• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Rate this topic

Recommended Posts

Hi,

My brother has celiac so I got tested even though I don't have any symptoms at all. The antibody test was positive so I had an endoscopy. The dr said I have celiac as am at a Marsh scale level 2. However, online lots o things say celiac is not confirmed unless you are at marsh level 3 or higher where villa atrophy has occurred. So do I have celiac or not? Thanks for your help!!! :)

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


You have a positive blood test for celiac. Your endoscopy shows that you are two steps down the villous atrophy path -- you just havn't made that final step which will start doing in the villi. Do you want to keep eating gluten until you take that final step, or do you want to avoid that path?

Your doctor is a wise man who is treating the patient, not the tests. It may not seem like it to you, but you are lucky to have learned early that gluten is not good for you and to be able to eliminate it before you suffer serious harm from it :) I know that eating gluten free seems like a daunting prospect when you don't feel like you are suffering any side effects from it, but you are making lots of antibodies to it and they are causing inflammation and other changes in your gut already. And you are your brother's sister. I would say you have early celiac. Accept it and do not look back :rolleyes:

Share this post


Link to post
Share on other sites

Mushroom- thank you so much for the reply. I know you are right, I just don't want to accept it! :( especially since I am a vegetarian, this is going to be so hard. Does anyone know, since I have no symptoms and the villi aren't affected yet, does that me at this point my body is still absorbing all the nutrients? Also, I have now been gluten-free for two weeks. I hear ppl get sick from cross contamination but would I not get sick since I've never had symptoms? Hope that makes sense. I appreciate your feedback!

Share this post


Link to post
Share on other sites

There is a poster on the board, luv2travel, who was diagnosed as you were without any apparent symptomatology. She found it difficult because she did not know if she was being cc'd or not. She recently had a very strong reaction to some cc, so the answer would appear to be that you very well could in the future. We do know that the body is relieved when gluten is withdrawn and it can stop producing antibodies. So if and when it again encounters gluten it gets quite upset and creates an even stronger response, So it is possible that somewhere down the line you could start having a GI reaction to gluten.

As for malabsorption, I frankly have no idea. To be a Marsh 2 there must be at least some inflammation, but whether that is interfering with your nutrient levels I don't know. Many times gluten intolerants who are not diagnosable as celiac do have lower levels of some critical nutrients, so there is no way of knowing how this malabsorption works. If I were you I would at least have my Vit.D and B12 checked, and if either of those shows up low then check the other likely candidates. :)

Share this post


Link to post
Share on other sites

...the villi aren't affected yet...

Marsh 2 says your villi are affected. Marsh 2 indicates a level of damage not severe enough for some doctors to call it celiac disease, although many enlightened ones will.

Share this post


Link to post
Share on other sites
Ads by Google:


I chose not to have the endoscopy done because my ttg IgA and EMA IgA were very positive, and because I have had stomach symptoms since early childhood. I am guessing they would have found a lot of damage in an endoscopy simply because I ate gluten, and had symptoms for decades.

Despite all that, when I had my nutrient levels checked, they were all great, except for my D which was on the low side of normal (but still considered normal). Not all celiacs have low nutrient levels, but it does seem to be the norm.

Also, over time you might notice improvement of some health issues that you don't realize are symptoms. I had no idea that my migraines were linked to celiac until I stopped having them. That also goes for my leg cramps at night. I'm also seeing my arthritic like joint pain improve after 6 months which is very exciting for me.

Give it time and you might notice symptoms that have improved that you'll be able to refer back to if you suspect you've been cc'ed.

Best wishes.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,930
    • Total Posts
      943,572
  • Member Statistics

    • Total Members
      67,209
    • Most Online
      3,093

    Newest Member
    Calamity
    Joined
  • Popular Now

  • Topics

  • Posts

    • Sounds great, one of my dreams is to open a grain free/gluten free food truck.......stone and mortar places would not do well here, but a mobile one able to cater....LOL dream I know, fundraiser has flopped and been running for a year. Hell I had the quotes up, the whole sale contracts setup, the business model and plan. I even tried to get loans, and business partners.....all flopped.
    • Just opened in Cincinnati, Oh: Ma and Pa's Gluten Free Cafe. Dedicated gluten-free restaurant. I had the pizza hoagie and onion rings last night. I forgot just how oily onion rings were. They sat in my stomach like concrete all night long but tasted great. Next time I'm getting the pizza or pulled pork with slaw and fries.  
    • Nope, had the flu and this has happened before when I ate the chili. JMG, I read the deadspin article. It's pretty funny. First, at least we're not bull testicles(Montana), and second, Skyline is the only one claiming to be gluten-free besides Hormel(sucks) and Amy's(sucks) that is Cincinnati style. There are many other local chili's but none are gluten-free. Gold Star is good but they say they're shredded cheese isn't even gluten-free. Like I said, Cincinnati style is the best. It's supposed to have roots from the Mediterranean area. Gold Star is ran by Syrian family, there is one or two others that are ran by Greeks. I kinda agree with the article when it comes to Skyline but I can walk in a store and buy it in a can. I started to thaw so meat yesterday to give it a go but am out of Cumin. No chili today
    • ....post is 12 years old, please check the dates, On a side note to this topic, I had no gluten issues with tide but it caused itching for other reasons I went with Rockin Green and Mollys Suds for a natural detergent years ago. You get like 70-90loads from a bag try, Amazon, Luckyvitamin, or Thrive for them.
    • Really interesting point Kareng.  In fact, my ttg went up this autumn (November), depressingly, and I saw a nutritionalist earlier this month and she doesn't want to retest til March.  She felt it was too soon for those figures, too.  
  • Upcoming Events