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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hi, I currently tried a 2 month trial for gluten free. Some of my symptoms decreased heavily, but I wanted a medical diagnosis. So I've been eating gluten for about a month and quite a few of my symptoms have came back and more. The bad gas came back, bloating more, the first time trying bread again I had to rush to the toilet a few times (d) and have got it odd times. Symptoms what have came since before, fatigued, dry lips a lot more especially in the morning, heel pain,dizziness and I've developed a lump on my foot (opposite to a bonion, called a bonionette if it is that) Are these all symptoms too? Could some be a nutritional deficiency?(Bone pain?) Thanks

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I had a lot of problems when I reintroduced gluten for the challenge, much worse than before. I had already been diagnosed with plantar fasciitis, which leads to heel pain, which might be worth looking at. Mine disappeared again when I went gluten-free. It returns if I get glutened. I think it is a generalized inflammation that gets us on gluten sometimes.

Good luck with the challenge, not fun. I gave up on doctor's orders after 3 weeks. I hope you get the diagnosis you want, but if you get negative tests, consider non celiac gluten intolerance. I had negative tests, including genes, so my GI diagnosed NCGI. It might be worth keeping a record of symptoms on ane off gluten, my GI used these in diagnosis.

Best wishes Mw

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Hi There.

I am new to this but I just had to comment because I have similar symptoms. Have not yet been diagnosed yet, but had blood work done last week now waiting on results.

I have also been diagnosed with plantar facilis, pardon the spelling, but never really thought it could be connected. Also have dry lips too. My stomach has felt uneasy for weeks, lots of gas, having really loose stools, heartburn and acid reflex. Joint pain has been really bad lately and I have been diagnosed with a fistula.

It's just really nice I could find some others with the same kind of symptoms and its not all in my head!

Should also mention celiac disease runs in the famliy, grandmother, aunt and some cousins.

Think I should try going gluten free starting this week and see if things improve.

Anyhow sorry to ramble on.

Cheers!

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Thanks for the feedback! It runs in my family to as my mother has it. I'm just hoping it is celiac when I get tested to stop all my problems!

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Hey goodtime, just to let you know that if you need or choose an endoscopy or further blood tests, you need to be eating gluten still, so maybe consider holding off until testing is complete, if you want a diagnosis.

I wish you luck with finding the root of your problems. It is amazing what can turn out to be related

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Just to reiterate, as difficult as it is, please stay on gluten until your biopsy----for the most accurate result.

FWIW, I had what was called "Plantar fasciitis" too.

"itis" which means " inflammation" -- can occur anywhere in the body with a gluten problem.

In 2007, (before DX when I was very ill and did not know why) I had to have special inserts made, but still suffered terrible foot pain. I felt like I was stepping on glass when I got out of bed every morning and I could not walk without pain.

Now, 2 years after diagnosis, I have NO foot pain symptoms whatsoever and there is no need for the inserts a podiatrist told me I would "wear forever". This is just my experience, of course! :)

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Mindwarp, I was thinking if the blood test is positive I would just go gluten free and see if symptoms go away after time. I am already having a colonoscopy this month. It's prescreening to make sure I do not have Chron's or something else. Before I have surgery on the fistula. So I figure that is enough poking and prodding for now.

Irish Heart my plantar fasciitis is now a mild discomfort and in the left heel, when it first started it was really bad. But 2 days after it went away, than the next day was back again like it was at the first which is weird!

Anyhow I will keep you's posted on results and guess I will stay on gluten so if test come back neg they can do further testing.

Thanks for the replies!

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Thanks! Hope it is celiac and I can just get better and feel myself again! Has anyone had any problems with bonions?

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    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
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    • after going gluten-free I felt great! but lately I have been feeling bad. the gluten symptoms are still gone, but now I am weak, foggy,  any ideas? doc did a full blood work up, all came back normal
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