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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Fatigue?
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I was diagnosed with celiac six months ago, and have been on the gluten free diet ever since. It’s definitely been a bumpy ride, and for the most part, I’m feeling much better-- with the exception that I am often tired. I thought going gluten free was supposed to give you more energy?

I eat well, not many processed foods, lots of protein, and have ruled out other intolerances. My vitamins are all good.

In addition to being tired, my metabolism has changed a lot and I have to eat a lot more than I used to to stay full, and I get hungry much more often. When I exercise, if I burn too many calories, I get exhausted and have to spend the whole next day eating to make up for it.

Does anyone have any experience with fatigue/changes in metabolism after being diagnosed? Doctor says I look fine, but I’m not sure if this is part of the recovery process or not.

Thanks!

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nvsmom    332

My fatigue was not helped when I went gluten-free, but I found out I had hypothyroidism and that kept my energy lower than most. Could that be affecting you too?

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funkflex    0

When I exercise, if I burn too many calories, I get exhausted and have to spend the whole next day eating to make up for it.

Does anyone have any experience with fatigue/changes in metabolism after being diagnosed? Doctor says I look fine, but I’m not sure if this is part of the recovery process or not.

Do you eat carbs? If you eat only proteins you'll have less energy. That said, I'm 3,5 months on GFD and I also feel fatigued the day after exercise. Maybe you're just not 100 percent recovered yet?

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I know what you're talking about. The need for more calories after working out is normal; however, it's either exaggerated for AI people or a part of the adrenals being off...

I know I have adrenal problems, not just because I'm AI (celiac, Hashimotos, endometriosis) but because I had very sudden onset of problems after undergoing steroid treatment for DH.

My doctor discussed exercise with me. Yes, I need it. Yes, it helps me feel 100% better. But I walk a fine line between enough/too much. She told me no more than every other day, or not to exceed what made me "not tired the next day". And it is a fine line.

The hungriness for me is part of the adrenal issue. And sadly enough, to support adrenals you need to eat often enough not to get really hungry. Talk about catch 22.

Anyway, after the first few months, the exhaustion and constant need for food abated; however, I also had to learn how much workout was too much. In the beginning, I really did overdo it.

It is very frustrating to feel so limited. But your stamina will improve.

Just eat on a regular schedule. Lots of veggies with protein. Minimal sugar. Workout and rest, find your fine line.

Exhaustion immediately after going gluten-free is normal, too. No one knows why, really. Just a part of healing? Sometimes it's a type of withdrawal. Personally, I think of it as a body taking a big sigh and resting. It passes.

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