list that you really have to give up is beer and even then you can drink cider. Gluten free buns, gluten free sausages and gluten free cakes all exist and aren't terrible. They are in the beginning, but you get used to it.
So, yes, in the beginning it stinks, but like anything you get used it it and move on.