• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Trying To Figure Out What - If Anything - My Daughter Can Eat
0

13 posts in this topic

Recommended Posts

Nanhosen    0

My 2yo daughter was diagnosed via endoscopy about a month ago, and we immediately started a gluten-free diet with her. Unfortunately, there has been little, if any, improvement. After consulting with her GI doctor, we put her on an antibiotic to treat SIBO, but it didn't make any difference. The GI dr's next recommmendation is to cut sugar out of her diet, and see if that helps. So, here is my main question:

1. Has anybody here seen a dramatic difference after cutting out sugar? If so, how strict were you about sugar. For example, did you eat fruit?

After doing a bit of research (and reading WAY too many webpages full of unsubstantianted claims) I am becoming totally overwhelmed. The more I read, the more it seems like virturally every food out there is problematic! She's already dairy free, but from what I read, even non-gluten containing grains, like corn and quinoa can cause problems for celiacs. I'm considering putting her on a paleo diet for a few weeks, and see if there is any improvement. I'm wondering if anybody has had any success with paleo diets?

Thanks!!

Nanette

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


shadowicewolf    166

As of right now, i'd stick with a whole foods diet. Nothing that has been packaged and processed (such as chex cereal).

Do not assume that what some celiacs go through is what all do. A lot of us can handle corn and quinoa just fine, while a smaller majority cannot. What you read on the 'net can drive you mad.

Its only been a month. It can take up to two years for any damage to heal.

Share this post


Link to post
Share on other sites
StephanieL    74

My DS was gluten free for 3 months with no real improvement. I put him on a really good probiotic and within 3 day he had the first normal 1poops of his 3.5 years.

Maybe try a probiotic?? Good luck. It's so tough to figure things out.

Share this post


Link to post
Share on other sites
GFinDC    609

Hi Nanette,

Sometimes the damage to the gut can lead to an overgrowth of bacteria, which produce gas and discomfort. When the gut is already damaged, blowing it up like a balloon can hurt. So why avoid sugar? Because sugar and starches are bacteria fuel and lead to lots of bacterial growth and gut inflation. Starches are just as bad as sugar usually, as they are converted to sugars in the gut. Also with a damaged gut, the enzymes needed to digest and breakdown the sugars may not be produced, and that means they are all bacteria food.

You will see a wide range of food intolerances listed on this forum. We all have our body, and our bodies react to foods that they react to. We all don't have the same food intolerances, they vary by person. Except for gluten of course.

The best way to start gluten-free is to eat whole foods that are made from scratch at home. Dairy is often a problem as the villi damage prevents the production of lactase enzyme that digests dairy sugar (lactose). That lactose intolerance sometimes goes away after some months of healing go by. A simple diet of simple whole foods is easiest to understand and troubleshoot. Lots of processed foods have 7 or more ingredients and that is just one package of food. Multiply that by however many processed foods she would eat in a day and you can see t gets complicated quickly trying to pin point one problem food or ingredient. A food and symptom diary is also helpful to detect problem foods.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

Helpful threads:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...reakfast-today/

Share this post


Link to post
Share on other sites
Ads by Google:


tarnalberry    314

Honestly, I'd be cautious going to a paleo diet. Certainly a full one. Kids, more so the younger they are, need more carbohydrates than adults do. At two years old, her digestive system is still maturing, and she needs more foods that are more easily directly converted to energy.

I would certainly focus on making sure cross-contamination is not a problem. This includes:

- checking on play-doh in preschool (most commercial and homemade recipes contain wheat) or other things (pasta in a sensory table, etc.)

- eliminating shared toasters, cutting boards, or colanders used for pasta

- for now, eliminating commercial, prepackaged foods as much as possible

- cross contamination from friends/family during playdates and get togethers

Eliminating dairy is a good start, but if you've replaced cow milk with soy, that could be causing trouble. A probiotic can be a good idea too (and Nature's Way, iirc, has a pretty good powdered kids one that we like to use). And maybe cutting out added sugar would be good as well.

But be cautious about cutting out *all* sources of easily processed carbohydrates.

Share this post


Link to post
Share on other sites
Denine    1

I am in the same boat. My 10 yo daughter was just diagnosed 2 weeks ago. Her main symptom was extreme abdominal pain. She has been gluten-free for 2 weeks, Dairy and soy free for 1 week since we found out she was intolerant to those as well. Her pain has not changed at all. It is still a 9 out of 10 on the pain scale. I put her on a very bland diet as of Friday. Still no change, but I hope something will help soon. I have her on a probiotic, but I have no idea if it is helping. I know she most likely has a few years worth of damage to her gut, so it will take time. It is just so hard seeing her in this much pain all the time. It has been over 9 weeks of this pain.

I am extremely careful about cross contamination. I read labels like they are on the best seller list, LOL! I cook from scratch.

I hope you find answers soon.

Share this post


Link to post
Share on other sites


Ads by Google:


Nanhosen    0

Just out of curiosity how was your daughter tested for SIBO. I might want my daughter tested too.

She wasn't tested for it; I don't know if there's a test? Her GI doctor had her take 2 different antibiotics to see if they cleared up the problem, which they didn't. From what he told me, if the antibiotic had worked, then we could assume that SIBO was the problem.

Share this post


Link to post
Share on other sites
Nanhosen    0

Thanks so much everybody for your input! She recently was on a round of Alinea, an antibiotic. While she was on it she started having regular stool, but then as soon as she was done with the 3 days, her stool went back to it's mucousy nastiness. She's now scheduled to have a colonoscopy in a few weeks to see if she might have ulcerative colitis.

Share this post


Link to post
Share on other sites
Nanhosen    0

I am in the same boat. My 10 yo daughter was just diagnosed 2 weeks ago. Her main symptom was extreme abdominal pain. She has been gluten-free for 2 weeks, Dairy and soy free for 1 week since we found out she was intolerant to those as well. Her pain has not changed at all. It is still a 9 out of 10 on the pain scale. I put her on a very bland diet as of Friday. Still no change, but I hope something will help soon. I have her on a probiotic, but I have no idea if it is helping. I know she most likely has a few years worth of damage to her gut, so it will take time. It is just so hard seeing her in this much pain all the time. It has been over 9 weeks of this pain.

I am extremely careful about cross contamination. I read labels like they are on the best seller list, LOL! I cook from scratch.

I hope you find answers soon.

Oh, I so agree about watching the pain. It is so frustrating for me to see my daughter in so much pain, and not have a real solution! Good luck with everything!

Share this post


Link to post
Share on other sites


Ads by Google:


mushroom    1,205

If she has been on two courses of antibiotics she probably needs some good probiotics to restore the good flora in her gut.  You can get them in powder form for children.

Share this post


Link to post
Share on other sites
Nanhosen    0

If she has been on two courses of antibiotics she probably needs some good probiotics to restore the good flora in her gut.  You can get them in powder form for children.

Mushroom, that's funny; I was just researching probiotics. I found this article to be pretty interesting for recommending which types of strands might be beneficial. http://www.parents.com/toddlers-preschoolers/feeding/healthy-eating/probiotics-the-friendly-bacteria/?page=4

Thanks for the suggestion!

Share this post


Link to post
Share on other sites
mushroom    1,205

Mushroom, that's funny; I was just researching probiotics. I found this article to be pretty interesting for recommending which types of strands might be beneficial. http://www.parents.com/toddlers-preschoolers/feeding/healthy-eating/probiotics-the-friendly-bacteria/?page=4

Thanks for the suggestion!

 

:)

 

I personally have taken VSL#3 and highly recommend it (although it is expensive).  I took it in its powdered form but I don't think it makes much difference.  Other posters have also recommended Align.  I hope it makes a difference for your daughter and that she is soon feeling better.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,861
    • Total Posts
      938,367
  • Member Statistics

    • Total Members
      65,759
    • Most Online
      3,093

    Newest Member
    james burridge
    Joined
  • Popular Now

  • Topics

  • Posts

    • Ok so is this really true?!?! Conventional? Remember, the fecal transplant was first described in the 1950s, but took decades to catch on as a conventional treatment for gut disorders, such as c-dif bacteria, partly because it was seen as crude and somehow objectionable. But it proved to work. Really well. So much so that it's now a fairly conventional treatment.
    • You are super sweet. I'm sorry your extended family isn't great about get togethers and cards. My family is the same. Once my parents died I don't have anyone who really cares about me except for my husband and kids. My parents started getting really weird about stuff as they got older, and my sisters are way older than me and we didn't grow up together, so we aren't close at all. In fact one sister hates me. They didn't even come to our parents funerals. Families pretty much suck so you gotta appreciate whatever you can put together for a support system. I come here every day looking for a smile or laugh, an encouraging word, or an opportunity to give advice. You guys are definitely part of my extended family   for what it's worth I would be up for secret santa.
    • Wow everyone my memory lane stuff just keeps popping up on this forum!!!! Thanks for sharing the post op and Audrey the pic. I had what looked like this on my inner left ankle in my late 20's!  It never got diagnosed at the time. I was seeing Dr's at time early pregnancy and then missed miscarriage.  dr's I had at the time I asked didn't know what it was. Period of time I had some of the worst headaches of my life etc. I didn't know if I had been bitten by a spider (brown recluse not in my area though) , the miscarriage, or picked up something from the hospital during my follow up miscarriage stuff-stirrup /ankle. I don't have a pic of it to share. Dr's didn't know, my mom a nurse didn't know , that left my husband who is a bit more holistic based and helped me on healing it  at home. I am really shocked to see see posts and all too often say wow! That's my .... from whatever decade  I'm newly recognized/diagnosed too so this was 15 years ago! wow if any one has any active pg I wish you comfort and swift healing . Been there but didn't have the puzzle piece until you gave it to me now. so many puzzle pieces....finally .....start making an image since I joined this forum.    
    • I can guarantee you that once you get your weight back up to normal, your period will come back.  You sound really malnourished and if your weight gets too low, your periods will stop.  Don't panic.......I was down to about 92-94 pounds at diagnosis so you will be able to heal if you do the diet correctly and don't cheat. Once you start to feel better and your other problems are under control , you will find it easy to stick to the diet. Nothing beats health!  Good luck to you!
    • As the other's have stated, you most certainly can go on to have additional AI diseases whether or not you are Celiac or NCGS.  Many AI diseases can be figured out without mainstream testing, as you know from your severe symptoms of Sjogren's.  I also have Sjogren's and knew that I did without any doubt because of the severity of my symptoms.  I was later tested with a new PCP and yes, they confirmed what I already knew.  Have you had the blood work for Sjogren's?  Not that it matters because you already know. As Sjogren's really has no treatment other than treating the symptoms, having a confirmed diagnosis doesn't always matter.  Just see the doctors you need to see for the specific problems you have stemming from it and that's all you can really do.  So far, it has worked for me.
  • Upcoming Events