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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Smylinacha

I Feel Way Better And Do Not Want To Get Sick Again For A Blood Test

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Hi Everyone,

The last couple of weeks have been a huge change for me except for two days where I didn't feel well. The only thing I miss is pizza and I don't like the gluten free pizza that much.

Since my last visit to the gastro, I have been eating all gluten free. I eat yogurt and fresh fruit for breakfast, either a salad with balsamic vinegar and olive oil or a tuna sandwich on gluten free bread for lunch, gluten free rice cakes or veggie dip with gluten free crackers for snacks and I cut out all the beer and drink Angry Orchard hard cider for a cocktail when home from work. For dinner it's plain meat, chicken, fish or pork, fresh veggie and either gluten free pasta or a sweet potatoe. I feel awesome!

I called the gastro to let her know and she told me I need to eat gluten again to do the bloodwork and have an endoscopy. Problem is - I really don't want to get sick. It's horrible! Like all of you - the stomach pains, pressure, brain fog, constipation/diareah, bloating, rashes, headaches - is it worth it? If I know I feel better then why torture myself?

I am noticing that one food is bothering me and I thought it was supposed to be gluten free - it's those Nature Valley Protein chewy bars - the ones that are peanut, almond and dark chocolate. My store lists them as gluten free and the day I ate one after lunch, I bloated up by evening time. Has anyone else had trouble with this product? Also I ate 2 small spoonsfuls of peanut butter - natural peanut butter that my store also had listed as gluten free. Could I be having a problem with nuts? Is this common with celiac or gluten intolerance?

Also I lost a bunch of weight this last year - how soon will it take to gain back, if my body responds well to a gluten free diet? I don't exercise much anymore and I have a desk job at work. Afraid to exercise because I don't want to burn the calories and lose any more weight?

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I've heard that those bars are not gluten free. Be it from cross contamination (shared lines) or an actual ingredient. Did they have oats in them as well? Because unless they're certified gluten free, then they're CC'd.

As for the peanut butter, i'ma massive fan of it. Never had a problem with it here.

I'm thinking you had the issue with the bars.

Nevermind found these http://www.natureval...atePeanutAlmond They have barely malt in them, as well as a wheat warning label. :(

Edited by shadowicewolf

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I called the gastro to let her know and she told me I need to eat gluten again to do the bloodwork and have an endoscopy. Problem is - I really don't want to get sick. It's horrible! Like all of you - the stomach pains, pressure, brain fog, constipation/diareah, bloating, rashes, headaches - is it worth it? If I know I feel better then why torture myself?

You do not have to do anything with regards to a formal diagnosis if you feel better and can stick to the diet based on what you have done already. If you do not wish to eat gluten again, tell your doc you have nixed that idea. I wouldn't eat gluten again either...not for anything!

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I was the same way with not wanting to feel awful again. My Dr. completely agreed. He saw my liver enzymes go from the mid 200's to 27 in 11 days of gluten free eating. He said that was enough for him to believe it was celiac (after first saying he didn't think it was, before the blood tests came back :) ) Anyway, in the last two months I've had severe bronchitis, pleurisy, and a serious concussion. He said he did not want my body to go thru anymore trauma when the blood tests were so profound. I am just fine with that!!

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That is another thing....my liver enzymes were up and I couldn't figure out why. Today still feel a bit yucky...stomach rumbling bad, very gassy. I was OK yesterday until last night when I had split pea soup.... Major gas. Woke up better this morning and had a yogurt and orange juice with protein shake mix in it.....no wheat but then the rumblings came back with a vengeance along with the gas. Been on the couch with a heating pad and eating Tums. Not sure what did it this time. :(

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Perhaps (if your doctor allows it) go ahead with blood tests anyway so you can have a baseline, especially if you have problems in the future? If you have only been gluten-free a couple of weeks, I believe assume results (of bloodwork as well as of endoscopy) could still be meaningful anyway. Everyone heals at a different rate, but neither intestinal damage nor antibodies get better instantly (I'm sad to say).

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Unfortunately she said no to the blood work and endo until I gluten up for at least a month. Today has been good.....don't want to go back to pain.

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i know the peanut butter granola bars my husband purchases give me major stomach bloating. i can't tolerate them at all. i didn't want to eat gluten again either after i started to feel better for my bloodtest, but i got the tests done anyway. everything came back normal. i'm just sticking with what makes me feel well.

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Was doing some reading on the Pale diet. Problem is, I need to gain weight back....not lose it. But I can see the point of laying off processed foods most of the day and indulging in some gluten free goodies for snacks. Felt good today....had 2 eggs over with gluten free toast, coffee and orange juice. Lunch was a yoplait strawberry/banana yogurt, snack ed on some gluten free Snyder corn chips with some gluten free Tostitos spinach dip. Had an Angry Orchard hard cider (I still am crying over not having my 1 beer....didn't like the gluten free ones after being used to dark rich micro brews). Dinner was steak seasoned with cracked black pepper and sea salt, a buttered sweet potato and baked zuchinni squash. Desert was 2 gluten free rice cakes...caramel flavor. I think I did good.....need to gain weight, whereas before all I ate was pasta and junk food and felt ill all the time. Diet is not that hard to follow but I miss beer, pizza and toll house cookies. I have to research some recipes for pizza and cookies:)

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