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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Enterolab Gene Test
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mamamonkey    4

Has anyone done the genetic testing through Enterolab? My insurance company and I are going round and round and round about the genetic testing that my GI doc ordered. The Enterolab price isn't bad, so I am considering going that route if I can't get anything done with the insurance.

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frieze    114

Has anyone done the genetic testing through Enterolab? My insurance company and I are going round and round and round about the genetic testing that my GI doc ordered. The Enterolab price isn't bad, so I am considering going that route if I can't get anything done with the insurance.

Before you get the testing, consider what, if any, difference it will make in you choices...

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mamamonkey    4

It won't make any difference in my choices. I will still be gluten free for the rest of my life. :)

I want to know b/c I have a child and no one in my family has ever been dx with celiac. I also want to know b/c then I can encourage them to be tested for celiac too (my GI thinks my mom should be tested since she has osteoporosis and had autoimmune hyperthyroidism). This is purely for informational purposes. Not to guide any treatment decisions.

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frieze    114

It won't make any difference in my choices. I will still be gluten free for the rest of my life. :)

I want to know b/c I have a child and no one in my family has ever been dx with celiac. I also want to know b/c then I can encourage them to be tested for celiac too (my GI thinks my mom should be tested since she has osteoporosis and had autoimmune hyperthyroidism). This is purely for informational purposes. Not to guide any treatment decisions.

are you a biopsy proven celiac? If you are, and your genes comeback negative....wouldn't be helpful. In the usa, they generally only test for two, in europe they test for more than that.

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kvanrens1    1

We have had the gene testing for our daughter through Enterolab. It was helpful for us to know that she does not have the main celiac genes and fits with her negative celiac tests. Her official diagnosis is non celiac gluten intolerance.

The test is a quick swab of the inside of the cheek and not invasive. Enterolab does not provide subunit info. Our daughter is DQ7 and DQ9. Some research indicates that DQ7.5 may be a celiac gene but we did not get that level of information from Enterolab.

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gatita    32

DQ9 is also now being linked to celiac: http://www.ncbi.nlm....pubmed/22342873

And: http://intimm.oxford.../12/8/1157.full

Here's the plain English version: http://celiacdisease...l/g/Hla-Dq9.htm

To the OP, I believe Enterolab's gene test is not as in-depth (ie. sub groups like DQ 6.3) as some of the more costly ones, but it does test for the basic celiac genes. Fine has this theory that some other genes point to non-celiac gluten sensitivity, but most experts say there is no test for that yet.

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mamamonkey    4

are you a biopsy proven celiac? If you are, and your genes comeback negative....wouldn't be helpful. In the usa, they generally only test for two, in europe they test for more than that.

EGD and biopsy were done at 5/6 months mostly gluten free (meaning the occasional cheat and not paying any attention to CC). Biopsy showed interstitial lymphocytic infiltration which was nonspecific, but could indicate partially treated celiac. This combined with my gluten-free diet response is what led the GI to dx celiac. So I guess so, sort of??

GI doc has an appt to do a peer to peer review for the insurance. I doubt they are going to reverse their decision. Discussing with DH whether or not to do the testing through Enterolab.

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