• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Anyone Else Experience This?
0

22 posts in this topic

Over the weekend I touched bread and then touched my neck. I broke out in hives. I have never broke out in hives from touching gluten. Not too long after that I started feeling sick. I fainted several hours later. I know hives is normal but does fainting happen if you come in contact with gluten? Has anyone else had this happen to them.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Not me. . . sorry can't help you. That would be horrible!

0

Share this post


Link to post
Share on other sites

Sounds like you've developed an allergy to it.

The fainting, however, is probably unrelated. Do you have issues with blood pressure? Low blood sugar?

0

Share this post


Link to post
Share on other sites

Are you sure they were hives? Did they show up immediately or fairly soon after? It definitely sounds like an allergy, but I've had problems where i touch gluten and get a dry itch rash ~2 hours later. ick. I really hope you figure it out!

0

Share this post


Link to post
Share on other sites

It was immediately. I've been able to touch gluten products and not break out, as long as I wash my hands right after. Now it's gotten to the point that all I have to do is come in contact with it and a rash or hives develops. It use to be just being sick after consuming it. I found out I have low blood pressure. My blood sugar levels are normal.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I got sick from smelling a woman's perfume once. She must have used a whole bottle of the stuff.

OK, so if it is an allergy, you can get tested by an allergist.

Pretty sure I saw that neck swelling thing on Vampire Diaries once...

0

Share this post


Link to post
Share on other sites

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

0

Share this post


Link to post
Share on other sites

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Raising hands & jumping up & down here! Me, me, me, me, me --- where's my bubble? :lol:

1

Share this post


Link to post
Share on other sites

Hi Rebecca,

There is a rash associated with celiac disease called dermatitis herpetiformis (DH). There is section of the forum for DH with more info. So, yes, some people do get a rash from gluten.

0

Share this post


Link to post
Share on other sites

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Raising hands & jumping up & down here! Me, me, me, me, me --- where's my bubble? :lol:

Me too!! I definitely need a bubble!!

Been tested, and mine is gluten related! I've had to cut back on body washes and hair care products. I'm still learning...

0

Share this post


Link to post
Share on other sites

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Yes! I do! Sometimes I wonder how on earth I can continue to live the rest of my life going through this kind of hell! They can send probes to Mars but they can't figure out how to cure an unbearably itchy, burning, prickling rash! What's THAT all about?! :-/

0

Share this post


Link to post
Share on other sites

SoyJoy and Itch Be Gone, have you read the Dermatitis Herpetiformis thread through, and restricted your intake of Iodine? Many DH sufferers find that iodine really aggravates their rash.

0

Share this post


Link to post
Share on other sites

An immediate rash from touching gluten sounds more like an allergy than DH. I can touch gluten without a rash. I do gave itchy/swelling reactions to some topical items that may/may not contain gluten ....

So I have allergies to some things, but the rash I get is from eating gluten (unless I play in desert plants, but that's a different rash).

You can have both celiac/DH and a wheat allergy. You may need to start on an oral allergy med to feel "safe" in places like grocery stores, etc. and you need to see an allergist.

0

Share this post


Link to post
Share on other sites

I sort of gave the wrong impression in my statement. Yes, I feel like living in a bubble but not b/c touching gluten affects me. It's because I've been having such a rough time with a dh flare & my skin is torn up from it. I feel like living in a bubble of perfect temp., moisture, & whatever it takes to not aggravate the dh.

0

Share this post


Link to post
Share on other sites

If you live in a bubble I get to poke you with a stick! Right ? Please, please.. :D

0

Share this post


Link to post
Share on other sites

Awright gluten-free you can poke my bubble with a stick. Just beware of what you pop. It may explode all over you! :lol: :lol: :lol:

0

Share this post


Link to post
Share on other sites

Thanks everyone. What is iodine? I'm planning on talking to my doctor. It doesn't matter how much I shower or wash my face. My face, my neck, and my chest is always broke out in a rash. The last doctor I saw told me "you have an allergy"

0

Share this post


Link to post
Share on other sites

Gluten fires up dh rashes; iodine fans the flames.

For a low iodine diet see:

http://www.thyca.org/rai.htm#diet

Of course you have to cut the gluten out of the low iodine diet.

0

Share this post


Link to post
Share on other sites

That leaves a lot of food I can't eat. Can my doctor check for that allergy. I already have cut out chocolate completely as I think it was causing the inside of my mouth to break out.

0

Share this post


Link to post
Share on other sites

If you think you have dh then many of us have to go low iodine to bring it under control. What I'm talking about is not an allergy to iodine but something that can make the dh flare or flare worse. So, technically, in this instance, NO, your doc can not test it like it's an allergy.

Hey, I am both gluten-free & low iodine ---- lots of foods I'm not eating. Lots of us do this. Sucks but the alternative sucks worse.

0

Share this post


Link to post
Share on other sites

Hey, I am both gluten-free & low iodine ---- lots of foods I'm not eating. Lots of us do this. Sucks but the alternative sucks worse.

true dat !

For those of us with thyroid issues and DH it becomes a wonderful <_< ( sarcasm ) balancing act

0

Share this post


Link to post
Share on other sites

Thank you I will look into the iodine. It seems like this rash is getting worse everyday

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,797
    • Total Posts
      932,510
  • Member Statistics

    • Total Members
      64,283
    • Most Online
      3,093

    Newest Member
    Michael McNamara
    Joined
  • Popular Now

  • Topics

  • Posts

    • In comes SIBO Girl to join Captain NCGS   One other thought:  have you looked at the possibility of having small intestine bacterial overgrowth (SIBO)?  The pain you are feeling may be related to bloating pressure, which, if it is caused by SIBO, would continue after the removal of gluten because lots of foods feed the bacteria in your small intestines once they have become established where they don't belong.   One of the things that is confusing about celiac/gluten sensitivity is that is causes so many other things. Anemia, for example. Remove the gluten you feel better, but you may still need to treat the anemia to make those anemia-specific symptoms go away. Same thing with B vitamin supplimentation (nod to Professor Pellagra) and some of the neurological symptoms. Same with bacteria in the small intestines.  Guten affects my daughter's nerves. These affect motility, which affect her body's ability to prevent bacterial overgrowth. The removal of gluten was key to eliminating most of her symptoms. But removing excessive fermentable carbs was important for the SIBO to be kept at bay. That's the Fodmap component (but not JUST Fodmaps).  Going grain free has been amazing for her health.   Here is the best website for SIBO. Just something to consider. http://www.siboinfo.com/symptoms.html Incidentaly, SIBO is very common in folks with gluten sensitivities. I personally think that everyone diagnose with celiac disease should also be tested for SIBO just like they test for vitamin deficiencies. It would probably greatly help in recovery if you treated that condition as well. 
    • No, I was gluten free both times I had a scope.  They found eosinaphalic esophagitis and most recently ulcers.  The ulcers were the cause of the nausea apparently. i feel pretty good most of the time if I take all my vitamins, avoid sugar and carbs and lean toward the AIP diet.  I then have a corn tortilla or popcorn with my dinner and it's enough carbs for good sleep.
    • It needed paragraphs 
    • Hi Victoria I hope you get some replies as some of these people are still on this board.   Is this something you are suffering from? I thought I'd just let you know that I had this very badly at diagnosis, and it went on and on for some time. I had pelvic u/s and also a precautionary sigmoidoscopy - all was clear.  In the end what really helped was giving up all dairy for a few weeks.  It pretty much stopped - I missed my dairy though, so reintroduced it. But it was good to know it was bloating that was causing it.   But the pain was also due to something else. I still get pain to the left of my groin/pelvis when I've been carrying heavy bags and doing a lot of walking.  I have an issue with my sacroiliac joint.  Look it up - it is a common problem for coeliacs.  The pain transfers to the front of the groin, and also to the buttocks.  If I touch my left sacroiliac joint now it is really tender.  But with it I have an accompanying feeling of pain and pressure in my left groin/pelvic area, which reminds me of the time when I was expecting a baby , a simliar type of pressure.   I hope you hear from others but maybe this will help? Cristiana
  • Upcoming Events