• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hypothyroid And Celiac Link
0

7 posts in this topic

Before my appointment Friday I need to be prepared and most of my celiac questions have been answered .I have a few questions on hypothyroid which apparently after reading seems common in celiacs.I myself have been suffering some extremely evident symptoms of hypothyroid(and found out my grandfather/ uncle/aunt) have it on my moms side. I needed to hear from ppl who have this to see if the following symptoms relate: my body temp is always below 97.7 ,cold hands and feet, tired a lot, muscle pain and tension in legs,inner thigh,back,shoulders (not fibro tender points ), swelling of neck/throat like restriction,waking up anxious in the middle of the night.My muscles feel like burning Sometimes. At the same time ill ask for all my vitamin deficiency lab reports that they did,and the free t-4 check they did. I heard hypothyroid is a bugger to diagnose and like 8/10 are told they aren't when in fact they are?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Even on thyroid medication my body temp is still 97.7, but at least I don't shiver uncontrollably when I get into bed on a summer's night :) Leg tension, muscle pain, cold hands and feet, been there, done that. You have some that I don't have. If you feel a constriction in the neck it is possible you have Hashimoto's thyroiditis. Good luck with your appointment on Friday.

Laboratory tests to determine thyroid function include:

0

Share this post


Link to post
Share on other sites

Free t4 is the one thing that came out low on me which indicates hypothyroid. TSH always normal. I am still a newbie like you are in this whole scheme of health issues. But like Mushroom suggests, get ALL necessary blood work done. Thyroid issues are VERY hard to discover and I have heard even borderline results can give symptoms. I had weight gain and still have fatigue and free t4 was borderline normal one test and then low the next test so I am considered hypo but am not seeking treatment as the synthroid made me feel like I was on speed. Good Luck and please let us know how it all turns out.

0

Share this post


Link to post
Share on other sites

Like jen said, borderline (subclinical) hypothyroidism is hard to detect for doctors to admit that it's there. I was hypo for well over a decade but I didn't request my lab results or educate myself, so I was just taking my doctor's word for it that i was normal... and most doctors live and die by that TSH test, which is a pituitary hormone anyway! :rolleyes:

Make sure you request the tests that 'Shroom mentioned. Your TSH should be near a 1, Free T4 and FT3 should be at about 50-80% of the normal reference range, and TPO Ab should be almost nonexistant.

My symptoms are similar to yours: body temp only breaks 97F a few days a month, fatigued, pain (but mine is not in the muscles, it's in the joints), I tend to get a slightly sore "throat" when my thyroid is acting up but it's not common for me, I've become more hoarse, I don't get muscle burning but I will get cramps or occassionally thie really odd sensation in a limb like my leg is dying off (it's an odd one). My hair has also thinned considerably and I get acne. Constipation is also an issue.

Many of my hypo symptoms overlap with my celiac symptoms so it gets tricky telling what causes which symptom.

Good luck with the doctor.

0

Share this post


Link to post
Share on other sites

Hi,

About 2 years ago I was dx'd with Hypothyroid. And after doing some research I am finding that it can be linked with Celiac disease. My symptoms were a low temp, cold extremeties, hair falling out, eyebrows thinning, very tired and sluggish but I didn't gain any weight - been losing it instead. Also I was deficient in Vitamin B12, D & Iron. And my voice went horse sometimes. Last blood results came back that my thyroid is where it should be and I take Levothyroxine 0.075 MGs every day on an empty stomach. Now I am dealing with Celiac symptoms. Interested in finding out more on how it relates to Hypothyroid. Good luck at your dr!

0

Share this post


Link to post
Share on other sites
Ads by Google:


Unfortunately my thyroid was ok :( leaving me in the dark still but I'm not touching gluten for at least 3 months

0

Share this post


Link to post
Share on other sites

Tiredsean, I'd be interested to see the actual numbers from your thyroid testing. You're correct in your original post that many doctors will tell their patients that their thyroid levels are fine when they in fact mean that the levels fell on that particular day of testing within the lab's generous "normal" range. Diagnostically, you're 'fine.' The doctor's job is to make sure you don't keel over on his/her watch, whereas we as patients tend to also care about our quality of life. So if your numbers are on the high or low side of the spectrum, you can still feel like crap even though the doctor may consider the matter closed. I was diagnosed with hypothyroidism in the late '90s, and I have had to educate so many of my doctors about this issue, it's pretty sad. The lower body temp, cold extremities and constant fatigue are classic symptoms, and I still deal with them even on medication.

0

Share this post


Link to post
Share on other sites




Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,332
    • Total Posts
      935,537
  • Member Statistics

    • Total Members
      64,994
    • Most Online
      3,093

    Newest Member
    Daisy Charlize
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you for your reply.  I did make sure to keep eating gluten before getting tested. I'm still unsure whether or not I should ask my doctor to run the rest of the tests in the celiac panel.  
    • LOL, re: trousers vs. pants.   Here in the US, trousers are a specific kind of pants/slacks, with a looser fit and often with pleats in the front.   I also read that Vit D helps digestion;  can't recall the links, but likely within Gundry's writings about lectin.   My Dr. just told me to resume 2000 IU per day, and I do think it's made a slight difference. Have also read that bone broth is helpful, its gelatinous nature supposedly coats the stomach.   I know bone broth has not been formally studied much, but again, probably can't hurt and might help.
    • I'd try the gluten free diet for a few months to see if that helps at all. Can't hurt. If it doesn't help I'd try a low FODMAP meat and veggies diet.
    • A good amount of the neurological effects from celiac are also related to nutrient deficiencies caused by malabsorbtion from damaged intestines and the fact that most gluten-free foods are not fortified and your net eating many grains. You sound good about the CC and everything and seem to be taking percations goods, I still use freezer paper for a clean safe work surface even in my gluten free home lol. Anyway top things to look for and consider are magnesium and B vitamin deficiencies . I take my in a drink to avoid pills and the sublingual forms are more easily absorbed by the body. I normally suggest 2 brand or forms of magnesium and you need to find the one that works for you there. They are Natural Vitality Calm, a magnesium citrate in a powder, you add it to a warm drink let it fizz and drink it. Magnesium citrate can be a bit harsh on some peoples guts, I suggest you start off with 1/4 tsp and work your way up to the full dose over a week, if you get D then your taking too much and need to back down or the citrate version might be too rough for you. In which case I suggest Doctors Best, bit more off tasting and mixes best with a juice but with the powdered form of it you do not have to worry about digestion issues, I just found the citrate to seem to help with my nerve issues more. B Vitamins, I take Liquid Health Stress & Energy and the Neurological Support, I take 1 tbsp of each 2-3 times a day before meals. Really helps with everything and being in liquid forms I just add to tea and drink it. There are many other vitamins to look into and we each have ones we have issues with more then others, getting tested might help, NOTE magnesium and B vitamins sometimes show normal but you will still find you need supplementation...bit of a odd thing I found. Yeah the neurological effects are  huge thing with me as my issues with this disease cause my immune system to attack my nervous system and brain....accumulated brain and nerve damage over the years. Had a whole mental trauma issues with them, my gastro issues back then were mostly just constipation. NOW days I get the Vomiting, D, gas, bloat, and then constipation for a week along with neurological issues which NOW if I get exposed to eating straight gluten (happened twice in 3 years to this extent) I loose motor control and collapse unable to move, normally while vomiting violently to the point of blood coming up (this was what happened last June 2016 after eating out).  
    • Started thinking the only cereal I allow in my house is Vans, they have a cinnamon one that is like a captain crunch with cinnamon, and a strawberry O type that I keep in stock for a friend that comes over sometimes and for my cousins littler girls who I end up babysitting sometimes. There was a coconut flake (corn flake knock) off I used to eat, but the company discontued it. There is a stuff called progranola from julians bakery made without grains that looks great but is a bit expensive at $9 a bag.
  • Upcoming Events