• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Casein Withdrawal - When Will It Be Over?!
0

3 posts in this topic

Recommended Posts

CR5442    13

Hi all. I recently had a positive IgG test for Casein so am taking this out of my diet - which would make sense as over the last year I had added it back in after coming off gluten and amongst other things I've had weight gain (crazy!), water retention, hot sweats, itching, wind, constipation etc. Now I'm off it the wind, sweating and constipation are resolving pretty quickly but I am itching like mad particularly in the afternoons after a busy day. I've tried liver herbs to help with the detox but they aren't doing much. Also I wondered if anyone knew when the water would start to come off. I have bad swelling in my lower legs by the end of the day and have also been treated for adrenal fatigue (I suppose from having eaten something for some time that my body didn't like). Any tips and stories would be greatly welcome. I know not directly about gluten but I know a lot of you will also have this issue with milk/casein because of the celiac. Thanks!

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


cavernio    9

My casein symptoms involve a dry mouth and possibly a low grade fever, or maybe decrease in body temperature. I've only gained weight since being gluten and casein free, despite already being obese. I've never suffered from gluten withdrawal or dairy withdrawal that other people talk about.

I have never heard of IgG tests for anything beyond gluten. Who did this test and why is it positive to casein and not, for instance, gluten? For instance, when I asked my GI about whether I could get tested to see if I had an issue with dairy beyond lactose (like casein or whey), he said it wasn't really done and that my IgA (yeah, I know that's not IgG) was most very, very likely elevated due to gluten. With a confirmation biopsy, there's no question that I'm a celiac.

Share this post


Link to post
Share on other sites
CR5442    13

Hey Cavernio. thanks for your reply. things are already starting to get better. I'm loosing that feeling like I have water oozing from every pore and the water weight is starting to come off too. Tummy still a bit dodgy though and ear still ringing but I suppose it's going to take a while to get everything back to balance. The gluten didn't show on my IgG because I stopped eating it over a year and a half ago - so it wouldn't show up because all the IgG storms with the markers for gluten will have gone away. Eggs and soya didn't show for the same reason - I stopped eating them about 4 months ago. But my acupuncturist can feel in my pulse that they and the gluten are bad for me. Perhaps in a year or two she won't feel that reaction anymore because I had zero of any of them in my system. I think the moral of the story for me is - eat clean, eat healthy and don't ever have any proteins that remotely look or behave like gluten... eggs, casein, soy are all very similar. Makes eating out a challenge! I'm always opting for steak and plain boiled potatoes and peas! Thank goodness for olive oil and balsamic!

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,886
    • Total Posts
      938,480
  • Member Statistics

    • Total Members
      65,789
    • Most Online
      3,093

    Newest Member
    Grayskull
    Joined
  • Popular Now

  • Topics

  • Posts

    • Poster boy,  I found this article.  I don't know if it's the source of the Patient Celiac's information, but it may have the information you're looking for. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3956379/ There's some evidence that vitamin D deficiency contributes to high blood pressure.   https://www.vitamindcouncil.org/health-conditions/hypertension/ Vitamin D does so many things!  Getting my vitamin D up made me feel so much better!  I supplement every day to ensure I keep my level up about 80.  I don't do dairy and I don't get enough sun, so supplementing is the way to go for me.  And I have been able to get off my high blood pressure medications, but correcting a lot of different things (vitamin and mineral deficiencies) made that possible.  Make sure you check with your doctor before stopping any medications like high blood pressure medications. Hope this helps! Kitty 😸 
    • Did your folate (B9) levels get tested?  Folate deficiency can cause low white blood cells and anemia.  Folate is needed to work with B 12 to make both red and white blood cells.  Here's a couple of articles. http://www.nhs.uk/conditions/Anaemia-vitamin-B12-and-folate-deficiency/Pages/Introduction.aspx https://patient.info/doctor/macrocytosis-and-macrocytic-anaemia http://www.mayoclinic.org/diseases-conditions/vitamin-deficiency-anemia/home/ovc-20265306 Hope this helps.        
    • kareng, the thought occurred to me but she noted it might be two weeks before she might could answer back and I thought the forum might have an answer where the research was quicker. I will do that if someone doesn't already know where it is. I didn't put 2+2 together about olmesartan and losartan being the same class of medicine I guess . ... I actually changed to that form from a diuretic because I thought I might be loosing too many electrolytes like Magnesium. who knew I could be making my GI problems worse in the process. posterboy,  
    • Jherm21, I just posted a similar question in another forum topic that might answer some of your questions. I realized now this might be the better thread for the topic but since I was seeking the research on the BP medicine Losartan I posted it there instead. In short NSAIDs as well as some other medicines have been associated with GI issues. Here is a good overview of  the NSAIDs question form the DailyMail. http://www.dailymail.co.uk/health/article-2610158/Is-ibuprofen-making-sick-Research-suggests-cause-coeliac-disease.html I hope this is helpful. posterboy,
    • I suggested a urinalysis to see if you had proteinuria, which is something that can happen with certain rheumatoid conditions. But you say you’ve had two ANAs - assuming those came back normal? I really like the suggestion of a food diary and going low carb, especially as raised glucose consumption can lead to a positive methane breath test. You may have a food allergy and/or are producing a lot of mucus in reaction to something, which can make breathing more difficult esp if you have a deviated septum. I have now jacked my b12 way up and feel better, and I’m also consuming more iron-rich foods. Both of which in general help me feel less run down. You mentioned having very low BP in the middle of the night - have you measured it? What was it, if so?
      I wish I could be of more help. Plumbago
  • Upcoming Events