• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

First Time Poster
0

6 posts in this topic

Hi all,

I found this website a few days ago and am eternally grateful for the answers, help and sense of validation I now feel. I had never connected many of the symptoms I experience to gluten. I too thought I was a hypochondriac at one point. With that said; here's my story and my question.

I had been experiencing symptoms exactly like morning sickness for about two years and, after many pregnancy tests every month, I finally decided to go see a doctor. After being tested for everything under the sun and taking every ct scan available, ruling out lupus, MS, etc. etc. my doctor informed me my blood work showed I was allergic to wheat. Next step, a biopsy with the GI.

The next available appointment was a little more than a month away. I had eaten very little carbohydrates to begin with and with the prospect of having Celiac's Disease, began a gluten free diet (Oops). You see, I was never informed that for the test results to be valid there has to be gluten in your system. The test result came back negative.

I continue a gluten free diet regardless of the test results because my body feels better but my question is this; knowing what I know now, should I reintroduce gluten to my system and re-take the test? Is there an upside to having definitive results even if I have already changed my diet?

Thanks in advance for your help.

Kelly

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I am just curious, what blood tests did you have done that showed you had a wheat allergy? I also went gluten-free before my endoscopy so it came back neg, but had blood work done that indicated celiac. Do you feel better going gluten-free? I maybe wrong, but I think there maybe a difference from celiac and a wheat allergy, but I could be very wrong as I am new here, too.

0

Share this post


Link to post
Share on other sites

It is a reasonably common belief that celiac disease is an allergy to wheat, when it is in fact an autoimmune response where the body attacks itself, not the gluten. The OP may have had allergy testing, but I suspect that she had celiac testing. :)

0

Share this post


Link to post
Share on other sites

Hi Jen,

I am unsure as to the specific blood tests my family doctor conducted. I only know that the results he told me were: I am severly allergic to dust/dust mites and wheat. He told me to go to the GI doctor for the endoscopy. He seemed to think testing for Celiac's was the next logical step. I do feel much better when I am eating a gluten free diet but, who knows that could be attributed to simply eating more healthy.

Kelly

0

Share this post


Link to post
Share on other sites

I see this is a common question as another post addresses this exact issue. I'll lurk on that post :-) Thanks for the help.

0

Share this post


Link to post
Share on other sites
Ads by Google:


HI Kkenny,

You could go ahead and get endoscopy with biopsies for celiac testing. And get the celiac antibodies first. There isn't a whole lot of benefit to diagnosis for USA'ers right now. But you could be become of part of a statistic, whoop whoop! :) In the future maybe things will change though. Celiac clinical trials are one thing that usually require a biopsy confirmed diagnosis. If you need a diagnosis is reallyhup to each person to decide.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,760
    • Total Posts
      932,234
  • Member Statistics

    • Total Members
      64,222
    • Most Online
      3,093

    Newest Member
    Christory77
    Joined
  • Popular Now

  • Topics

  • Posts

    • So I'm new to all of this. I don't really have stomach issues other than occasional heartburn. Went to a gastro Dr and she took some blood samples. There's a test where the range is 0-19. I have no idea what it is called but mine was 62. She recommended an endoscopy and my anxiety has completely taken over. I'm terrified. I know nothing about this other than what came up when I googled celiac. What came up was a lot of scary this is what can happen to you results. I'm beyond afraid and do t know what to do. Reaching out for help. 
    • You have multiple problems, and may have several different diagnoses. I needed sinus surgery, and was referred to a teaching hospital University of Iowa. I had to jump through all of the surgeon's hoops by seeing specialists in other related departments. He told me, "Sometimes we think we are allergic to foods and we are not."  After being tested negative for those offensive foods, I figured out that I have histamine sensitivity to these foods. An appointment with the specialist in the Allergy and Immunology Dept confirmed it. I was told to eat a low histamine diet, and to avoid those foods that had been offensive, to keep a  food diary, and occasionally to challenge myself with a food I had not been able to eat. My father was diagnosed celiac from an intestinal biopsy. I had stopped eating wheat and oats, because they made me itch, etc. Other offensive foods to me are tomatoes, raspberries, strawberries, egg, banana, cantaloupe, mushroom, canned or not fresh fish. I have read to eat fresh food. Avoid bruised fruit. Even aged meat contains histamine. There are foods that contain histamine and foods that cause the release of histamine. No leftovers better. I don't eat dairy, because I have a reaction to yogurt. Any foods that are fermented contain histamine. Apples make me cough. It isn't fun eating this way, but until a solution is discovered, I must follow this low histamine diet. I am keeping a food diary. Vary your diet. Be positive. Be proactive. By the way, an oral histamine doesn't help. I don't know what does, but I take one capsule of Diamine oxidase (DAO) before eating, to tie up the histamine before it reaches my gut. You may want to read up on histamine sensitivity and a low histamine diet. Please ask for a referral to a large teaching hospital specialist. May I suggest you begin with Endocrinology Dept. They  will refer you to their other specialists concerning your symptoms. However, you will have your endocrinologist as your home specialist. He will coordinate your care. 
    • Thanks for the welcome. Endoscopy results came in the morning confirming Celiac, but they also found cells called Eosinophils which apparently has something to do with white blood cells. They want to do another scope in 8 weeks to see if they're still there.
    • Oh. Please get a referral to a large teaching hospital. The specialists there will give you answers.  Take care.
    • First, you are responding to an over 10 year old topic.  Ingredients change over time.   Second from your own link - they clearly state that they DO NOT contain wheat.     LifeSavers Mints Wint O Green - 41 Oz Bag 41 oz bag Wint O Green flavor   Availability: In Stock ITEM # 22734 $8.75 Buy 5 for $7.88 each and save 10%  ADD TO CART Compare | Wishlist MORE VIEWS   Individually wrapped fresh, smooth hard candies. Artificially flavored Available in your favorite mint flavor, Life Savers Wint O Green is refreshing and makes the perfect giveaway mint candy for your customers. Quantity per package: 41 oz bag, approximately 308 pieces. Shipping Weight: 3 lbs Nutrition Facts: Serving size is 4 pieces totaling 15 grams. 77 servings per container. 60 calories per serving size. 0 grams of fat, trans fat, saturated fat, cholesterol, fiber and protein. 15 grams of carbohydrates, 14 grams of sugar per serving and 0 milligrams of sodium. Ingredients: Sugar, Corn Syrup, Artificial Flavor, Stearic Acid Allergen Statement: Life Savers Wint O Green Mints do not contain milk, eggs, fish, crustacean shellfish, tree nuts, peanuts, wheat, and soybeans. Kosher Certification: These Life Savers are not kosher certified. Country of Origin: Life Savers Wint O Green Mints are manufactured in Mexico. These hard candies are distributed by The WM. Wrigley Jr. Company, Chicago, IL 60611.  
  • Upcoming Events