This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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I contemplated "heel strike" but nah.....it was celiac disease/malabsorption. I am still running and my ferritin is nice and normal now. It resolved within three or four months of a gluten-free diet and some iron. I also ran a 1/2 marathon despite it being a 2 (pre-diagnosis) and a few century rides. I think you might need to worry if your hemoglobin dramatically drops. My docs were always asking if I wanted a blood transfusion. Amazing how the body adapts. My Thalassemia tends to keep my hemoglobin just below range. The drops in ferritin caused it to plummet. Had a hard time catching my breath!
I probably asked this, but has Crohn's been ruled out? My niece went to 4 different GI's. celiac disease was ruled out, but a pill camera revealed Crohn's damage at the end of her small intestine finally.
Err... don't know what happened to this thread in my absence, but thought I'd add some input that might be helpful. I'd been having some weird low-level CC issues for the last few weeks and couldn't figure out what it was - I eat very conservatively (only eat certified products or fresh meat/produce/dairy) and it was driving me crazy! I saw this thread and thought about it a bit and realized that things seemed to have gotten worse around the time of my last coffee ground purchase, where I'd bought a different brand than I'd been using previously.
Anyways, I switched to a fancier brand and things cleared up immediately. If anyone should come across this, the brand apparently causing issue for me was President's Choice. This is a store brand for the Loblaws chain in Canada, so probably not worth worrying about for most. I've not yet had time to contact them about this, but this brand does also offer a number of flavoured coffee grounds (used to buy these pre-gluten-free), so there is some CC potential there assuming they process these products on the same line. I guess I will be sticking with whole bean coffee or smaller/snobbier brands that don't do flavoured stuff for the foreseeable future.
The year to recover? It seems pretty standard around here despite some literature stating it only takes months for villi to recover. That may be true, but most celiacs have systemic issues. Neurological issues are usually the last to resolve, if at all. And let's not forget that the gluten-free diet has a steep learning curve that can delay healing.
I have read sites that promote a Whole Foods diet without gluten in an attempt to calm down inflammation or improve an autoimmune disorder. It works for some but not all, but it is certainly worth considering. For me, I was undiagnosed for years like so many celiacs. I also have Hashi's which was diagnosed 20 years ago. Since going gluten-free, after my celiac disease diagnosis, my thyroid has shrunk and my nodules are gone. However, this past winter, I had a tooth infection, the flu, a cold and now my thyroid antibodies are high again. I also developed autoimmune hives (like clockwork, they appear at 3:00 pm) as a result (I think). My immune system is constantly running on high alert. I have allergies to so many things. But....what is a girl to do? Beside a cocktail of antihistamines, I move forward. I am "healthy". I can still ride my bike, swim and run. Maybe not as fast (who am I kidding...not fast at all) as when I was younger in my 30 and 40's. I have Type 2 diabetes despite being thin. Like celiac disease, diabetes is genetic.
Read the Newbie 101 under coping. Make sure everything is gluten free. you would be surprised at hidden sources or dealing with cross contamination. I know your family has celiac disease, but unless you walk the walk daily, you do not get it. But...maybe you do!
Does he run a lot? On hard ground? My ferritin started at 74 and is now 20. My rbc count was normal but showed mild anemia after an 18 hour fast.
I initially also thought it might be due to malabsorption, and it may be, although my gut doesn't show a ton of damage. Coincidentally I started running around all of this, with A 6 month break in between, and have also recently read that Runners Who log a lot of miles generally are pretty low on ferritin if they don't supplement. I only do between 6-15 Miles per week. I eAt a mixed green salad about 5 times a week, red meat a couple times a week, and then a lot of other high iron foods.
lamb stew is a tremendous source of iron, as well as mussels. I am a big fan of garden lights chocolate zucchini muffins as well each mini muffin contains 20% of the daily value. I Like to eat Two for breakfast with my coffee.
if he stopped eating gluten about a month ago you might still be able to get the blood test done. I'm sure you have read by now that you need to be eating gluten to be tested. antibody start falling Right away but for some people it takes a long time.
I'm not a doctor but I would think that if you have enough damage to mal absorb iron then it would take a lot longer than just 4 weeks for you to fix that kind of damage And reabsorb it again.
did they order a total iron binding capacity? and was the iron panel done while fasting? You don't really need to fast for a ferritin but serum Iron can easily be elevated With food.
Although symptoms vary depending on the individual I have read quite a bit online that When ferritin drops below 40 people can start getting symptomaTic. so you are likely correct that his feeling better is related to his ferritin level increasing.
giving up gluten means giving up certain nutrients as well. So if he's already vegetarian he needs to really pay close attention to what nutrients he might be missing in his diet now if he's giving up whole grains.