• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Are These The Right Blood Tests?
0

7 posts in this topic

Recommended Posts

ForTrent9    0

My 9 year old had his blood drawn today, these are the tests ordered:

CBC

Comp. Metabolic Panel

FREE t4

TSH, ultrasensitive

CELIAC Ab Panel

Iron

Vit. D -25 Hydroxy

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


mushroom    1,205

This is the full celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

It is hard to know what is meant by CELIAC Ab panel. If it is only the tests with "antibody" in its name, it may not include the DGP (a newer test), or the total serum IgA which is an important control for all IgA testing. Can you call the lab and ask them what they consider to be a CELIAC Ab panel? And if it does not include the last two I would ask my doctor to include them if I were you, if it is not too late.

The other tests are a complete blood count and metabolic panel as it says, thyroid function, iron and vitamin D.

  • Upvote 1

Share this post


Link to post
Share on other sites
Lisa    457

I agree with Mushroom. I, too am not too sure what the Celiac AB panel involves, but she posted the current serologic testing in her previous post. It's a complete series of six test, which speak to each other...for a more definative diagnosis. I would insist on nothing less.

It's also good to be tested for other issues. There could be a common link or this issue could be very independent from a gluten issues.

Best of luck to you with your testing.

Share this post


Link to post
Share on other sites
Lady Eowyn    14

Hi

Seeing the above tests, I was told by doc yesterday that for a celiac blood test (UK) I would only need to consume gluten for two weeks and that the test is sensitive. Didn't ask which test this is as previously believed that you had to eat lots of gluten for three months :o which I cannot do. I am self-diagnosed but have DH and no real doubt in my mind, just every so often have misgivings and wonder if i'm just on a fad. Negative results would make me feel so stupid. Does having DH mean celiac blood tests have higher incidence of false negative? I showed anti gliadin antibodies on saliva test which recommended gluten free. Have had DH (self diagnosed but classic case) and Hashi's since teens. Sensitive to iodine - reaction with DH and hypothyroid - and Sooooooooooo can't eat gluten!!!

Feeling very down with self-doubt at the moment - doc relying on useless TSH, reduced dose (thyroid hormone) last Nov and now have lots of old enemies (hypo symptoms) back.

Any advice on tests?

Will ring doc and find out what blood test he was on about.

Share this post


Link to post
Share on other sites

My UK doctor said one week gluten challenge, but changed to 6 weeks when I showed her the coeliac UK advice.

We seem to have different tests as standard, but I have yet to get anyone to tell me what they are. Mine came back negative, with no ranges.

There is no need to feel stupid. Diagnosis is a difficult process, and often confusing. Once your testing is done, it is worth trying strictly gluten-free. This is often the best test.

I did this, and my GI diagnosed me non celiac gluten intolerant on the basis of my reaction to the gluten challenge (I bailed after 3 weeks and will never repeat) and response to gluten-free diet.

I feel way better than a few months ago.

Good luck with your journey, ask lots of questions :)

Share this post


Link to post
Share on other sites
Ads by Google:


Lady Eowyn    14

Hi Mindwarp

Been gluten free over 12 months and think a 3 month challenge might be the end of me :o - would be unable to function. On two weeks with gluten being mentioned by doc, just thought that perhaps it was worth a try for official diagnoses. While I don't need this for myself, I get fed up with the reaction of others giving you that 'yeah, yeah' look - you know the one I mean! - especially the doc!

I mentioned to him about reaction to other foods, soy, dairy, rice, pots ...... he said if I was cutting out foods, including gluten, I was bound to start getting reactions to them - what does that mean ??????

Feeling in a bad place at the moment - so am probably best ignored :ph34r: .

Share this post


Link to post
Share on other sites

Hi, I think we just need to keep asking questions and following our guts (ha ha). I am finding working out the other intolerances extremely difficult. I would say stick around, not sure being ignored is the way to go.

I did have a test at 3 weeks, though it was negative. If you have already started eating gluten, maybe do the 2 weeks and get the test. Personally, I wouldn't do it again now.

I was upset when I got a negative for celiac. I am keeping going with the non celiac gluten intolerance. I think because I take it seriously, other people do, mostly. I think we just gotta keep going. I had a bad day today, but coming here and knowing I am not alone helps.

Sending hugs Mw

Share this post


Link to post
Share on other sites


Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      107,912
    • Total Posts
      938,647
  • Member Statistics

    • Total Members
      65,835
    • Most Online
      3,093

    Newest Member
    Shirley Ann
    Joined
  • Popular Now

  • Topics

  • Posts

    • It's unfair to make such a general statement about ER's and hospitals.  Unfortunately, I've been to the ER several times and hospitalized three times in the past few years.  The staff took me seriously when I told them I had celiac.  Popsicles and drinks were checked for gluten, and a good laugh took place when a nurse came in to remove the cheesecake that was brought to me when the staff found out it was our anniversary. Dietary services were called and Lucy's gluten free cookies were given to me instead. Once admitted to the hospital, a dietician was sent to my room to discuss meals and she checked back with me a couple of times.  The only mistake made was the dairy free protein shakes that were delivered daily and left untouched.  When dietary called my room to ask why I wasn't drinking them, my husband had to inform them to read the label as it was clearly labeled containing milk products.  
    • Here is more information about testing family members. https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/  
    • Hello, I have been dealing with a mysterious rash for the past ten years that I am slowly beginning to think is DH.  It comes and goes, is itchy as all get out and shows up in all the areas that DH appears (elbows, back, torso, knees and base of neck).  It comes and goes over the years which has thrown me a little, but from what I can tell it can happen with DH? Anyways I went to an allergist, he was a jerk and told me it was not an allergy and to get a biopsy (which was done ten years ago when it first happened, but okay).  Me being at my wits end I called up a local dermatologist and got an appt for a biopsy.  I went in armed and ready with the info I have read here about the correct biopsy etc.  Well of course the dermatologist wouldn't give me the time of day Would not listen to the past history of the rash or look at photos, was in and out within five minutes and insisted on a scratch biopsy instead of a punch biopsy.  She simply said she would be highly surprised if it was DH.  I try to respect doctors so I pushed but I did not push hard enough.  She did the scratch biopsy against my recommendations.  So that brings us to today when I received a message that the biopsy showed an allergy and that they could either give me an order of prednisone or refer me to an allergist.  Now if you remember my local allergist sent me away and said it wasn't an allergy.  I am so done and I refuse to just keep medicating myself, I need to find the root cause.   So I have a physical tomorrow night with my regular doctor and I am tempted to just insist on a punch biopsy next to the rash for a proper biopsy.  Couple questions for you guys though.  If a scratch biopsy came back as an allergy could that possibly lead to gluten allergy (I know it doesn't prove that, but could it mean it could be gluten?).  Should I keep pushing for a punch biopsy? I am planning to go gluten free after this appointment anyways but I keep eating it to try and get a proper diagnosis.  I feel I should get a proper diagnosis, one to keep me on track, one to make sure that is what it is and also I did try gluten free for 30 days before and it didn't seem to help the rash.  But from what I have read that could have been to short of a time.  I feel I need a proper diagnosis to help me stay with it and keep on the right path.   Lastly, the rash definitely went through stages and is at an end stage, still itches like crazy but isn't as bad looking as when it started.  Does it matter when you take the biopsy as long as there is a rash it will potentially show?  I hope all this makes sense.  I am tired of being told I am crazy from doctors.  If they could find the solution I wouldn't be looking myself.  I would be very happy to be proved wrong but so far that has not happened and I just want an answer! So tired of being itchy!! Thank you very much for your help and listening!!!
    • I'm sorry I don't have much advice for you but I can relate in some ways. I've took generic Zoloft for about 10 years. When I was diagnosed celiac I worried about and researched my medications and am confident that they are safe for me. I have spent many years fighting depression and anxiety and have tried different meds but finally accepted I need the Zoloft and Xanax probably for life. I will say that most of our serotonin is in our stomachs and any time I switched meds or had to withdrawal my stomach issues were the worst. So please be careful with switching or stopping ( never cold turkey) any psychiatric medication. Also you could be sensitive to other grains. Gluten free bread does not like me. Also so far I have not found any one in the medical field that takes celiac seriously. I have been laughed at even and most don't have a clue what problems gluten does to us mentally and physically.
    • When does it matter if its gluten-free? ( likely is)  but she isn't eating it. She isn't 2 and put her fingers and paint brush in her mouth.  Are you or your son going to lick the glass?  Of course not.    Any paint can be be scraped off glass with a razor blade.  Some people use dry erase markers
  • Upcoming Events