• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
cap6

Daughter Diagnosed With Rheumatoid Arthritis

Rate this topic

Recommended Posts

My daughter, who is 38, was just diagnosed wih Rheumatoid Arthritis. I am celiac and I am very sure that my mom was undiagnosed celiac, she had every sympton in the book! Has anyone experienced a connection between the arthritis & celiac? She has no medical insurance so there can't be any further testing. She was diagnosed through a free clinic so you know they won't take the next step to do more testing. I was just wondering if anyone else has experience with this disease?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I have a few friends with RA (since a very young age, most of them) and as far as I know none of them are celiacs, but we all know the diagnosis can be elusive. Anyway, there probably is a connection, there usually is because once you have one autoimmune disease (like RA), you tend to get other ones unfortunately. Some people think gluten and celiac may be responsible for increasing susceptibility to other autoimmune diseases but I'll let someone else talk about that. I'm sorry your daughter has RA :( I hope she is able to get some treatment despite her lack of insurance and find something that works for her.

Share this post


Link to post
Share on other sites

My daughter was diagnosed with RA and Lupus at 13 - Fibro and Sjogrens in the years that followed -- she is now 29. She wasn't diagnosed with Celiac Disease until I was diagnosed with it four years ago. Do we think the undiagnosed Celiac Disease played a part in her developing the other AIs - yep.

Celiac Disease and all Autoimmune Disorders play very well together -- it is common to have Celiac along with other AIs.

If your daughter hasn't removed gluten yet, I suggest getting a full celiac panel. Although I highly suggest full celiac and nutrient testing -- removing gluten will likely improve her RA -- removing nightshades (tomato, potato, all peppers and eggplant) also helps some with arthritis.

Send her here if she has questions -- lots of us have multiple AIs and will be happy to answer questions.

Share this post


Link to post
Share on other sites

I'm sorry to hear of your daughter's diagnosis. :(

I know there is a link between many autoimmune disorders and celiac (and Hashimotos especially) but I don't have any stats to quote for you. I do have one cousin who is celiac and her brother has RA. Based on what I know of his disease, if your daughter has an active form of the disease, she should probably seek out treatment to help hold the disease at bay to reduce the chances of permanent damage to the joints.

As Lisa said, going gluten-free is starting to be recommended for many AI diseases including RA. For many it helps keep inflammation down so the disease isn't as active as it could be.

Some scientists are starting to group the AI diseases that are often found together but I'm not sure if that is a generally accepted idea. It's often mentioned under Polyglandular autoimmune Syndrome (PAS) if you want to look it up.

Best wishes to your daughter.

Share this post


Link to post
Share on other sites

I went through several rheumatoid diagnoses (polymyalgia rheumatica, RF-negative rheumatoid arthritis, finally psoriatic arthritis when the psoriasis made its appearance) all before going gluten free -- on my own accord, not because any doctor made the connection. I started eating gluten free because someone I know was treating his ankylosing spondylitis with a gluten free diet. Little did I know that gluten-free would cure my digestive problems too. :)

I wish I could tell you that gluten-free made the arthritis go away, but sadly it did not, although it is heaps better, especially since - as Lisa says - I ditched the nightshade family from my diet too. When I have flares I do still have to take one of the new TNF-inhibitor drugs to control them, but I don't take these continuously (which is every two weeks) because they do wreck your immune system. Instead, now that I am without gluten and nightshades, I take them for a month or two until things are under control and then I can usually take a break of four or five months. This has prevented disability; my formerly stiff joints have freed up and all I have left are slightly chubby fingers and toes which are however fully functional.

I would urge your daughter to get tested and go gluten and nightshade free right away to prevent further disability. I initially tried all the DMARD drugs and unfortunately had bad reactions to them all, but some people handle methotrexate quite well and it is the one recommended to prevent joint damage.

Share this post


Link to post
Share on other sites
Ads by Google:


One of the biggest surprises, and one of the most welcome ones, after I was finally diagnosed celiac and went gluten free was that my arthritis went into remission. It took a couple of months but it was so nice to be able to hold a coffee cup, walk, type or button my clothes without pain. My hands still look a bit wonky but the pain is gone. I found out a couple years after diagnosis that the celiac associated gene I carry a double copy of is considered an RA associated gene here in the US. In some other countries it is considered a celiac associated gene. After all testing for celiac is done do advise her to go gluten free strictly for at least 3 to 6 months. I can't be sure that it will help her and not everyone who goes gluten free has arthrits go into remission but she has nothing to lose.

Share this post


Link to post
Share on other sites

my daughter was diagnosed with r.a. many years before i had even HEARD of celiac. i suspect two of my kids should also be gluten-free (the one with the r.a. and the one with diabetes) yes, i do believe it's related... unfortunately.... :(

Share this post


Link to post
Share on other sites


Ads by Google:


Did they perform blood tests for the rheumatoid arthritis diagnosis, and did she test positive for it on those tests for C reactive proteins and rheumatoid factor ? Is your daughter living in an area with a lot of deer ticks and Lyme disease, and has she been tested for that, as well ? Sometimes Lyme triggers an arthritis which is very much like it.

As others have said, is there any way she can get a blood panel run for celiac disease, does she have any matching symptoms or any neurological ones, such as peripheral neuropathy (numbness in extremities) or ataxia (lack of balance coordination, dizzyness) or brain fog?

I was diagnosed with idiopathic (cause unknown) spinal arthritis waaaaay back in the early 1980's, when I was under age thirty, and this is pretty rare in a female, fortunately my physician at that time did not rely just on blood tests, because I was also sero- negative (blood test negative) for everything that they have run, but actually did the x- rays himself (can you imagine that now ?! :o ) and was so surprised by what he saw :ph34r: that after showing them to me and discussing it, I was sent for more scans, yes, there it is. I also had cousins who had other types of arthritis. Duh, runs in family. I also had a lot of kidney problems. I didn't really think much of this until almost 20 years later when I would go to new doctors in another state we had moved to, and they would look at me and announce that I could not possibly have this type of arthritis, in a very patronizing sort of way. This is what performing daily physical therapy for over a decade will do to a person. (need sarcasm icon). Since I am not exactly reticent and demure, you can imagine some of the discussions I have had, (insert devil icon :angry: ) about this with medical persons who made similar dumb remarks, until we finally got a PPO doctor who looked at the more- recent scans and was sort of astonished that somebody who scans like this can still move and is not incapacitated. He's also heard the story about the neuro who tried telling me my brain lesions didn't mean anything- other than I was faking my other symptoms, and just shook his head. :huh: I may just finally catch up to my bone and joint age yet.

I was also frequently tested for MS (negative, of course) and Lupus (negative, of course).

I originally tried a grain free, low carb, low starch diet, because all my internet research was saying that it was not going to hurt me and that there was a small group of people with arthritis and MS type symptoms, which it helped. Grain free coincides with gluten free, if you do it very seriously. I can specifically remember the comment on an internet chat board that set off this idea in my head to look at it, and how it led to another board and more research.

I don't know what it does (gluten free) for rheumatoid arthritis, but I have read enough here that certainly one should at least attempt to get tested for celiac, and then don't be afraid to experiment with a diet change, including trying gluten free, to see how one responds. Gluten gives me flares. Definitely. Eating nightshades doesn't bother me, but I do certainly believe that they bother others - there are LOTS of stories on the internet now about lectins and nightshades and arthritis. I hope that your daughter can have a positive outcome out of this.

Share this post


Link to post
Share on other sites

I have Celiac Disease, Asthma, Rheumatoid Arthritis, and gout, which IS Rheumatoid Arthritis. I am female, 68, but mostly men suffer from gout, so I was surprised when that diagnosis came in. I've had Asthma since the age of 8 and probably Celiac always, but the gout and arthritis came in 2002 after I went vegan. I am now strictly fruits and vegetables, because when I touch chicken, fish, turkey or meat, within one day I have pain in my right leg from rheumatoid arthritis so bad that I have a hard time walking. If I continue eating those, the pain extends to my whole body and I also get so congested that I have a hard time breathing. Yes, nightshade vegetables also aggravate the arthritis (tomatoes, potatoes and eggplant). So, no grains, milk & dairy, egg whites, yeast, maltodextrin, msg, casein, whey, and, recently, asparagus, cauliflower and spinach, which experts say aggravate gout, which is evidenced by a throbbing, inflamed, painful big toe.

Here's the good news--if I walk an hour each day, stay on this strict diet, and drink a lot of liquids, I feel good. I also sleep well. There IS hope. The arthritis CAN go away, in my opinion. Our bodies will tell us what we need. It is probably different for each person, but I hope that your daughter learns what she can tolerate, and ends up healthy and happy!

Share this post


Link to post
Share on other sites

I have both celiac and rheumatoid arthritis. There are several things she can use to help (there is no cure) for her RA. I've had to be off my meds for a while now and met with a Master Herbalist. She has me on tumeric extract, ginger extract, fish oil, tart cherry juice, Vitamin D and I take oil of oregano extract for my allergies. These help a great deal, not like the meds do, but if she can't afford the meds due to the insurance issue, she can get these other things at a health food store, most are not expensive at all. Nightshades make no difference whatsoever to my RA but carbonated beverages and citrus fruits are HORRIBLE for me. Gentle exercise is very important, like the commercial says "a body in motion stays in motion".

Share this post


Link to post
Share on other sites


Ads by Google:


Thank you all for your responses. I will forward this on to her. She lives in the Seattle area and was diagnosed through a blood test. To get her to go gluten free.... sigh. I will work on it!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,387
    • Total Posts
      941,002
  • Member Statistics

    • Total Members
      66,398
    • Most Online
      3,093

    Newest Member
    Maria Jose
    Joined
  • Popular Now

  • Topics

  • Posts

    • Haha, Ennis that's given me no excuse not to make it now!  I've been faffing around about it but now I think I must try it out! They honestly don't sound too hard to do either. The Keto Chocolate frosting I think I can make today if the avocados are ripe enough. I just got some maple sugar and maple syrup (I know I'm bad) but I'll look at the sugar free one. I know I don't feel too well if I eat pure sugar but I couldn't help it. I think I have everything else and it sounds super good. Thanks so much Ennis!!
    • LONG POST incoming I got my cheese sauce recipes compiled and going to throw in my frosting....and yes I normally eat it by the spoon, I make a sugar free version with lakanto. 4 Of my Favorite Cheese sauces
      Will list the ingredients for each one, they all use the exact same cooking method which will follow.
      Super Sticky Mozzarella
      1/2 cup of cashews soaked over night and drained
      1 cup water
      1 tbsp Nutritional Yeast
      3 tbsp Tapioca Starch
      1 tsp Apple Cider Vinegar
      1/4 tsp garlic
      1/2 salt Poor Mans Mozzarella
      3 tbsp coconut flour
      1 cup Unsweetened Plain Cashew or Almond milk (refrigerated version)
      2 1/2 tbsp Tapioca Starch
      2 tbsp Nutritional Yeast
      1 tsp Apple Cider Vinegar
      1/4 garlic powder
      1/4 salt
      1/2 tsp Psyllium husk unflavored Cheddar
      1/2 cup of cashews soaked over night and drained
      1 cup water
      1/4 cup Nutritional Yeast
      2 tbsp Tapioca Starch
      1 tbsp Apple Cider Vinegar bit more if you find the bite lacking and for a sharper one
      1/4 tsp garlic
      1/2 salt
      1 tsp Annatto
      1/2 tsp Psyllium husk unflavored 1. Blend all the ingredients for you cheese flavor very well in a blender
      2. In a sauce pan heat over medium high stirring CONSTANTLY for 5-10 mins. First it will start forming clumps then it will thicken up. Remove from heat and stir a bit longer til it cools to prevent burning. Sometimes I use Lemon Juice in them in place of the vinegar, this really depends on your preference to a more citrus blend or a more bite in your cheese. Any feed back or blends you do with them? Would love to hear about some suggestions for blends. Vegan Queso 10-12 rounds of eggplant, sliced 1/4-inch thick 1 whole egg plant
      spray oil
      1 1/2 cups unsweetened original almond milk (or milk of choice)
      4-6 Tbsp nutritional yeast
      1/2-1 tsp finely minced fresh garlic
      1 to1 1/2 tsp cumin
      1 1/2 tsp chili powder
      1/4 cup chunky medium salsa, slightly drained 1. Slice your eggplant into thin rounds just under 1/2 inch (not quite 1/4 inch), then sprinkle both sides of the flesh with a little sea salt and arrange in a colander to help draw out some of the moisture and bitterness. Let set for 10-15 minutes, then rinse with cool water and thoroughly pat dry between two clean towels.
      2. Preheat oven to high broil and place an oven rack near the top of the oven. Arrange the dried eggplant rounds on a baking sheet lightly spritzed with non-stick spray and spray both sides of the eggplant with a little more oil. Sprinkle with a very small amount of salt.
      3. Broil on high for 2-3 minutes on each side, watching carefully as to not let them burn. Flip at the halfway point to ensure even cooking. Once the eggplant appears tender and both sides have golden brown color, remove from the oven and wrap loosely in foil to steam.
      4. After a few minutes, unwrap and peel the eggplant skin away. It should come right off. If you pack your roasted eggplant into a 1-cup measuring cup, it will be 1 cup.
      5. Place eggplant in a blender with the 1 1/2 cups almond milk, 4 Tbsp nutritional yeast, minced garlic, cumin, chili powder and blend on high until smooth and creamy. Taste and adjust seasonings as needed. I added a pinch more garlic and a little more nutritional yeast. To thin, add more almond milk.
      6. Transfer to a small saucepan and warm over medium to medium heat until slightly thickened and bubbly – about 5 minutes. The longer you go the thicker it will become. (Keep Stirring)
      7. Once hot and thickened, remove from heat and stir in DRAINED salsa or Rotel. Don’t put the liquid in or it will make it runny. Pour into a serving dish and top with a little smoked paprika and hot sauce for flavor/color. (If it looks like it has little clumps in it you need to blend it more) I have had success using both cashew and almond milks for this, I also found adding a tsp of flour like coconut helps with the thickening and richness.I personally like adding a bit of annatto or 2-3 pieces of sun dried tomato when blending to give it a deeper orange color. GOES GREAT with Roasted Orange or Red Bell Pepper This dish was inspired by Baba ghanoush served at a small restaurant in Dallas.


      Keto Chocolate frosting
      2 large ripe avocados
      1/2cup cocoa powder
      6-8tbsp Lakanto Sugar Free Maple
      1/4 tsp vanilla extract
      pinch of salt Thin out with a bit of almond milk if needed to desired consistency
      Blend all in a blender or a food processor until completely smooth.
       
    • I remember on here that they are OFTEN grown on something that contains gluten. I watched a video before but I can't remember the details. The thing is they are supposed to be super nutritious and also they just taste really good. They definitely were making me sick about a year ago but I didn't know about the gluten. If I go to the grocery store how can I know? Are there certain kinds that aren't grown with gluten or do I just need to contact the growers?  
    • I never heard of goat butter but I guess I could make it if I had raw goats milk. Which I don't at the moment. I'd have to see if anyone has goat's milk kefir, billions of probotics would be good though! I've heard of ghee but I'll have to look up how to make it. It's interesting that you are okay on those items in moderation even though you can't have cow's milk. I'll have a look around locally and see what there is. I think I did read that when you make cheese or butter (or ghee) it greatly lessons the lactose. If I do try it it will be only really small amounts. Anyways, that's what I wondered, that some people can't have cows milk but can have goats milk products. So that's really interesting to me.
    • I'm not sure if it's lactose. If I experiment and still feel awful from it it might be that. And I want to try making those nut cheeses sometime soon. I ordered some cooking stuff and mesh strainers to try and make almond milk so maybe I'll try making some cheese at the same time. Coconut cheese sounds intriguing. I'll look that up too. Nut butters I over did and then didn't feel so great but that was over 6 months ago so I could try a little and see. I could just start with small amounts. I think too my stomach just couldn't digest fat at all before and it seems like it's a bit better now. Avocado I can do now! I couldn't before and I'm so glad it's back. But I've only sliced it into salads so far so avocado ice cream and guacamole sound crazy good to me right now. Anything I can make ahead and keep for a few days is good too. Avocado frosting - can I eat that just with a spoon? I know the thing about having milk from animals. I don't know if it really helps but when I have had any I try to find somewhere where it's not mass produced. Like there is a family near by that has some goats and you can have milk but they only do that in the spring and summer. The goats seem okay but I know what you mean. And it is pretty weird if you think about it. : (  
  • Upcoming Events