This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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What would be helpful, Victoria, is to have a full thyroid panel done because you cannot diagnose anyone with Hashi's without a full panel. It is more important to see what the actual hormone levels are than the TSH. Those would be Free T3 and T4. You can have low hormone levels and normal TSH. Your TSH is not too bad but if it starts to climb any higher, that would be cause for concern for Hashi's. At least your lab seems to use the newer ranges for testing. Many labs use outdated ranges that go to 5.00 for a cutoff. When my TSH was a 7, I could barely drag myself out of bed in the morning.
I have Hashi's and your symptoms are a laundry list for it and Hashi's is very common with Celiac Disease. You can start having Hashi's symptoms long before the blood work goes off.......like Celiac.
With the 3 positives that you have, Jenna, you have Celiac Disease. Positive tTg and EMA is a slam dunk. At this point, if you do the biopsy, you don't need it for diagnosis. It will be to check for extent of damage. Considering your health issues, it's pretty apparent you have a gluten problem anyway.
Congratulations on figuring out your problem. Now you can sit back and watch how amazing it will be when many of your problems resolve or improve dramatically. I had the same positives you did and declined the biopsy. 3 years after I was diagnosed, all my symptoms were gone but I do have other AI issues which are not, but they are much, much better just from going gluten free. Be optimistic this will happen for you also!
I'm not sure what you mean by score, but her testing at the Mayo Clinic looks like what they describe in the Mayo Clinic link I included. The posted results are in reverse order of the actual testing.
Testing started with total IgA (for some strange reason labeled "Celiac disease, cascade" and does not include units). It was within the normal range listed in the Mayo link under "Reference Testing" so testing continued with TTG IgA. Jenna3, the total IgA is to ensure that the results of the rest of the IgA tests are valid. It is looking at total IgA antibody, not celiac antibodies.
TTG IgA was a weak positive so testing continued with EMA IgA and Gliadin IgA which per the Mayo website is the deamidated gliadin peptides. It looks like there should be an EMA titer reported.
Hope this helps.
So I was googling my symptoms I still have after being gluten-free for 9 years and came up with Hashi's.
chronic c, even with extra magnesium citrate
feeling tired all the time, despite using cpap for sleep apnea very succesfully
muscle weakness and joint stiffness, my lower back hurts so bad every day
memory lapses (getting worse)
im freaking cold all the time. Ac is killing me this summer.
High cholesterol, the bad one (been bad my whole life)
Depression and low motivation to do lots of simple life tasks
tendency towards anemia (my annual physical didn't check so I don't know current value)
my TSH is 2.590 uIU/mL 0.600-3.300 uIU/mL
Is there anything I can do at home to help these things? Should I share this with my doctor? I have a new one who doesn't know me well at all. What do I say?
thanks for any advice and feel free to ask questions!