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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

What Would You Do?
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5 posts in this topic

We are 3 weeks in to going gluten free here. Did it all the wrong way...but to make a long story short- there is NO way I want to put my kids back on gluten now for testing. But, my 5 year old has had a rash for 2 years on his bottom. It bleeds sometimes. Looks like zits. It completely went away after 3 days gluten-free. I tested him 2 days ago and gave him goldfish. the rash was back and bleeding the next morning! 30 hours later after no gluten. it is completely gone!! Now, how do I go about getting him tested for celiac without giving him gluten for months???

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You can't? He'd have to be on it for a several weeks (i've heard anywhere from 2-6 weeks, longer the better) just for the testing to come back accurately. The only test that does not require this is the genetics test but generally that alone is not enough for a diagnosis.

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Even for the skin biopsy he has to be eating a full gluten diet. You could try giving him gluten for a week & get the dh biopsy & if it's neg. you can be pretty sure it was false neg. but there's the off chance that it will be positive.

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although if you had a sympathetic doctor, the genetics test and your own observations may be enough for a diagnosis?? Ahh, I don't know. It really is a dilemma. But if it was me, I probably would continue the gluten. It's such a lifestyle change and particularly hard with children. I personally would need the formal diagnosis behind me. BUT that is only me. I guess it depends somewhat on how you feel like you will go later on.

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I would just go with your gut and the positive results he has had. You don't need an official diagnosis to eat a certain way. I'm glad that your kids are doing better! Thats the most important part.

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