• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gluten-Free Glutton: Celiac Disease Is Expensive -- But I'm Not To Whine About It - Florida Times-Union
0

3 posts in this topic

The Massachusetts Daily Collegian

Gluten-Free Glutton: Celiac disease is expensive -- but I'm not to whine about it

Florida Times-Union

You may not be aware of it, but there is a federal tax deduction that people with celiac disease can take for the increased cost of gluten-free food. It will probably be an exercise in futility, but I'm going to take all the steps necessary this year ...

Gluten free diet requires careful shopping The Massachusetts Daily Collegian

all 2 news articles »

View the full article

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I hate to be the bearer of bad news but that 7 1/2% threshold is going up to, or has already gone up to, 10%, courtesy of Obama Care. So, unless you have 20 children and they all are diagnosed Celiacs, you can forget about this deduction. It's shameful that the US government cares so little about medical costs for everyone and especially those of us who have to eat this way. No one should be taxed on legitimate medical expenses, especially when those passing these ridiculous laws have the best medical care in the world. :angry:

0

Share this post


Link to post
Share on other sites

Oh, that guy. Mark Basch. He is a one-man typing font of celiac/gluten intolerance misinformation, and now he's adding IRS problems to the resumé. :rolleyes:

You have to see this:

http://jacksonville.com/entertainment/food-and-dining/2012-07-12/story/gluten-free-glutton-whats-really-gluten-free

When he's not bashing the merely gluten intolerant, he's the Big Fan of the looser definition of "gluten free" to include processed gluten :angry: and up to 20 ppm.

I don't worry about that a lot because I generally don't get sick if I eat a small amount of gluten. I avoid gluten because I know that it is damaging my intestine and will cause long-term health issues.

So when the FDA guidelines came out last year, I put this question to one of the leading researchers on the disease, Stefano Guandalini of the University of Chicago Celiac Disease Center. He assured me that "there is good, solid science" behind the safety of the 20 ppm standard. He also pointed out that the standard has already been adopted in Europe.

He said studies have shown that celiacs can consume up to 10 milligrams per day of gluten without causing damage, or about 1.1 pounds of food that contain 20 ppm of gluten.

With that reassurance, I was interested to read recently about a new beer produced by a brewery in Oregon. The beer is called Omission and it claims to be the first gluten-free beer in the U.S. that is brewed with traditional beer ingredients, including malted barley.

Here comes the let's make gluten free food, or beer, out of gluten nonsense again. It only bothers the super- sensitive, right ? :ph34r:<_<

And if Europe doesn't do something correctly, of course we should then emulate them, right ? Of course, that University of Chicago Celiac Disease Center website, cureceliacdisase.org, that Guandalini is on the board of, claims on its website that the gluten free diet "fails to heal intestinal damage in more than half of cases." (earlier discussion of this on this thread here, including links and the link to the FAQ page from cureceliacdisease.org, with this claim here: http://www.cureceliacdisease.org/archives/faq/why-do-i-need-a-cure-when-i-can-simply-eat-a-gluten-free-diet

If this contention was true, that a gluten free diet does not work in over 50% of diagnosed celiacs cases, based on studies done in parts of the world with alleged "gluten free" food made with gluten ingredients, should not the standard here in the United States be BETTER THAN THAT ? And should not the gluten free diet topic media writers with the disease be more concerned about that ?

Mark Basch also was claiming that the Domino's Pizza (the ones who got so into trouble with the not really gluten free because of cross contamination, that one of the celiac organizations tried to "rate," as to probability of safety :angry: ) was tested by an independent company as it was gluten free. But he also says that he eats them and doesn't get sick, so he's the the right "test patient for that."

He shouldn't give bad tax advice, either.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,797
    • Total Posts
      932,511
  • Member Statistics

    • Total Members
      64,283
    • Most Online
      3,093

    Newest Member
    Michael McNamara
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi Christiana, thanks for the reply. I am both interested in the outcome of this story for curiousity and for how it relates a bit to me,  Is your pain and pressure similar to the feeling of all your insides about to slide out onto the ground? It is similar to carrying a baby in the third trimester! I get this when I've been standing and walking for most of the day. There is also pain presenting in my Pelvic area, although I thought this was from a nerve cluster that was damaged during my hysterectomy . Is there anything you do about this? thanks again!
    • In comes SIBO Girl to join Captain NCGS   One other thought:  have you looked at the possibility of having small intestine bacterial overgrowth (SIBO)?  The pain you are feeling may be related to bloating pressure, which, if it is caused by SIBO, would continue after the removal of gluten because lots of foods feed the bacteria in your small intestines once they have become established where they don't belong.   One of the things that is confusing about celiac/gluten sensitivity is that is causes so many other things. Anemia, for example. Remove the gluten you feel better, but you may still need to treat the anemia to make those anemia-specific symptoms go away. Same thing with B vitamin supplimentation (nod to Professor Pellagra) and some of the neurological symptoms. Same with bacteria in the small intestines.  Guten affects my daughter's nerves. These affect motility, which affect her body's ability to prevent bacterial overgrowth. The removal of gluten was key to eliminating most of her symptoms. But removing excessive fermentable carbs was important for the SIBO to be kept at bay. That's the Fodmap component (but not JUST Fodmaps).  Going grain free has been amazing for her health.   Here is the best website for SIBO. Just something to consider. http://www.siboinfo.com/symptoms.html Incidentaly, SIBO is very common in folks with gluten sensitivities. I personally think that everyone diagnose with celiac disease should also be tested for SIBO just like they test for vitamin deficiencies. It would probably greatly help in recovery if you treated that condition as well. 
    • No, I was gluten free both times I had a scope.  They found eosinaphalic esophagitis and most recently ulcers.  The ulcers were the cause of the nausea apparently. i feel pretty good most of the time if I take all my vitamins, avoid sugar and carbs and lean toward the AIP diet.  I then have a corn tortilla or popcorn with my dinner and it's enough carbs for good sleep.
    • It needed paragraphs 
    • Hi Victoria I hope you get some replies as some of these people are still on this board.   Is this something you are suffering from? I thought I'd just let you know that I had this very badly at diagnosis, and it went on and on for some time. I had pelvic u/s and also a precautionary sigmoidoscopy - all was clear.  In the end what really helped was giving up all dairy for a few weeks.  It pretty much stopped - I missed my dairy though, so reintroduced it. But it was good to know it was bloating that was causing it.   But the pain was also due to something else. I still get pain to the left of my groin/pelvis when I've been carrying heavy bags and doing a lot of walking.  I have an issue with my sacroiliac joint.  Look it up - it is a common problem for coeliacs.  The pain transfers to the front of the groin, and also to the buttocks.  If I touch my left sacroiliac joint now it is really tender.  But with it I have an accompanying feeling of pain and pressure in my left groin/pelvic area, which reminds me of the time when I was expecting a baby , a simliar type of pressure.   I hope you hear from others but maybe this will help? Cristiana
  • Upcoming Events