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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Here are my gene test results, so it seems it is NOT celiac. Which is good news for my relatives. :) I guess this narrows what I have down to NCGI, but my GI doc is doing an endo in a couple weeks anyway....

I'm not doubting the interpretation, but can anyone decipher what this means? I get what the first two are and am lost after that.

---------------------------------

Interpretation --- The patient does not have the HLA-DQ variants associated with celiac disease.

More than 97% of celiac patients carry either HLA-DQ2(DQA1*05/DQB1*02) or HLA-DQ8(DQA1*03/DQB1*0302) or both.

Hla-Dq2 Negative

Hla-Dq8 Negative

Hla-Dqa1 -- 01

Hla-Dqa1 -- 02

Hla-Dqb1 -- 0303

Hla-Dqb1 -- 0603

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Unless you are in the 3% that don't have the genes they test for?

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Oh.... I didn't think of that. Maybe that's why he's doing the scope anyway. <_<

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I was told if I don't have the genes, I ain't celiac (I don't have the genes). Does anyone have any information about the other 3%?

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I was told if I don't have the genes, I ain't celiac (I don't have the genes). Does anyone have any information about the other 3%?

ravenwoodglass belongs in that 3%. You can find out what it did to her :wacko:

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So my GI seems to be sure I am celiac negative, given my blood tests were also neg. I'm at a loss as to why he's doing the endo, plus I'm supposed to start a gluten challenge on Sunday. Why would I do a gluten challenge and biopsy if he is convinced I'm negative anyway?

I tend to think that I'm probably not in that "less than 3 percent" group -- I mean those are pretty slim odds. I have to accept that all of the most sophisticated tests say I'm not celiac. I guess the biopsy will be the last test.

I'm kind of freaking out about what to do next because I still can't eat gluten and I seem to have a wheat allergy, as in the puffy face and all. So little is known about NCGI... Are all the potential complications the same? Do I need to be as strict? I don't mind being gluten-strict in my own home, but I do sometimes feel bad giving friends and family the once-over in their own kitchens. Can I lay off them a little if I don't have celiac?? :(

----

Also, does anybody know what the last four gene tests mean, if anything?

Hla-Dqa1 -- 01

Hla-Dqa1 -- 02

Hla-Dqb1 -- 0303

Hla-Dqb1 -- 0603

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Actually, I've read studies wherein they've found up to 6-8% (I think) being negative for both the alpha and beta chains of DQ2 and DQ8 (which includes, by default, DQ7.5), the study had a very large cohort as well. Let me see if I can dig it up...

EDIT: Here are a couple I've read a long the way.... still digging for the study that showed only 93% of the celiac cohort showed DQ2 and/or DQ8.

http://www.ncbi.nlm....pubmed/12651074

http://celiacdisease...tic-Testing.htm

http://www.glutenfre...o_interview.pdf - In this article Dr. Fasano acknowledges that 2-3% of people diagnosed with Celiac do not have the genes.

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