• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Do Celiac's Have An Odor?
0

18 posts in this topic

The other day my boyfriend said he can tell when I have been glutened because I admit a distinct odor through my skin. He said it's NOT foul smelling but more medicinal. Has anybody else been told that?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Could you do us dinosaurs a favor and not make the font so small so we can't read it without our "cheaters"? :lol: Thanks, honey!

Okay, to answer your question: Nope.

So, I asked the hubs.... and he said " huh? No!"

and I honestly cannot imagine how this would provoke a "medicinal smell" by emitting it through your skin, BUT it is very interesting!! As the wife of a chemist, I am intrigued.

For it to be an exact science of course, he would have to sniff you daily for weeks, reporting what he smells, then without his knowledge, you gluten yourself and as the days pass, he would continue to sniff you and report what he smells.

In other words, a controlled study would be your best bet. He may think you smell differently, because he knows you've been glutened. See what I mean? Maybe he is biased based on what he knows?

not that he is lying, of course, but because he may "anticipate" a change?

It would only be a valid response if there is control in the experiment....so......who wants to try it? (not me!)

0

Share this post


Link to post
Share on other sites

Could you do us dinosaurs a favor and not make the font so small so we can't read it without our "cheaters"? :lol: Thanks, honey!

Okay, to answer your question: Nope.

So, I asked the hubs.... and he said " huh? No!"

and I honestly cannot imagine how this would provoke a "medicinal smell" by emitting it through your skin, BUT it is very interesting!! As the wife of a chemist, I am intrigued.

For it to be an exact science of course, he would have to sniff you daily for weeks, reporting what he smells, then without his knowledge, you gluten yourself and as the days pass, he would continue to sniff you and report what he smells.

In other words, a controlled study would be your best bet. He may think you smell differently, because he knows you've been glutened. See what I mean? Maybe he is biased based on what he knows?

not that he is lying, of course, but because he may "anticipate" a change?

It would only be a valid response if there is control in the experiment....so......who wants to try it? (not me!)

Not me either,, I will take the word of the fool ,, I mean test subject,, that agrees to perform that controlled study :rolleyes:,

I have known people who drink a LOT of alcohol to have the odor of alcohol come thru their skin after a particularly rough binge .

0

Share this post


Link to post
Share on other sites

HAHAHAHAHAH!!!!!!

I do know that in my experience living with a man for six years, he would most definitely smell

different when he was sick, like with a cold or something. And my mother always said she could

smell when we were sick. It's not out of the realm of logic that the chemistry in your body

would change enough when glutened to affect your odor. Especially to someone with a very

sensitive sniffer, I smell things most people don't notice. Interesting topic!

0

Share this post


Link to post
Share on other sites

I agree on the "alcohol smell" after a binge. No question!! I agree on the "sick smell" too. That's perspiration coming out your pores, right?

but if we're gonna ooze after a glutening, wouldn't we smell like a bagel??

Just sayin.

I can smell things no one else can, too. Really, I have "super nose" (the hubs thinks I am nuts sometimes.) but I am "fine tuned".... same with taste and hearing. Super Sonic.

That said, I bet I may probably smell like OTHER things besides "medicinal" after a gluten hit.....because you can bet I am going to probably heave or be in the loo for a bit.... :ph34r:

0

Share this post


Link to post
Share on other sites
Ads by Google:


People who smoke certaintly have an odor. Some people smell like cinnamon too. Don't ask me why. Rose water is medicinal right? So maybe we smell like rose water. Otherwise I can't imagine why we would have a particular odor, so there, says FP.

0

Share this post


Link to post
Share on other sites

Well, haven't a lot of people reported hormone disruptions from glutening? Night sweats,

hot flashes, booby tenderness, cycle issues... I have read of pregnant women smelling

different, as reported by their husbands or mothers. So why not a glutening? Nobody

would ever fund the study of something like this, but it sure is interesting!

0

Share this post


Link to post
Share on other sites

My hubs' aunt said she could smell people who had cancer :blink:

0

Share this post


Link to post
Share on other sites

I also have an extra sensitive sniffer ,,,

Maybe we should have a study done to see if celiacs have more sensitive sniffers then non celiacs ? That could be fun or not :P (depending on the smells involved :lol:)

0

Share this post


Link to post
Share on other sites

I am à sensitive sniffer :)

I can sometimes smell when a diabetic is out of whack. It is the classic sweet pear drop smell that people say is on the breath, but I smell it on the skin. I had a boyfriend with diabetes, but I had to pretend it didn't happen, it used to annoy him that I knew. Mind you, it annoyed me that he used to get drunk and expect his mates or me to get him out of fits. Hence ex.

Another friend was freaked out when I asked if he was diabetic. Turned out he was prediabetic.

Not sure about celiac. I think there is a general sick smell.

0

Share this post


Link to post
Share on other sites

I also have an extra sensitive sniffer ,,,

Maybe we should have a study done to see if celiacs have more sensitive sniffers then non celiacs ? That could be fun or not :P (depending on the smells involved :lol:)

The startled skunk walking by the open window in summer just about kills me. <_<

0

Share this post


Link to post
Share on other sites

Eat some chocolate an smell the skin on your arm, pretty amazing !

0

Share this post


Link to post
Share on other sites

I've often wondered this. I wonder why we don't get dogs to diagnose all sorts of diseases for us, we trust them to find bombs and drugs.

I personally haven't noticed a celiac odor, but have wondered a lot if it's contributed to my own pretty strong BO.

0

Share this post


Link to post
Share on other sites

We had a dog that loved everybody. She would growl at anyone who had cancer (most times pre diagnoses).

I honest to God can smell ice (ice rink ice).

A lot of us mid westerners can smell spring. (it smells like black dirt and it is not the first day of uncovered ground from snow melt)

The boyfriend just has a really good sniffer, very well in tuned to you. He will probably know your pregnant before you do.

0

Share this post


Link to post
Share on other sites

My cat knew I was pregnant and went bananas.

Mind you, cats are not much good for training :)

0

Share this post


Link to post
Share on other sites

I too have a sensitive nose. As a mom to 3 boys and a red neck husband, I consider this to be a curse. LOL

I'll have to pay attention to that. I know my smells change throughout the month and when I am unwell. I've never noticed a gluten smell. Neat.

And yeah, why don't they use dogs for cancer sniffing. It's got to be cheaper than MRI's and tonnes of tests.

0

Share this post


Link to post
Share on other sites

My hubby has a sensitive nose. If I've spent several days in bed, he says the room begins to have "that smell". He also says it's not particularly bad, but stale. The skin is an organ and I don't think it's outside the realm of possibility that we give off an odor when our organs are taxed. He hasn't really said that much since I've been gluten-free.

Cali

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,778
    • Total Posts
      932,367
  • Member Statistics

    • Total Members
      64,252
    • Most Online
      3,093

    Newest Member
    cmatott
    Joined
  • Popular Now

  • Topics

  • Posts

    • This is really tough.  There is still a lot of research needed in diagnosing (or dismissing) celiac disease.  It shouldn't be months/years of misery and uncertainty. A couple of years ago Dr. Marsh (THE Dr. Marsh of the Marsh biopsy rating system) criticized the US celiac community for not recognizing an increase in IELs as early celiac disease. He asked if these doctors would like to be responsible for the oseoperosis or lymphoma of the undiagnosed patients.  I have also seen that it can take months for antibodies to rise.  There was a paper (2015) that looked at gluten challenges in diagnosed celiac patients.  These are folks with confirmed celiac  and for some it took over 3 months for blood tests to show anything. I hope the strict gluten-free diet works for you. I hope to hear you report back in a couple of months.  I'm undergoing my gluten challenge right now. Week 2. It's just really tough. 
    • My 13 and 7 year old have Celiac Disease and my 4 year old has the genes.  I have a double dose of the genes so no matter what my children will get a gene that could develop into the disease.  I hope that my youngest son doesn't ever develop the disease, but his dr said it could activate later in life.  My kids are thriving, they have normal lives, they are smart and have gained knowledge about food that they can carry with them throughout their life.   They really don't let anything stop them from living a normal life.  I think you'll have the upper hand if you choose to have kids.  You'll have the knowledge of what to do to keep them safe if they do have Celiac Disease.  You'll be able to relate since you were young when you were diagnosed.  How was it for you growing up? 
    • My 7 year old son has this happen.  I too get highly angry, like could flip a vehicle kind of angry.  It's hard for the little ones to understand what is going on at the time, only knowing that they can't control themselves....  The glazed crazy look in his eye are always a tell.  Sleep helps, along with lots of water the following day.  The next day we talk about everything and try to figure out what could have glutened him.  We've had talks with our school and teachers letting them know that our son is to not eat anything unless we bring it.  I think the last time this happened to him was from using shared supplies after a treat party.  Now he's very cautious of putting his hands to his lips or mouth.    Now as far as chips, my kids stick with Kettle Brand Chips.  They are certified.  Potatoes aren't my friend so I can't really say if they taste great.     
    • Exactly!! Scuff, are you doing the gluten challenge?  How far along are you?  
    • Wow - those are some really high numbers. Something definitely has to be going on. It will be interesting to see if the numbers are still high. My  7 year old has one positive celiac test - the TTG IGA and it's just barely positive (20-24 is weak positive and over 25 is positive - she is 27).  Her GI appt isn't til September but I hope the doctor will re-run the bloodwork and then if it's still positive, we will do the endoscopy. I am tempted to run her bloodwork sooner because September is a long wait. I understand that some doctors will diagnose children without endoscopy if you meet 4 out of 5 criteria: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.    
  • Upcoming Events