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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Anyone Else Experience This?
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Over the weekend I touched bread and then touched my neck. I broke out in hives. I have never broke out in hives from touching gluten. Not too long after that I started feeling sick. I fainted several hours later. I know hives is normal but does fainting happen if you come in contact with gluten? Has anyone else had this happen to them.

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Carebear    0

Are you sure they were hives? Did they show up immediately or fairly soon after? It definitely sounds like an allergy, but I've had problems where i touch gluten and get a dry itch rash ~2 hours later. ick. I really hope you figure it out!

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It was immediately. I've been able to touch gluten products and not break out, as long as I wash my hands right after. Now it's gotten to the point that all I have to do is come in contact with it and a rash or hives develops. It use to be just being sick after consuming it. I found out I have low blood pressure. My blood sugar levels are normal.

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GFinDC    609

I got sick from smelling a woman's perfume once. She must have used a whole bottle of the stuff.

OK, so if it is an allergy, you can get tested by an allergist.

Pretty sure I saw that neck swelling thing on Vampire Diaries once...

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I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

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squirmingitch    494

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Raising hands & jumping up & down here! Me, me, me, me, me --- where's my bubble? :lol:

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GFinDC    609

Hi Rebecca,

There is a rash associated with celiac disease called dermatitis herpetiformis (DH). There is section of the forum for DH with more info. So, yes, some people do get a rash from gluten.

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soyjoy318    0

I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Raising hands & jumping up & down here! Me, me, me, me, me --- where's my bubble? :lol:

Me too!! I definitely need a bubble!!

Been tested, and mine is gluten related! I've had to cut back on body washes and hair care products. I'm still learning...

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I am 100% off of gluten. I have made sure that I don't have any contact at all if I can help it. I still break out in these rashes. I don't know what could be causing it. The doctor says it's allergies. I am off gluten, chocolate, and anything with dyes or colors. It doesn't seem possible to live without breaking out in a rash. Sometimes I just wished I lived in a bubble. Does anyone else feel like that?

Yes! I do! Sometimes I wonder how on earth I can continue to live the rest of my life going through this kind of hell! They can send probes to Mars but they can't figure out how to cure an unbearably itchy, burning, prickling rash! What's THAT all about?! :-/

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mushroom    1,205

SoyJoy and Itch Be Gone, have you read the Dermatitis Herpetiformis thread through, and restricted your intake of Iodine? Many DH sufferers find that iodine really aggravates their rash.

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An immediate rash from touching gluten sounds more like an allergy than DH. I can touch gluten without a rash. I do gave itchy/swelling reactions to some topical items that may/may not contain gluten ....

So I have allergies to some things, but the rash I get is from eating gluten (unless I play in desert plants, but that's a different rash).

You can have both celiac/DH and a wheat allergy. You may need to start on an oral allergy med to feel "safe" in places like grocery stores, etc. and you need to see an allergist.

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squirmingitch    494

I sort of gave the wrong impression in my statement. Yes, I feel like living in a bubble but not b/c touching gluten affects me. It's because I've been having such a rough time with a dh flare & my skin is torn up from it. I feel like living in a bubble of perfect temp., moisture, & whatever it takes to not aggravate the dh.

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GFinDC    609

If you live in a bubble I get to poke you with a stick! Right ? Please, please.. :D

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squirmingitch    494

Awright gluten-free you can poke my bubble with a stick. Just beware of what you pop. It may explode all over you! :lol: :lol: :lol:

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Thanks everyone. What is iodine? I'm planning on talking to my doctor. It doesn't matter how much I shower or wash my face. My face, my neck, and my chest is always broke out in a rash. The last doctor I saw told me "you have an allergy"

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squirmingitch    494

Gluten fires up dh rashes; iodine fans the flames.

For a low iodine diet see:

http://www.thyca.org/rai.htm#diet

Of course you have to cut the gluten out of the low iodine diet.

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squirmingitch    494

If you think you have dh then many of us have to go low iodine to bring it under control. What I'm talking about is not an allergy to iodine but something that can make the dh flare or flare worse. So, technically, in this instance, NO, your doc can not test it like it's an allergy.

Hey, I am both gluten-free & low iodine ---- lots of foods I'm not eating. Lots of us do this. Sucks but the alternative sucks worse.

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cahill    189

Hey, I am both gluten-free & low iodine ---- lots of foods I'm not eating. Lots of us do this. Sucks but the alternative sucks worse.

true dat !

For those of us with thyroid issues and DH it becomes a wonderful <_< ( sarcasm ) balancing act

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