• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

6-Month Follow Up Test Results
0

4 posts in this topic

Recommended Posts

rami    2

We just received the 6-month follow-up bloodwork results for my 8.5 year old son and I must say I am so relieved because they are normal. He was diagnosed via bloodwork and intestinal biopsy in August 2012, and at the time his TTG IGA was 66 (ref range <=19), his TTG IGG was 14 (which was a high normal, ref range <=19), and his total IGA was 143 (ref range 29-162). Recent bloodwork revealed that his TTG IGA is now 5, his TTG IGG is also 5 and his total IGA is 142. This is such a relief to my husband and I because his only truly noticeable symptom has been lack of growth and although we are extremely diligent about cross-contamination and following the gluten-free framework we had no way of knowing if what we were doing was working!

While we received the bloodwork results, we have his actual follow-up appointment with the GI next Wednesday so I have a million questions that haven't been answered. Can I assume that since his results are normal that his intestines are healed? Does he need a follow up biopsy to confirm? Does anyone know if the bloodwork results are cumulative over a specific time period or are they more indicative of recent changes?

He has yet to show significant growth, but he was also diagnosed with growth hormone deficiency in November and started growth hormone therapy about three weeks ago. I am hoping that we will see a significant growth spurt now that it appears we are on track with the gluten-free diet. Also, my husband and I virtually banned most processed items that we knew did not have gluten ingredients but were processed on shared equipment, would it be safe to try to incorporate some of these items into his diet to gauge his reaction? There are a few things that he really misses, such as a basil pesto tilapia that we found at Costco that didn't have gluten ingredients but was processed on lines with breaded fish. We have a shared household and while he has his own separate toaster, colander, and utensils, and all of our dinners are completely gluten free can I assume that he is not super sensitive to gluten (or should I make no assumptions)?

Any other specific items I should be sure to ask his GI doctor at his appointment?

I should also mention that his iron and calcium were checked in August and they were both normal and the doctor ordered a check of his Vitamin D when the current celiac panel was ordered and it was also normal although a low normal. It was 24 (ref range 20-100). He currently takes two gummy vites a day and two omega 3 fish oil gummies a day as well.

Thanks so much for your knowledge and support, while I do not post often, I do read many of the posts in this forum and the wealth of information available has made this journey more tolerable! :D

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I believe the normal blood tests mean that no autoimmune reaction is happening . . . not necessarily that everything has healed. My son took a full year to have normal blood results. The doctor was not overly concerned - she said it is different for everyone. We just went in for our 2 year check-up and his numbers are still good. She did run tests for vitamin deficiencies and thyroid problems but there was no mention of repeating the biopsy. I imagine if he is still not growing they might want to check again? My guy shot up 3 inches in the first month of being gluten free.

Strangely, my son was still having symptoms even though we were super careful. (no eating out, no processed food, etc.) Over a year we were still trying to figure out what we were doing wrong. He still felt sick, had joint pain, no energy. When his 1 year blood tests came back normal, we started looking elsewhere. Turns out the poor kid had Lyme Disease! Now that it has been treated, we are wondering if we need to be as careful as we have been. The doctor said, be a careful as you NEED to be . . . it is easy for us to experiment because he gets a stomach ache fairly quickly after being exposed. Not sure how you would tell if your child does not have many symptoms.

Cara

Share this post


Link to post
Share on other sites
kvanrens1    1

Wonderful news about the test results. My daughter grew around 4 inches on her first year of growth hormone injections and this was prior to going gluten free.

Kristy

Share this post


Link to post
Share on other sites
Mom-of-Two    7

My daughter had her 6 month follow up a few days ago! Her ttg went from 78 to 10 (<20 is negative), she tested negative on endomysial antibody (she was 4 times positive 6 months ago), her vitamin D was low 6 months ago at 27 and is now 52! She has gained 6 lbs total, but only about an inch (her growth was not affected though before). Joint pain gone.

I would raise the amount of viamin D you are giving- 24 is low! Ideal is 50-60. I give my 8.5 year old 2000 units a day and her levels are now beautiful.

Glad to hear great news!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,874
    • Total Posts
      938,425
  • Member Statistics

    • Total Members
      65,773
    • Most Online
      3,093

    Newest Member
    nicorinse
    Joined
  • Popular Now

  • Topics

  • Posts

    • ennis how do you test for Candida overgrowth did I have to see a functional doctor or do medical doctors test. It would seem like a plausible  explanation to my symptoms. 
    • Hello everyone.    Ive been diagnosed with celiac for about 4 years now. It's been a rough road but I feel like I've gotten as good as I can get with eliminating gluten completely from my diet.    I am an undergraduate student with a driven passion to become a nurse (I'm a guy, I know). I love the field and can't wait to help people every day.   As some of you may know, the nursing curriculum is extremely intense. I have an very strict routine and schedule where I can handle the rigor of my classes, work, and fitness (I am really into health and fitness, it's the best release from the stresses induced from school. I get 6 hours of sleep on the dot and manage to work, volunteer, study, and eat decently well. I love my life when it's on this routine and am so happy and social with people around me. I'm making progress, I'm moving forward, making something of my life.    But lately I've been suffering. I've been getting sick a lot more often from what seems to be random uncontrollable cross contamination from various things. When I get sick, my routine gets all messed up, I fall off my schedule, and things start going downhill. I like to call it the "celiac rut" I get stuck in. When I'm sick I can't work out, without working out I get extremely stressed and can't sleep. Without sleep I can't focus on my school and you know, the slippery slope that pretty much leads to lots of depression and anxiety.    This. Absolutely. Sucks. I fall behind in school and have trouble focusing on my priorities because I need more sleep to heal, and I can't go to class or the gym when I'm throwing up or spending hours on the toilet. Plus the mental symptoms turn me into an angry antisocial gluten monster. So that's always fun.   I really don't know how to manage this. I feel like at this rate I won't be able to keep up with my daily life. I physically can not handle the lifestyle I have when I get sick, and it piles up because when I get better I'm like weeks behind in material in my classes.    I am am normally a super happy outgoing guy, I love being the person I truly am. But gluten is singlehandedly tearing my life apart and the depression is starting to take it's toll.    I honestly dont know what to get out of posting this. I just hope that someone has some sort of trick or secret to get through this awful "celiac rut."
    • Hello, I have the same issue with the hair loss a few months after going gluten free, I have been getting the b12 shot and was also told to take Vit D and Calcium, Also told it was because my guts are still not happy after all i put them thru, It's very upsetting losing the amount of hair I have, my right side of my head is about 65% thinner then the left...Was told it see a Diet person right away. 
    • There is sort of a detox/withdrawal thing for the first few weeks for most. Keep a food diary, often after a glutening a new intolerance will creep up for awhile. Sort of your body associating another food with gluten, and or it just being picky while damaged. Write down everything you eat, how you fix it, seasonings etc. Change up the diet, and look for patterns.  My own gut is being picky today and had D after 2 meals so I am rotating up and narrowing down the culprit tomorrow myself....only see 4 common things in my food dairy.
    • Thanks for your reply. I'm currently grain free, although I ended up making kitchary because I needed something of substance in my stomach. Seems to have helped. Some other symptoms coming on strong, so just hoping I have some answers soon, to make sure I'm at least on the right path!
  • Upcoming Events