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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Adult Acne And Inflammation
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Hi, I'm new here. I don't have Celiac disease but I'm pretty sure I am gluten intolerant. My stomach pains go away when I eliminate gluten. I've done some on and off gluten-free diet over the past few months. I've recently been on a strict gluten-free diet for a couple weeks now. I've been tested for arthritis which came back negative. However, I do have inflammation in the body and is slowly getting worse (I'm only 32 so my tests results shouldn't be that of a 50 year old). I have recently been experiencing acne (sometimes cystic) on the face, scalp, chest and back for many months. It seems to get worse when I eat gluten foods or it could be coincidental. Does anyone know if this is related to being gluten intolerant or something else? Or perhaps I need to give my body more time to heal?

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Not saying that acne is dermatitis herpetiformis or not..but there are some postings on that board that might be helpful to you. I think your on to something with the gluten free diet helping your skin but I recommend you seeing your doctor to confirm!! I've struggled with horrible skin rashes & acne for years and am finally finding relief on a gluten free diet. But I wish I had gotten diagnosed prior to going off gluten - I see my MD next month - so I'm hopeful my results/improvement will be proof enough but I'm not sure. Good luck to you.

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Most peeps here also eliminate gluten from shampoo and other hygeine/cosmetic products. I will end up completely miserable if wheat has been in any makeup or shampoo I have used.

Some acne can be caused by vitamin defiency. Zinc is one found in water, and associated with acne breakouts when there is a defiency.

If you think the skin eruptions are DH, please get a biopsy ASAP. If gluten really is the problem, you won't want to go back to eating it.

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I had "acne" all my life on the back, back of the neck, Chest, forehead, Shoulders, and upper arms. Do you know what it was after 20 years of chasing it... It was "Eosinophilic folliculitis". Caused by very high histamine levels and high Eosonphils (allergic reaction). Less that a week on the aniti histamine Zyrtec 95% of my sores were gone, give that stuff a test run and see how you go.

It's not going to cure you quickly and you will need to cut out all your allergic foods, (probably milk protein and grains are the main ones) but if it clears up on Zyrtec you will at least know what you're dealing with.

For me going Gluten free stopped my stomach pain... for a while but the problem runs deeper than that once the damage is done.

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Ok that is really interessting because my daughter has Eosinophilic Esophagitus. Guess what there is a connection between Celiac and EE.

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All of my biopsies have been negative. I'm wondering if I should eliminate more than just gluten (like grains and dairy). I am on Claritin but I'm not sure if that is the same chemical in Zyrtec. I am unfamiliar with what ingredients contain gluten that might be hiding in my shampoo, cosmetics, etc. Can I find that out on this forum? Thanks all for your help!

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check out "acne inversa" ...

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Hi prizm, I'm a 25 year old woman who started getting acne, REALLY bad acne, around age 19. It was incredibly frustrating to have had perfectly clear skin all through puberty and then to be hit with acne as an adult! In addition to the acne, my face began taking on a red, flushed sort of look that got worse and worse over the years. Like you, I chased cures, everything from eating garlic to tetracycline to coconut oil to clearasil, and nothing worked. I finally made the gluten connection a couple of years ago, and went completely gluten-free almost a year ago.

 

I want to scream this into a megaphone for every person suffering with acne: My acne cleared up within 24 hours of being off gluten. Seriously. 24 hours. Of course, it took the remaining blemishes another few days to heal themselves, but the flushing stopped, and the new breakouts stopped. I could not believe that all those years of dreading looking in the mirror and feeling bad about myself and wondering "what's wrong here?" could have been avoided had I known just to stop eating gluten. 

 

Early on, I did a couple of experiments (eating a pastry or having a beer) and within an hour I could feel those painful bumps forming under my skin again.

 

Go gluten free for a month and see the difference in your skin (not to mention the rest of your body, if gluten is indeed the cause of your suffering). :) 

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I have to take zinc supplements to maintain a clear complexion. I think I had DH which cleared up after eliminating gluten but to keep clear of acne I have to take zinc somewhat regularly.

I have Psoriatic Arthritis which is diagnosed though symptoms of inflammation markers, skin conditions and the like not like RA where it is up front in a blood test. Look into elimination diets to figure out your trigger foods. I have virtually no joint pain anymore. I know it's a pain to go further than gluten but in time after being gluten free you can start adding more foods later. Now, I only eliminate gluten, oranges, fresh tomatoes and soy and limit sugar, dairy, grain, alcohol and it is working great. Good luck.

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    • Just thought of something else.  Have you tried cream of rice cereal?   When I was at my worst, I'd have this a few times a day to settle my stomach. 
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    • Maybe the 20 mg. was too strong for you and increasing symptoms?   I have a very low threshold for most meds, and do better on child sized doses.   If you tolerate the 10 mg., that may be the way to go just to get symptoms under control and get stabilized.  Or maybe 10 mg. every other day, if that works. I read that food intolerance symptoms can take 24 to 48 hours to show up.   Can you think of what you were eating in the week before all this started?   I have always used dairy to settle my stomach, so until I figured out the dairy intolerance I was using a small glass of warm milk whenever my stomach was upset.   It provided immediate relief, but caught up with me hours later.   It was kind of hard to believe that milk was the cause when it was so effective in immediate symptom management.    I had also increased chocolate, coffee, and peanut butter right around the same time.  They don't seem to be intolerances (or maybe they are in huge quantities!), but they were irritants, so I needed to avoid them to get things to settle down.  Now that I'm approaching the 3 month point and starting to do better, I have been able to drink coffee with soy milk to buffer, have a little chocolate, and sample some peanuts without much distress.  Perhaps the hardest part of all of this is the time it takes (why forever?!), and how limited one's diet must be for so long in order to stabilize.  I was so sick of eating the same thing for so many weeks, that I started dreading the next meal.  I agree that symptoms and recovery become a blur.  I started making notes on a calendar so I could be more objective and accurate in looking back to assess my symptoms, what I'd tried, and progress.  Otherwise, I just couldn't tell what really did and didn't work.   What seemed like a week ago was really 2 or 3 ... I know you know what I mean! Do follow up with your doctor as need be.  I find that GI docs aren't that helpful for this sort of thing as it's minor in the general scheme of GI things.  My PCP basically told me it was trial and error, as it's different for each one of us.  He could only guide me in meds.   
    • I am sorry that you are all having to go through this. I know all too well the neuro issues she is going through. The world seems so hopeless under that gluten cloud. But it does lift.  There isn't much a neurologist is going to be able to do except to encourage her to be as strict as possible.  It would be a good idea to have your GP or GI do a vitamin and mineral panel if that hasn't already been done. We do sometimes need supplementation while healing as some nutrients do have an impact on the nervous system function. What I find helps me the most is knowing that it is the gluten and it will pass. It is a horrible feeling when it is happening and is hard on ones loved ones.  All you really can do to help her is to remind her that it is the gluten that is making her feel so bad. Try to provide distractions and understanding. If you haven't already do read the Newbie 101 thread at the top of the Coping section it has a lot of good info for you.  These episodes will come less often as accidental glutenings become less frequent. Ask any questions you need and feel free to vent on the tough days.
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