• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Dh Always Itch?
0

11 posts in this topic

I've had spots that appear mostly on my hands, wrists, and arms for about 6-7 years now. I've also had them show up on my legs, tops of feet, my lip, elbows and occasionally my back. I always thought it was eczema or psoriasis, but am now wondering. The spots usually present as small, round dry spots that will grow in size but are typically barely raised. Generally, they don't itch much, are just very dry and rough. Occasionally, these areas will itch like crazy for a day or two, but then go back to just being a nuisance and quite unsightly. They are usually pink and dry, but sometimes will turn into a "lesion." When they are itchy, they are bright red/maroon. I never get the blisters that are typical of DH. My spots will last for months, and once they are gone the skin is white. Hence, I have lots of white spots up and down my arms. Biopsy of a spot on my leg was inconclusive, but doc said her gut feeling was that it's the early stages of psoriasis, that it can sometimes take years to fully develop. I've seen pics here that look very similar to mine, so now I wonder if I should have had it tested for DH (I know this must be done on clear skin adjacent to a lesion). But because it doesn't constantly itch, I also wonder if could be DH??

I have one area that I know has to be DH. It's at the top of my butt and tingles/itches before an eruption. While it's active, it itches like crazy, but can be tender if scratched or rubbed. It's always in the same place. If it rears its ugly head again, I will definitely call to have a biopsy done immediately.

Thank you for any thoughts.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

I have been gluten free for over 3 years. I still have a very small amount of lesions on my back and butt . They only itch to the maddening degree they used too if I get glutened or consume to much iodine .But I always can feel them .

0

Share this post


Link to post
Share on other sites

Mine only itched to the point of insanity while I was still consuming gluten. Once I stopped, it's like an itch that's constantly there in the background but not an acute, insatiable itch.

0

Share this post


Link to post
Share on other sites

Mine only itched to the point of insanity while I was still consuming gluten. Once I stopped, it's like an itch that's constantly there in the background but not an acute, insatiable itch.

You described it very well . I sure dont miss that madding want to rip your skin off itch at all

' shudders even thinking of it ' :ph34r:

0

Share this post


Link to post
Share on other sites

About 15 years ago, I developed an unbearably itchy rash over most of my body, that lasted almost a year. Thankfully, it eventually cleared up but after that, I would, from time-to-time, develop itchy patches and also experience major flare-ups 2 or 3 times a year that would last about a month or so. Last August, I developed a horrible, prickly, burning rash over large parts of my body that lasted 4 months (until December). After eating a muffin one day and experiencing a major flare-up shortly afterwards, I decided to go on a strict gluten-free diet. Within a week, I was almost rash-free! What a gift to be free of that horrible itch and to have soft, clear skin once more! But sadly, my joy was short-lived! For the last 3 weeks, I have been struggling with extremely itchy patches on my arms, hips, back and face - strangely, the rash always seems to return in the same places on my body. I had a biopsy done, which came back stating that the results were consistent with an allergy to medication! I was not taking any medication! No blood tests or any other tests have been done - the dermatologist and my family doctor did not seem to feel that it was necessary. The fact that the rash cleared up so quickly after eliminating gluten completely from my diet (I am hugely vigilant about this) suggests to me that I have a sensitivity to gluten. In addition, my digestion seems to have improved (very little bloating, gas, and constipation now), I have more energy, and I am experiencing much less joint stiffness and pain. But, why oh why, am I experiencing this dreadful rash again?! Thankfully, although it is still bumpy and very itchy, it does not seem to be as extensive (at least, not yet) as it was back in the fall! But, the mysterious rash continues to be very uncomfortable and, at times, I feel as if I am unable to cope. It is certainly a dreadful thing to have to live with, that is for sure! I am wondering if there is anything else I can do. Would taking a probiotic help? When people are sensitive to gluten, might there be other related foods that could also trigger attacks? If anyone has any suggestions, I would be very grateful.

0

Share this post


Link to post
Share on other sites
Ads by Google:


About 15 years ago, I developed an unbearably itchy rash over most of my body, that lasted almost a year. Thankfully, it eventually cleared up but after that, I would, from time-to-time, develop itchy patches and also experience major flare-ups 2 or 3 times a year that would last about a month or so. Last August, I developed a horrible, prickly, burning rash over large parts of my body that lasted 4 months (until December). After eating a muffin one day and experiencing a major flare-up shortly afterwards, I decided to go on a strict gluten-free diet. Within a week, I was almost rash-free! What a gift to be free of that horrible itch and to have soft, clear skin once more! But sadly, my joy was short-lived! For the last 3 weeks, I have been struggling with extremely itchy patches on my arms, hips, back and face - strangely, the rash always seems to return in the same places on my body. I had a biopsy done, which came back stating that the results were consistent with an allergy to medication! I was not taking any medication! No blood tests or any other tests have been done - the dermatologist and my family doctor did not seem to feel that it was necessary. The fact that the rash cleared up so quickly after eliminating gluten completely from my diet (I am hugely vigilant about this) suggests to me that I have a sensitivity to gluten. In addition, my digestion seems to have improved (very little bloating, gas, and constipation now), I have more energy, and I am experiencing much less joint stiffness and pain. But, why oh why, am I experiencing this dreadful rash again?! Thankfully, although it is still bumpy and very itchy, it does not seem to be as extensive (at least, not yet) as it was back in the fall! But, the mysterious rash continues to be very uncomfortable and, at times, I feel as if I am unable to cope. It is certainly a dreadful thing to have to live with, that is for sure! I am wondering if there is anything else I can do. Would taking a probiotic help? When people are sensitive to gluten, might there be other related foods that could also trigger attacks? If anyone has any suggestions, I would be very grateful.

I have to extremely careful about the amount of iodine I consume.

0

Share this post


Link to post
Share on other sites

I have to extremely careful about the amount of iodine I consume.

Thank you. I will do check this out. Really appreciate your suggestion.

0

Share this post


Link to post
Share on other sites

I'd say if you don't have the itch, sting and burning (like being in a nettle patch) the rash isn't DH.  It also presents on both sides of the body.  It's weird but true.

 

You may want to consider the breakout at the tailbone area could be Shingles.  My doctor told me that if the nerves in that area are inflamed, Shingles can pop out.  I usually had Shingles run along my sciatica nerve (on thigh) but I first broke out at the tailbone area.

0

Share this post


Link to post
Share on other sites

About 15 years ago, I developed an unbearably itchy rash over most of my body, that lasted almost a year. Thankfully, it eventually cleared up but after that, I would, from time-to-time, develop itchy patches and also experience major flare-ups 2 or 3 times a year that would last about a month or so. Last August, I developed a horrible, prickly, burning rash over large parts of my body that lasted 4 months (until December). After eating a muffin one day and experiencing a major flare-up shortly afterwards, I decided to go on a strict gluten-free diet. Within a week, I was almost rash-free! What a gift to be free of that horrible itch and to have soft, clear skin once more! But sadly, my joy was short-lived! For the last 3 weeks, I have been struggling with extremely itchy patches on my arms, hips, back and face - strangely, the rash always seems to return in the same places on my body. I had a biopsy done, which came back stating that the results were consistent with an allergy to medication! I was not taking any medication! No blood tests or any other tests have been done - the dermatologist and my family doctor did not seem to feel that it was necessary. The fact that the rash cleared up so quickly after eliminating gluten completely from my diet (I am hugely vigilant about this) suggests to me that I have a sensitivity to gluten. In addition, my digestion seems to have improved (very little bloating, gas, and constipation now), I have more energy, and I am experiencing much less joint stiffness and pain. But, why oh why, am I experiencing this dreadful rash again?! Thankfully, although it is still bumpy and very itchy, it does not seem to be as extensive (at least, not yet) as it was back in the fall! But, the mysterious rash continues to be very uncomfortable and, at times, I feel as if I am unable to cope. It is certainly a dreadful thing to have to live with, that is for sure! I am wondering if there is anything else I can do. Would taking a probiotic help? When people are sensitive to gluten, might there be other related foods that could also trigger attacks? If anyone has any suggestions, I would be very grateful.

0

Share this post


Link to post
Share on other sites

I have been gluten free for 2 1/2 years. I still have DH outbreaks but they are not as severe as they used to be.  I am very sensitive to iodine. It will cause an outbreak within hours. I used to break out all over but now it seems to be confined to my arms and across my shoulders and back and on my buttocks but in a much smaller area than it used to.  I was one of those who seemed to improve immediately and couldn't figure out why I would have major breakouts for no apparent reason.  I believe  I have had this build up under my skin for so many years that it will take many years to get rid of it.  I had skin issues, allergies as a child & I am now 60 yrs old. I also had the migraines, joint issues, asthma, seasonal allergies, etc for all these years. I so look forward to the day that I do not itch.  Don't give up hope, for some of us it just takes longer.

0

Share this post


Link to post
Share on other sites

About 15 years ago, I developed an unbearably itchy rash over most of my body, that lasted almost a year. Thankfully, it eventually cleared up but after that, I would, from time-to-time, develop itchy patches and also experience major flare-ups 2 or 3 times a year that would last about a month or so. Last August, I developed a horrible, prickly, burning rash over large parts of my body that lasted 4 months (until December). After eating a muffin one day and experiencing a major flare-up shortly afterwards, I decided to go on a strict gluten-free diet. Within a week, I was almost rash-free! What a gift to be free of that horrible itch and to have soft, clear skin once more! But sadly, my joy was short-lived! For the last 3 weeks, I have been struggling with extremely itchy patches on my arms, hips, back and face - strangely, the rash always seems to return in the same places on my body. I had a biopsy done, which came back stating that the results were consistent with an allergy to medication! I was not taking any medication! No blood tests or any other tests have been done - the dermatologist and my family doctor did not seem to feel that it was necessary. The fact that the rash cleared up so quickly after eliminating gluten completely from my diet (I am hugely vigilant about this) suggests to me that I have a sensitivity to gluten. In addition, my digestion seems to have improved (very little bloating, gas, and constipation now), I have more energy, and I am experiencing much less joint stiffness and pain. But, why oh why, am I experiencing this dreadful rash again?! Thankfully, although it is still bumpy and very itchy, it does not seem to be as extensive (at least, not yet) as it was back in the fall! But, the mysterious rash continues to be very uncomfortable and, at times, I feel as if I am unable to cope. It is certainly a dreadful thing to have to live with, that is for sure! I am wondering if there is anything else I can do. Would taking a probiotic help? When people are sensitive to gluten, might there be other related foods that could also trigger attacks? If anyone has any suggestions, I would be very grateful.

I was diagnosed with DH before Celiacs and suffered from the skin rash for 5 years before being diagnosed.  Even after switching to a gluten free diet, the rash persisted.  My dermatologist suggested going on Dapsone and within hours of my first dose, the itching began to subside.  This May, I will have been on Dapsone for one year and it has been my saving grace from itching and the awful blisters. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,149
    • Total Posts
      929,183
  • Member Statistics

    • Total Members
      63,563
    • Most Online
      3,093

    Newest Member
    Dawne A. Moore
    Joined
  • Popular Now

  • Topics

  • Posts

    • DGP can absolutely be false positive. Google will not tell you that but I have found multiple studies in journals showing this and have also been told this by two different celiac clinics. I myself test positive to DGP when the assay is ran one way and negative to it when run another way. It is only a matter of time before the rest of Google University stops claiming it is overwhelmingly accurate. The test is young, toughly 10-12 years.  How many biopsies were taken? Do you have the report? Is there any inflammation at all in the small intestine? Did you have the gene test? If you still feel sick after some time on the gluten-free diet your health issues might not be gluten related. You might want to consider other diagnoses.  As for taking precautions in the interim, I am so sorry. My brother is celiac and they have a gluten-free house. When I was trying to see if cc was keeping me sick, I stopped even cooking at my boyfriend's and asked before even kissing him. Pretty sure he thought it was nuts too but he kept his mouth shut. This life can be extremely restrictive and more frustrating if you are still sick without an official diagnosis. Cycling lady suggested that I try a plastic bin with my own pans, spoons, that I could tuck away from people. That might work for you.  Good luck! I hope you feel better soon and I wish your family was more supportive. 
    • Please have your doctor check this out. It could be splinter hemmorage but it also could be cancer. While chances are it isn't anything dire it is best not to take any chances.
    • I think a lot of us can identify with his symptoms. The pattern you are seeing on his skin is likely something called livedo reticularis. In myself it seems to be related to inflammation. Before diagnosis the only thing that would alleviate this for me was an acupuncture session. it would be gone for a couple hours then reappear. I think it is associated with inflammation.  Mine reappears if I am glutened or very cold. You mention he had routine labs. Did they do a celiac panel?  he may want to ask at his local hospital if they have a fund for folks without insurance. While my local hospital didn't cover doctors visits they did cover any lab tests and if they don't cover in full they may have a sliding fee scale. the other option is to have him go gluten free but it is best to try and get a diagnosis before deleting gluten if possible. It might be helpful for him to come here if he is willing.
    • Celiac is genetic. That is why it is advised that all first degree relatives of folks diagnosed get tested before they go gluten free. If you have other family members who haven't been tested it would be best to have them blood tested before they go gluten free. You may want to consider going back to eating gluten for a bit so you can be tested.
    • On the extreme end of the gluten-sensitive spectrum are those with Celiac disease. Individuals with this condition must live gluten-free or they suffer ... View the full article
  • Upcoming Events