• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Did It Take Before You Saw Any Improvement?
0

9 posts in this topic

I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


The post-gluten course is often a little unpredictable, since we are all so different. You may experience miraculous improvement right away. Certainly, if you are allergic to dairy and eliminate it you should notice a pretty immediate improvement. With celiac, it is less predictable. It depends on the amount of GI damage, it depends on your level of addiction to gluten and whether or not you go through a withdrawal period of two or three weeks. Certainly, you have a lot of healing to do, and it is not like turning off the faucet and everything is all better. Have you had testing done for nutrient deficiencies (vitamins, minerals, iron?) If you are low in things like Vit.D, B12, iron, you will need to rebuild your stores before you start feeling significantly better. Nevertheless, within the first couple of weeks you should notice that you are feeling a bit better but do not be upset if you are not because of the other factors.

You may find that your food is still not digesting properly because your pancreas needs to heal from the gluten too, and is not putting out enough enzymes, which you will then need to supplement. It also helps to restore the good flora in your gut by taking probiotics. In your case if you are allergic to dairy you will not be able to do yogurt so you will have to get dairy-free probiotics.

If you are lucky, your allergy testing will have picked up on just lactose intolerance (although I do think it is the protein casein they test for, come to think of it), but if you are only lactose intolerant you may be able to regain dairy at a later stage.

No need to go looking for problems that might or might not happen. If you find you are not improving, talk to us about them and we can give further advice. :)

1

Share this post


Link to post
Share on other sites

I have had vitamin levels checked recently and I had low potassium and also low vitamin D, but I only took over the counter potassium suppliments and the doc didnt think my vitamin D was too bad so he decided not to treat it. I have also had a mild case of pancreatitis in the past. I hope that I can improve more, I have seen some improvement since going gluten free but I could tell I was getting sick from eating cheese and butter. So when the doctor dx'ed me with a milk allergy I was not completely surprised if that makes any sense at all. I feel a little depressed about the milk thing though. My diet seems so restricted... :(

0

Share this post


Link to post
Share on other sites

I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

just curious...did the allergist tell you it looks like you have celiac based on the DGP igG score alone or in combination with the potassium and vitamin D level? I've read a few of your other posts, and it seems we have a lot in common :) my thread and numbers are here http://www.celiac.co...ults-please/�� I only had a strong positive for the DGP IgG and nothing else.

the exercising and endurance post you made, I can completely relate!! I lost a lot of weight in 2010 doing Jillian Michaels videos and changing my eating habits. I've gained some of the weight back, but now doing any her workouts or most exercises in general makes me feel tired and worn out, instead of elevating my mood and making me feel good. Sure the weight gain is a small part, but I was able to do her videos and feel better when I was heavier than my current weight and get that mood lift before <_< I have my annual at the ob/gyn today, so I'm going to ask her to order some nutrient tests, so hopefully she will!

I'm happy that you're getting some answers!!

0

Share this post


Link to post
Share on other sites

As I bumped along my first 7 months gluten free it has been hard to grasp "feeling better." As I look back though, I realize profound changes have come. I was challenged with months of withdrawl symptoms or problems with missing gluten or cross contamination. I also discovered other allergies. A month or so ago, a clear mind decided to live with me! At times I feel energetic.

I didn't just go gluten free and feel better. I keep working toward better health whereever it took me.

You are on the road, Keep walking,

It may take a while,

but headed in the right direction,

You'll get there.

Get Well,

Diana

0

Share this post


Link to post
Share on other sites
Ads by Google:


1desperateladysaved, I totally and completely can relate about the missing food or having issues with cross contamination. I feel like I am so dumb when it comes to hidden ingredients and I think I have poisoned myself without knowing a few times. I really do hope I am on the road to recovery, as I want to live as long as I can for my kids. Thank you for your advice, it makes me feel better having your advice.

Powerofpositivethinking, my allergist said that he thinks that I have celiac. I am still headed to the GI to possibly confirm it, but I will say that after cutting gluten out, I feel way better than I did while on it so I think no matter what is done or said there I am keeping myself off the gluten. I also think we have alot in common and I have read your other posts too! ;) About the endurance thing, I feel a little better after cutting out the gluten and I have been able to FINALLY clean my house without falling asleep afterward and I have been able to run my kids around town for Dr.'s appointments without crashing at night with major knee pain and a general feeling of unwell. You should get your vitamin levels checked. You might be like me and be able to suppliment with over the counter vitamins and do okay if you need them. One other thing is that I also noticed that I gained the most weight when my diet was rich in dairy and gluten type foods. I know you may not have a dairy allergy, but with the gluten, you maybe able to lose that weight when you cut it out (your still eating gluten for your endoscopy, right?). I also lost weight 2 years ago with exercise and was feeling great, but that was short lived as I think the celiac reared its ugly head and halted that. I gained 40 lbs back in 2 months. :( Since being off gluten for only a week, I have lost 4 lbs and I have been eating rice noodles with gluten-free seasonings and olive oil. I want to say that I believe that in my own mind that I am in the possible early stages of celiac disease and that it was a warning sign when I recieved the positive DGP IgG that I needed to go gluten free right away. I am not a Dr, this is my own guess.

This is why I am so grateful for this forum. I am scared, I feel depressed about all of this and my parents (even though I am 28 years old, I still listen to them) think its all just anxiety related and don't believe I have anyhting wrong with me, even after blood tests and a very obvious positive skin prick allergy test. I know I can come here and find answers to my questions. I can find better answers here than I can in all of the doctor's offices that I have been to. I have people I can relate to that are going through what I am and I have seasoned people that can chime in and help me with in depth issues. I am so grateful for this forum.

0

Share this post


Link to post
Share on other sites

I think it's funny you mentioned about your parents because I'm 27, but it still matters to me what they think too! Although weight wise I'm "healthier: according to my GP, it seems I can trace my problems back to when I lost weight in the first place. My mom thinks i'm being overly dramatic with my bowel issues, but I know what was normal before, and that's not what's happening now. I didn't even tell them I went to a GI. I'm waiting until my follow-up appointment on the 21st to tell them anything.

Luckily, I had my ob/gyn appointment today and requested for her to run the following tests, which I put together from forum posts on here. I was so happy she agreed, and she will be sending a report to my GI doctor, so we'll see what information comes back.

These were the tests requested:

Complete Metabolic Profile

Complete Blood Count

Vitamins A, B (B1, B2, B6, B12), D, E, K

Ferritin/iron

Magnesium

Folate

Potassium

Calcium

Zinc

Thyroid (TSH, Free T3 and Free T4)

Inflammation Markers CRP, SED and RF

It was quite the collection, but hopefully it will shed some more light on things!

0

Share this post


Link to post
Share on other sites

That's a great list. It's what we all should have but very few get. :)

0

Share this post


Link to post
Share on other sites

I just found out yesterday that I have a dairy allergy and my allergist said with recent blood work that it looks like I also have celiac disease. I am just curious how long it has taken you with dual (or more) allergies and sensitivities to see improvement after you changed your diet?

It took me about a week. I was having daily migraines and gastro distress. Within a few days it slowed down, by a week I was able to go shopping without having to make a run (literally) to the bathroom. Then again, they caught mine fairly early. there are some people who have had severe damage before they were diagnosed and it may have taken them longer to feel better.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,810
    • Total Posts
      932,609
  • Member Statistics

    • Total Members
      64,311
    • Most Online
      3,093

    Newest Member
    Whitepaw
    Joined
  • Popular Now

  • Topics

  • Posts

    • It makes a difference if you are Catholic. Don't want to get into a debate about why, but Catholic's must use some form of wheat in the host.  There is no such thing as a gluten free communion wafer at a Catholic Mass. The solution for a celiac is a LOW gluten host made from wheat starch.  That is not a solution that works for many celiacs.  You could also just take the cup, if it is offered, provided it does not have any of the host broken into it.  You do run the risk of cross contamination unless you are the first person receiving from the cup. Spiritual Communion is sometimes all you can do if you don't have a priest that understands or will work with you. My daughter has become very sensitive after a recent accidental high exposure to gluten. Her symptoms are neurological (loss of use of right foot and right arm, loss of balance, heaviness of limbs, loss of sight).   We spoke to our priest and he ordered a special small cup just for her. He leaves it covered during the consecration so there is no cross contamination.  My husband and I are Eucharistic Ministers and give it to her after we receive so the priest doesn't have to juggle so many things.   So, that is the Catholic solution. There is information on the USCCB website to provide your priest if he needs guidance.  http://www.usccb.org/prayer-and-worship/the-mass/order-of-mass/liturgy-of-the-eucharist/celiac-disease-and-alcohol-intolerance.cfm
    • So great to hear! Actually makes sense with the iron, as vitamin C helps in the absorption of iron. Sounds like a good theory that it is either the vitamin C, or vitamin C aiding in the absorption of the iron. Thanks for all the feedback. Going to try adding iron as well. Hoping this will help us both feel better and worry less  
    • Hello and welcome I don't have celiac. I do have several symptoms in common with you and I do have a problem with gluten, so NCGS for want of a better term.  A celiac response to gluten involves the immune system so there certainly can be a delay between ingestion and the body producing the antibodies. That would correlate with your tongue aching progressively through the week. Some of the weirder symptoms of celiac occur because those antibodies that have identified gluten proteins as a problem then attack different parts of the body, maybe that's the more delayed reaction in your case. Last time I was glutened definitely I noticed some reaction in a few hours but it was a couple of days before I was certain. After effects can last for weeks or months even.  Wheat allergy is the one with the instant response, it's IGE mediated and so you can have an immediate surge in histamines and in extreme cases anaphylaptic reaction. NCGS is less well understood, some dispute it's existince or question if gluten is the cause. The symptoms however are similar to celiac as far as I know and that includes response time.  You've been through a miserable time but your still young and you need to decide whether you want to pursue a diagnosis or not. If you do, then it will require a gluten challenge of probably 6-12 weeks. See the links below for more details.  If you don't I suggest you go strictly gluten free, keep a food diary and see if the improvements you noted before continue. I think you've probably found your answer. Best of luck!   Further reading https://www.celiac.com/gluten-free/announcement/3-frequently-asked-questions-about-celiac-disease/
    • This is why many of us stick to our own "Trusted Brands" of things we know are safe, and only buy stuff with the offical certification for gluten free. NOTE also in the US they do not HAVE to tell you their facility also processes wheat on the label, just if the actual product contains it in the ingredients. But many will just to avoid legal mumbo jumbo if they somehow have CC issues. Saying the facility also contains/processes wheat is just them covering themselves if people get sick from it.
    • I make my own mini loafs of a simple almond,coconut,apple sauce blend for dense, bland bread gluten free, and have my pastor bless them. I then keep them in the freezer and bring a piece with me for communion.
  • Upcoming Events