This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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This is a pretty old posting so I will respond. What were your other celiac panel results? Did they do the TTG IGA?
I had a very elevated IGA test (checked for IGA deficiency which for celiac tests validates the result). It can mean that you have some autoimmune disorder going on. I already had Hashimoto's thyroiditis, so no surprise there (not to mention lots of allergies). I tested negative to the TTG IGA and TTG IGG, but my DGP IGA was positive. It was the only positive. My biopsies revealed moderate to severe damage. I have both Hashi's and Celiac disease.
Soon, you should know where you stand. Keep eating gluten until all testing is complete.
Hi Rob and welcome You have found a good site with a supportive community!
Celiac can be difficult to diagnose because it can affect so many different systems in the body. There are links to further info and some hopefully useful answers to common questions in this topic:
That said, I tested negative for celiac via blood and endoscopy but some people do not show up on the test for many reasons, but gluten is still a problem for them. It certainly is for me! Non Celiac Gluten Sensitivity is one catch all term for such people. So...
I think your friend is on the right path. I'm sorry if he's not able to access medical care as it would be much better to diagnose this via a doctor and exclude anything else, or identify any other conditions should he have them.
However there's no treatment if he does have it bar STRICT adherence to a gluten free diet. He could try keeping a food journal listing what he ate, when and how he felt. I did and managed to track down the above symptoms along with a LOT more. Gluten was giving me chest pains, eyesight issues, anxiety, depression, balance issues, palpitations, nerve twitches etc etc. I only began to identify them all by keeping a journal and your friend could do that and follow the diet to see if he can get some answers for himself.
Best of luck to him and yourself
Has anyone had any answers regarding this? I too had an Elevated Total IGA results but normal tIGA IgG. Having most of the symptoms of celiac disease but can't go gluten free until after my EGD test has been done. Which isn't for three weeks. I'm curious what the other people with these results found out. My Dr seemed to think I was gluten intolerant but I can't seem to find any resources to back that up.